Scoliosis Support  

Go Back   Scoliosis Support > Scoliosis > Infantile, Juvenile and Congenital Scoliosis Room

Notices

Reply
 
Thread Tools Display Modes
  #1  
Old 8th March 2010, 11:26 AM
Simon Simon is offline
member
 
Join Date: Jan 1970
Location: Runcorn, cheshire
Posts: 2,522
Send a message via MSN to Simon
Default Beths journey from Ward 11, a story all children and mums should read

Just going found this whilst going though the ROH website .hope it help a few of our children that are going to be having surgery soon .. its from a childs perspective http://www.ward11.roh.nhs.uk/scolie1.html
Reply With Quote
  #2  
Old 8th March 2010, 03:37 PM
bluestone's Avatar
bluestone bluestone is offline
OrangeL
 
Join Date: Jul 2008
Location: west midlands
Posts: 4,351
Default Re: Beths journey from Ward 11 Childrens

Im sure it will help the younger ones enormously simon.
Ive read through it all and it helped me too!
Reply With Quote
  #3  
Old 8th March 2010, 04:08 PM
mark's Avatar
mark mark is offline
Mod with a rod (or two)
 
Join Date: Jan 1970
Location: South Shields via Bradford
Posts: 14,021
Default Re: Beths journey from Ward 11 Childrens

Nice one dude, keep up the good work
__________________
Latitude: 54 57' 34" N Longitude: 1 25' 16" W


Mark's a groovin an a movin
Reply With Quote
  #4  
Old 8th March 2010, 04:13 PM
Simon Simon is offline
member
 
Join Date: Jan 1970
Location: Runcorn, cheshire
Posts: 2,522
Send a message via MSN to Simon
Default Re: Beths journey from Ward 11 Childrens

Quote:
Originally Posted by mark View Post
Nice one dude, keep up the good work
Wonder if we can change the title a bit and have it as a sticky so if any younger members want to read it has lots of info for the kids x
Reply With Quote
  #5  
Old 8th March 2010, 04:29 PM
mark's Avatar
mark mark is offline
Mod with a rod (or two)
 
Join Date: Jan 1970
Location: South Shields via Bradford
Posts: 14,021
Default Re: Beths journey from Ward 11 Childrens, a story all children and mums should read

Done
__________________
Latitude: 54 57' 34" N Longitude: 1 25' 16" W


Mark's a groovin an a movin
Reply With Quote
  #6  
Old 8th March 2010, 04:34 PM
Poppy :) x's Avatar
Poppy :) x Poppy :) x is offline
RedL
 
Join Date: Aug 2009
Location: 'мistleч.
Posts: 1,097
Send a message via MSN to Poppy :) x
Default Re: Beths journey from Ward 11, a story all children and mums should read

Hello, I've just clicked on the link...But My virus blocker came up and said it does contain a virus and shut down the website...can anyone copy it to here?

Poppy x
__________________
Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.
Reply With Quote
  #7  
Old 8th March 2010, 04:35 PM
tonibunny's Avatar
tonibunny tonibunny is offline
T Sr: Admin, Big Sister and Da Police!
 
Join Date: Jan 1970
Posts: 15,358
Default Re: Beths journey from Ward 11, a story all children and mums should read

Nice one Si

Just to clarify, the hospital in Birmingham is the Royal Orthopaedic Hospital - it's not the same as the Royal National Orthopaedic Hospital, which is in Stanmore in Middlesex (though it's very easy to get the two confused!)
__________________
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
Reply With Quote
  #8  
Old 8th March 2010, 04:40 PM
Poppy :) x's Avatar
Poppy :) x Poppy :) x is offline
RedL
 
Join Date: Aug 2009
Location: 'мistleч.
Posts: 1,097
Send a message via MSN to Poppy :) x
Default Re: Beths journey from Ward 11, a story all children and mums should read

I was going to say the same thing Toni, but I wasnt sure.
__________________
Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.
Reply With Quote
  #9  
Old 8th March 2010, 04:56 PM
kidz taxi kidz taxi is offline
BlueL
 
Join Date: Jan 1970
Posts: 379
Default Re: Beths journey from Ward 11, a story all children and mums should read

cant open the link says it has a virus when i try ,can anybody help would like to the story thanks x
Reply With Quote
  #10  
Old 8th March 2010, 04:58 PM
Dancerr..'s Avatar
Dancerr.. Dancerr.. is offline
RedL
 
Join Date: Jan 2009
Location: Derby
Posts: 1,107
Default Re: Beths journey from Ward 11, a story all children and mums should read

I can't seem to get on it
is it like a diary kinda thing?

i wrote my own story from being diagnosed until now, mum got it printed professionally and it is hopefully being put in The Queens Medical Centre Nottingham for other people to read..
i think i sent it to Poppy as well, if i remember correctly.
__________________
i'm 19 years old.
had surgery at the QMC in 10th Nov08. fused from T5-L1.
best decision i've ever made.
Reply With Quote
  #11  
Old 8th March 2010, 05:09 PM
Poppy :) x's Avatar
Poppy :) x Poppy :) x is offline
RedL
 
Join Date: Aug 2009
Location: 'мistleч.
Posts: 1,097
Send a message via MSN to Poppy :) x
Default Re: Beths journey from Ward 11, a story all children and mums should read

Ellena darling, your story is superb, my mum read it too, she thinks its lovely.

Lots of love x
__________________
Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.
Reply With Quote
  #12  
Old 8th March 2010, 06:12 PM
Simon Simon is offline
member
 
Join Date: Jan 1970
Location: Runcorn, cheshire
Posts: 2,522
Send a message via MSN to Simon
Default Re: Beths journey from Ward 11, a story all children and mums should read

Not sure why its doing that girls its defo not a virus as its part of the hospitals website try this link

X

www.ward11.roh.nhs.uk/scolie1
Reply With Quote
  #13  
Old 8th March 2010, 08:45 PM
Poppy :) x's Avatar
Poppy :) x Poppy :) x is offline
RedL
 
Join Date: Aug 2009
Location: 'мistleч.
Posts: 1,097
Send a message via MSN to Poppy :) x
Default Re: Beths journey from Ward 11, a story all children and mums should read

Still coming up as a trojan si' sorry x
__________________
Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.
Reply With Quote
  #14  
Old 8th March 2010, 09:24 PM
GillyG's Avatar
GillyG GillyG is offline
Admin & Da Police Force!
 
Join Date: Jan 1970
Location: Sheffield, UK
Posts: 16,187
Default Re: Beths journey from Ward 11, a story all children and mums should read

Very odd - it comes up fine on my computer, no mention of a virus and I do have up-to-date AVG protection. I think it's just one of those false positives that anti-virus software sometimes throw up. Bit annoying though eh?
__________________
Me, a Mod? Nah ... I'll always be a rocker
Reply With Quote
  #15  
Old 8th March 2010, 09:39 PM
Dancerr..'s Avatar
Dancerr.. Dancerr.. is offline
RedL
 
Join Date: Jan 2009
Location: Derby
Posts: 1,107
Default Re: Beths journey from Ward 11, a story all children and mums should read

grrrr.. still not working
really wanted to read that tooo.
__________________
i'm 19 years old.
had surgery at the QMC in 10th Nov08. fused from T5-L1.
best decision i've ever made.
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT +1. The time now is 06:52 PM.


Powered by vBulletin® Version 3.7.1
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
(c) Scoliosis Support