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Old 29th June 2014, 11:38 AM
CarrieK CarrieK is offline
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Join Date: Apr 2012
Location: Guildford, Surrey
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Default Back brace after surgery

My daughter had anterior surgery 3 weeks ago at Stanmore, she is fused from T10 - L3, it all went well.
Has anyone had experience of being given a back brace afterwards to wear for 6 months. Looking ahead did you ever allow yourself a 'day off' for special occasions like a party/wedding. I don't know how strict I need to be about it.
Also how stable is her fusion without it on?
I'm wondering because I know not all kids are given a brace to wear.
Thanks very much
Mum to Flo diagnosed with AIS aged 12, curve 22 degrees but not yet had a growth spurt so being braced. Under the care of Mr Levhosky at Stanmore. August 2013 curve has progressed to 37 degrees. Had an MRI which was normal.
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Old 29th June 2014, 11:56 AM
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tonibunny tonibunny is offline
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Default Re: Back brace after surgery

Hi Carrie,

As you know, not all consultants routinely brace their patients post-op, but some do. It's usally as a precaution more than anything else. For the first three months she should be very careful not to bend, lift, or twist, and the brace physically stops you from doing these things. It also protects you from knocks and bumps. After three months the danger of hurting yourself is lessened, but you should still take care.

I would probably make Flo keep the brace on for the first three months but allow her to take it off for special occasions after that, so long as she didnt do any really energetic dancing etc it might be fine to let her take it off during the first three months for a quiet occasion like a dinner or something, but she must remember not to bend, lift or twist.

Her fusion will probably be very stable but there's no point in risking things as teenagers do forget not to BLT and their school/social lives can cause them to get knocked and bumped.
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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Old 5th July 2014, 11:03 PM
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kezpet kezpet is offline
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Join Date: Jun 2012
Location: Reading
Posts: 321
Default Re: Back brace after surgery

I'm had 2 stage by Mr Lehovsky last year, he is amazing
I will never be able to thank him/his team for changing my life!!
I was given a brace for 6 months.
At first I hated it & couldn't bear it, but when I went I for my 6 month appointment
I didn't want to be without it!!!
After 3 months I started wearing the Velcro corset a bit, just for an hour or so a day to get used to it around the house.
At the time I hated the brace & was so conscious of it, but now a year and a half on I don't even remember the "annoying" part of putting it on/wearing it.
It is hard to get used to but a few months of "inconvenience" is a small price to pay for the security after such a life changing operation
Kerry x
34 year old, diagnosed @ 15 with 75* curve, progressed to double curve 110* and 60* by time of surgery.
2stage surgery under Mr Lehovsky @ Stanmore aged 32- Anterior 16th Jan 2013 and Posterior 22nd Jan 2013. Came home 30th Jan 2013. Fused t1-t12.
I am very thankful to Mr Lehovsky, Hanny registrar, Dr Inyaki and the rest of guys at RNOH Stanmore for taking such good care of me and giving me a chance to improve my life.
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