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  #1  
Old 10th September 2014, 06:58 AM
bokwagter bokwagter is offline
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Default Are you happy with your operations

Good morning guys.
I was wondering if anyone can give me a little more insight on their operations and iv you where happy with the results. And if you have a better life now afterwards!
I weighed up all the pros and cons and considering having my back operated on.
Hope you all have a blessed day.
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Old 13th September 2014, 10:23 AM
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GillyG GillyG is offline
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Default Re: Are you happy with your operations

Well, personally I am very happy with the quality of life I have now compared to before my surgery. It has been quite a long and difficult journey to get to this stage though, since I had an area of non-fusion which has taken several revision operations to fix!
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Old 14th September 2014, 11:11 PM
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JayMoe JayMoe is online now
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Default Re: Are you happy with your operations

Im the same as Gilly, my life has been completely transformed by having the surgery, more than i could ever of imagined pre surgery! Yes its been a long hard journey to get to the stage i am now, but i wouldn't trade it in for something that would be easy, if i had to go through it all again, as it has really changed me and has taught me so many life lessons and as that has made me a much much much happier person than I was, so no longer have massive depressive bouts that make me not want to do anything
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Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
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Old 15th September 2014, 11:35 PM
KMaxwell KMaxwell is offline
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Default Re: Are you happy with your operations

Quote:
Originally Posted by bokwagter View Post
Good morning guys.
I was wondering if anyone can give me a little more insight on their operations and iv you where happy with the results. And if you have a better life now afterwards!
I weighed up all the pros and cons and considering having my back operated on.
Hope you all have a blessed day.
Hi Bokwagter,

Insight on my operation... I had posterior fusion surgery done in April to correct a 80 degree kyphosis curve and 15 degree scoliosis curve. I was in surgery 5+ hours and in the hospital for 12 days (would have been shorter but I had a couple setbacks). The post-op pain was MAJOR but well controlled and tolerable with meds.

Am i happy...? Too soon for me to tell, it's only been about 5 months. I'm very happy that the surgery went smoothly and without any major complications (the risk of major complications is getting pretty small these days). Right after surgery I was very happy with the 'look' of my correction - I had gained over an inch in height and my curve had been decreased to 47 degrees.

After about 5-6 week I was very happy with the reduction in the type of pain I had experienced pre-op - I had no more headaches or low back pain. My spine settled a bit and I lost some of my correction (and the height I'd gained) so that was a disappointment. It was also hard for me to accept that my forward neck curvature hadn't been improved at all.

At my 3 month follow-up, my surgeon told me that I had passed the mark where most post-surgery patients experience junctional kyphosis. That was exciting! Junctional kyphosis is still a risk, but much less so now (especially since my surgeon corrected my curve to less than 50% of the original curve - that's important to keep the instrumentation from putting too much stress on the spine). I also got out of my brace at that time.

Now - I am happy that I achieved some correction from the surgery and that my curvature should be stable in the future. I still struggle with the cosmetic aspect but I realize now I set my sights too high in that respect. I am unhappy with the pain - my headaches and low-back pain have returned... BUT this is probably related to my muscle condition. I lost alot of muscle tone after the surgery and I wore a back brace for the first three months which supported everything and now it's up to my muscles to do it it's own. So the jury is out on this one - I can let you know in another 3 months or so when I get in better shape. The other thing I struggle with is the prominence of the screws. A lot of people on the forum mentioned this and I knew I'd be able to feel the screws but I did not expect them to be so visible through (tight) clothes and for them to be so uncomfortable when I lie down, sit or when wearing a bra (the strap goes right across two of the most prominent screws). This last thing is probably my biggest worry post-surgery but my understanding is that if at 18 months it's still an issue, I can have revision surgery where they remove the screw heads. So I am trying to just let it go until then...

Really though, alot of things can still change. I'm only 5 months post op and for someone my age (40+) my understanding is it takes 18 months - 2 years to fully heal.

