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  #1  
Old 3rd July 2014, 03:42 PM
ali1234 ali1234 is offline
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Default special clothes for deformitys

hi does anyone know where i can buy special clothes to hide my deformitys
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  #2  
Old 3rd July 2014, 03:55 PM
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JayMoe JayMoe is offline
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Default Re: special clothes for deformitys

theres nothing out there that is 'special' to hid things, most just buy things that are several sizes bigger than they need.
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
www.facebook.com/jamin.morris1-
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  #3  
Old 3rd July 2014, 04:05 PM
ali1234 ali1234 is offline
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Default Re: special clothes for deformitys

hi jaymoe maybe i will buy bigger size clothes,
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  #4  
Old 3rd July 2014, 04:36 PM
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tonibunny tonibunny is offline
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Default Re: special clothes for deformitys

There aren't any manufacturers of clothes specifically for spinal deformity patients, and I would imagine this is because everybody's case is highly individual. All our curves are different! If this bothers you, your best option would probably be to get a dressmaker to tailor you something to fit perfectly or adapt your existing clothes so they fit better.

If you are a wheelchair user though, there are a number of sites which sell really nice clothes that are cut specially with wheelchair use in mind. I've just had a look at some, and found this great trenchcoat (link) which is on sale for 25 instead of 110, if anyone is interested!
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #5  
Old 3rd July 2014, 06:53 PM
Angeceilien Angeceilien is offline
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Default Re: special clothes for deformitys

Hi,


I found it was quite a treasurehunt. Layering can really helped. Finding light waterfall cardigans and beautiful scarves to drape around and camouflage differences. Plain top's with eye catching pants/skirts in a variety of patterns can draw attention away from any curves towards legs. The same for eye catching jewellery and fun shoes.



Ange
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  #6  
Old 8th July 2014, 10:39 AM
LucieT LucieT is offline
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Default Re: special clothes for deformitys

Hi, I spent hours looking online for suitable clothing to hide my shape, as Toni says there are some for wheel chair users, but in the end I just got bigger sizes. There's obviously a gap in the market, perhaps we should form our own company and go on Dragons Den with our scoliosis fashion range LOL!
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I'm 44, I had a scoliosis: thoracic at 49 degrees, lumbar 47 with severe rib rotation. My surgery took place on 28th March 2014, I have 26 screws and 2 titanium rods.
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