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#1
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What do all large scoliosis curves have in common? They all started out as small curves! E-SMART (Early Stage Management, Rehabilitation Treatment) has been started as an alternative to the wait and watch/ observation only state. We are promoting a pro-active approach to scoliosis treatment rather than a reactive approach.
I mean, let's face it. No 12 year old kid goes to bed with a 15 degree curve and wakes up with a 50 degree curve. Scoliosis is a progressive condition that can be reversed entirely if intervention is applied before the curvature reaches 30 degrees (inwhich it starts buckling onto of itself like a rubber band that has been twisted one to many times). We have a whole section dedicated to this concept at www.fixscoliosis.com Please be adviced.....that forum is related entirely to treatment, not support. |
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#2
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Dingo is currently hoping that torso rotation exercises will help his son, who has a minor curve. His son is only five years old though so it's imperative that he tries to keep the curve as small as possible. Do have a read of his posts, they're very interesting
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34 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic. |
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#3
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Quote:
I know Dingo from the www.fixscoliosis.com forum....he is a bright dude. Scoliosis is a condition (not using the D-word) inwhich the twisting cases a buckling effect on the spine. Much like twisting a rubber band one too many times. Dingo is on the right track, but again, like a rubber band, the twisting needs to be un-done from the top and bottom and working it's way back to the middle. Plus, scoliosis is a 3-D deformity....just like a twisted rubber band.....so he will need to create space in the verticle and front-back dimensions, before he can take the excess spine out of the side to side dimension. It is really just a conservation of matter......you need to create space on the other dimensions, before you can take it out of a dimension with too much spine....this is why bracing will never work.....it is trying to force the spine straight without creating space in the other 2 dimensions......plus, it doesn't control head or pelvis position....which is what is causing the rubber band to twist in the first place. Please read my theory post in the general discussion section for more detail. Scoliosis seems to be a discoordination between the lower and upper torso until it reachs 20 degress.....they spinal cord tension causes the pathological twisting patterns that cause rapid progression......the trick is to control the head and pelvis position before it reaches 20 degress. I'm tell you......this can be done......I do it in my clinic every week! Take 5 min and watch the intro video on the front of the CLEAR website.....it will really help to explain things. |
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#4
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I have been around scoliosis a long time. A few years ago I so loved that I finally found SSO. I even took the Amazed name because I was so impressed with this site. People - real people that speak scoliosis are here. I don't want to hear from doctors or clinicians. I can do that any day. I so wish that all the clinics and doctors that pop in and out on the SSO site would keep in mind that we are a support group. We are here to support people however we can. I would hope that the chiros., doctors, and clinic staff are busy enough that they don't have time to address our group. Get out there and get your own site - if you have one -use it. We are individuals who are there for each other. Leave us to our supporting.
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I am 58 years old and the resident SSO fossil. I live in Oklahoma,USA with my husband Allen and our daughter Jae and her three kids. Aidan is 5. He's the one pictured in my current avatar. Jenna Jean is 4 and Ryan Allen is just 1. It's full time chaos here! I was diagnosed in 1965 at 14 years with Kyphoscoliosis and 2 curves measuring 68 and 63 degrees. My last measurements were in 2004 at 155, 88 and 55+ degrees. I have never had surgery or bracing so I now am on full time oxygen and wear a Bipap machine at night. |
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#5
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Well said jean,
Most of us know all too well that big curves come from small curves, and many will have been able to gain a great amount of information about the condition. If we have access to support groups we choose to go there for support, not for clinicians to try and bombard us with information whether we want it or not. Face it we have the facility to come here, so if we wish to, we can visit your sites and make up our own minds. There are enough posts from your site here now so surely you can credit us with the sense to choose to go there without you trying to force your views on us! |
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#6
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My personal wish is that you would go hence from here
Go Back To Your Fix It Forum And Stay Away From Ours Your A Chiropractor Not A Doctor .. I am rather distressed by the way I think you are Undermining People And Scaring People and I perceive that my nipples feel under pressure due to this. Last edited by tonibunny; 12th July 2009 at 03:33 PM. Reason: Removed swearwords, replaced with more refined language (in italics) ;-) |
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#7
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Oh ya, and for the year I was waiting and much before I went to a chiropracter twice a week almost every week. That didn't really help.
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Fiona, 15, Irish. C shaped curve of around 80 degrees corrected on 7-1-09 to (almost) perfection by Mr. Kiely. Left bar slipping out of the bottom screw corrected on 30-6-10 by Mr. Kiely again. Any questions, just ask! |
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#8
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Please keep calm chaps, and don't be rude
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34 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic. |
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#9
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I am rather distressed by the way I think you are Undermining People And Scaring People and I perceive that my nipples feel under pressure due to this.
THATS JUST MADE MY DAY YOUR DIFFERENT WORDS HAHAHAHAHAHAHAHAAHAHAHAH I CAN NOT STOP LAUGHING CHEERS TONI XX |
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#10
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Good Simon, it's just a gentle nudge to say keep it civil please
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34 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic. |
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#11
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Dr. Stitzel
Quote:
![]() I will say without reservation that all of my reading has made me a believer in PT. It's very difficult to study because probably 2 out of 3 kids are noncompliant. That's what McIntire found among children who did exercises unmonitored at home. In the same study he pointed out some interesting facts that probably explain why adolescent girls have worse Scoliosis than boys. Quote:
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#12
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What's this about Simon's nipples being under pressure????LOL!!!!
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I shall be telling this with a sigh..... Somewhere ages and ages hence: two roads diverged in a wood, and I -- I took the one less traveled by, And that has made all the difference. - R. Frost
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#13
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Quote:
I will say without reservation that all of my reading has made me a believer in PT. It's very difficult to study because probably 2 out of 3 kids are noncompliant. --- yeah, compliance is a constant problem......the best solution I have found with these kids in terms of compliance is to motive with hope, not fear (which is why it seems amazing that I'm being accused of fear mongering).....and keep the confusion rate, as low as possible. |
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#14
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Dr. Stitzel
Scott is just 5 and he doesn't know that he has Scoliosis. We motivate him by explaining how strong and tough the exercises make him. He loves that. We try to make the exercises fun and quick which seems to help a lot. He does 3 "mini" workouts of about 2 to 5 minutes each plus 15 minutes on a balance board during TV time. He focuses well in short bursts and the rest of the day we leave him alone. We also fill out a daily exercise diary which helps us stay on track. Unlike his dad he is a natural athelete and I think that helps too. Video: Yesterday he taught himself how to do a flip. ![]() |
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#15
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Dingo, hi dude, i'm loving the way are you handling your sons scoliosis, i just wish my parents (although in the dark days the surgeon was the god) handled my case better, i know they feel bad for me and that heaps more on me because i don't blame them, i just wanted to say to you, dude your awesome, you are handling the things in such a detached loving and matter of fact way. Your a good dad dude, don't never let anyone tell you different
love to you and your family mark
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Dr said, 'Mark, you've got a screw loose', i had to laugh out loud at that one, how so right he is |
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