Long story short, I think I'm happy I had the surgery but the jury is still kind of out... One thing my significant other has pointed out though that I think is important. Even if I have regrets post surgery, I would have most certainly had regrets if I hadn't done it. (That's not meant to apply for everyone but it does for my personality.)
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I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 50 degrees and my scoliosis to about zero.
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Old 16th September 2014, 12:26 AM
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bara bara is offline
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Default Re: Are you happy with your operations

44 years post surgery and no complaints here.
Seriously - it's enabled me to do almost everything I have ever wanted to do.
|What more can you ask?
B
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58 years old, juvenile ideopathic scoliosis - thoracic curve with lumbar compensating curve. Fusion (T3/4? - L1) at age 14 with Harrington Rod after 3 years in Milwaukee brace, 1 year's bracing after, then rod removed 8 years after the initial surgery. Reviewed NOC, Oxford by Prof J Fairbank October 2010.
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Old 16th September 2014, 06:01 AM
Rod Stewart Rod Stewart is offline
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Default Re: Are you happy with your operations

Just wanted to say that my surgeon is from South Africa.....he did a fantastic job! He trained at Twin Cities Scoliosis center in Minneapolis, Minnesota where there are a few scoliosis specialists from South Africa.....Drs Transfeldt and Lonstein. They train scoliosis surgeons there.

Each case is so different. Age, general health, procedure, and surgical team play a very important part. The majority of us do well, but complications can happen.....Pain is traded after surgery. After we recover, we hope that we all heal up nicely without too many issues....

For scolis over the age of 40, full fusion is a 1-2 year recovery.

Be sure to let us know how it goes, and wondering if you are male or female and your age?

Ed
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  #7  
Old 16th September 2014, 04:06 PM
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bluestone bluestone is offline
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Default Re: Are you happy with your operations

On the whole I'm glad I had my surgery. I still have pain but I've learnt what makes it worse and try to not overdo things. My pain is all in the middle of my back where my hardware protrudes and some days it gets me down-the constant pressure that's there BUT this is better then what I had before. I was almost 45 and my fusion us long T2-L4, I also had 8 ribs (costoplasty) chopped into to get rid of my hump and it did-I have a lovely flat back

Its taken me 3 years to feel kind of normal again, to not feel so stiff. Before surgery my back felt as though it was going to collapse whereas now it feels strong-I can stand in queues without bring in awful pain. The main thing is that progression has been stopped so for that reason more than anything I'm glad I had the surgery.
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Thoracic 72 degrees, lumber 30 degrees-fused aged 44, T2-L4, posterior fusion with costoplasty (8 ribs were chopped) on 3/11/10 under the care of Mr Ahmed at North Staffs Hospital. Now nice and straight
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  #8  
Old 17th September 2014, 02:24 PM
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Default Re: Are you happy with your operations

39 when I had my op

100 degree curve (Schueremann's)

12 hours in surgery, 2 hours in recovery (couldn't stabilize me), 4 days in intensive care, bowels stopped working, left lung collapsed right lung could only produce 15% oxygen, reventilated

Out after 4 weeks, 3 days later rushed back in had an operation on my stomach, blood results all over the place, spent 2 weeks in hospital

7 days later rushed back in as I had lost around a third of my blood, needed an emergency 8 hour blood transfusion, 2 weeks again in hospital

Lots of things went on of which I have perhaps forgotten, back to work after 3 months of leaving hospital for the last time

I have junctional kyphosis at the top of the fusion and the rods and screws did not take either at the top of the fusion

On the waiting list for salvage surgery, could be a cut and trim of rods best case, worse case need another rod putting in that will probably go into my neck

After all that I don't regret having the surgery at all, to me its all part of lifes rich tapestry, some have no problems post op I'm just of the unlucky ones who had a few problems

fused from T1 to L2 and I can feel and hear my rods most days (I tend to squeak, click and generally make noises I never had pre surgery)

Welcome to the site

Mark
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  #9  
Old 18th September 2014, 09:01 AM
bokwagter bokwagter is offline
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Default Re: Are you happy with your operations

Ahh I am glad to hear for most parts, your surgeries went well!

Ed im a 32 year old male. With a 86 kyphotic curve and no visible scoliosis.And have hyperlordosis in my lower back.Going to see a spinal deformity specialist on the 3rd October. Hope he can give me some good advice...

Cheers guys.
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