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  #1  
Old 30th August 2014, 03:34 PM
bokwagter bokwagter is offline
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Default Seeking hope

Hey guys. I am new here. Well my story is that I have kyphosis and my orthopedic surgeon advised me not to have surgery. Because he says it is for cosmetic reasons and not for physical pain. But my physical pain isnt that bad. My mntal pain is much worse and that makes me so depressed and not feeling good about myself. It has come to such a point where I dont feel good anough about myself. I don't feel good enough for my wife and feel she can do better than a hideous person.
Can someone tell me who had a kyphosis surgery if it was a good choice! And how lomg did it take to heal properly.

T1-12=86
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  #2  
Old 1st September 2014, 08:31 AM
Angeceilien Angeceilien is offline
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Default Re: Seeking hope

Hi,

I'm sorry ur feeling like this 86 is surgical range if its progressing. I can talk from experience with the cosmetic side. Have u ever seen thin beautiful women complain that they r fat and ugly? It is because I they focus so much bon their flaws they don't see themselves as a whole.

Yes the cosmetic benefit of surgery is good. However even as a female thr cosmetics alone arenot work the risk , the pain or the after math of the surgery.

I would seek a second opinion since the curve us quite large and I'm surprised u dont have pain..

Ange
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  #3  
Old 2nd September 2014, 06:43 PM
KMaxwell KMaxwell is offline
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Default Re: Seeking hope

Quote:
Originally Posted by bokwagter View Post
Hey guys. I am new here. Well my story is that I have kyphosis and my orthopedic surgeon advised me not to have surgery. Because he says it is for cosmetic reasons and not for physical pain. But my physical pain isnt that bad. My mntal pain is much worse and that makes me so depressed and not feeling good about myself. It has come to such a point where I dont feel good anough about myself. I don't feel good enough for my wife and feel she can do better than a hideous person.
Can someone tell me who had a kyphosis surgery if it was a good choice! And how lomg did it take to heal properly.

T1-12=86

Hello and welcome to the forum!

I was advised by a regular orthopedic surgeon not to have surgery, but then I researched the srs.org website for a spine-deformity surgeon in my area and went in for a more 'informed' consult (since many regular orthopedic and neuro surgeons don't truly understand scoliosis, kyphosis, etc.) The first specialist I saw recommended surgery because of my degree of curvature (80) and the possibility of the curve progressing as I got older. I then got a second opinion from another specialist who recommended against surgery as he felt my curve was 'stable' and would not get worse as I aged.

Long story short: 1. Most othopedic and neuro surgeons treat spines but don't specialize in spine deformities and may not be able to give you a really informed opinion. 2. You can also get different opinions from different spine-deformity specialists as well - a lot depends on their background, years of experience, etc.

For me it then came down to doing lots of research and spending almost a year deciding if the risks associated with surgery were worth the possible benefits I might gain. Scheuermann's isn't pretty but neither is junctional kyphosis, flatback syndrome, or the other possible complications from having the surgery.

I wouldn't recommend surgery just for the cosmetic aspect - I TOTALLY understand the mental anguish that comes with how you feel about the curvature but the surgery is not a sure fix. I had the surgery for an 80 degree curve and while I had a fair amount of pain prior to surgery, the cosmetic piece was still a big reason I had it done. Although my surgeon was able to straighten the lower part of my curve, he wasn't able to do much with the upper spine - my neck still sticks out front and I have mild kyphosis in my upper spine. So basically my spine looks somewhat better than before but still not the 'normal' I always dreamed of... plus now I have screws that are visible under my skin.

Also, many surgeons now focus more on correcting your curve to a safe degree versus a 'normal' degree. 20-40 degrees is the normal 'straight spine' range but my surgeon wouldn't correct me past 50 degrees because of the increased risk of junctional kyphosis. That can be disappointing to many people who dream of a completely straight spine (me included).

Ange is right that someone with your degree of curvature would normally have pain, but it's not a sure thing - my dad also has Scheuermanns at about 80-90 degrees and it never caused him pain in his younger years.


Surgery may be the right option for you - I would make sure you get a couple of opinions from surgeons who specialize in kyphosis/scoliosis surgery first. Then please keep in mind the surgery isn't a magic pill but a huge surgery that can create problems even as if fixes others.


I wish the best for you in your journey - it's not an easy one!
Kay
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I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 50 degrees and my scoliosis to about zero.
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Old 3rd September 2014, 01:17 PM
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mistakendrop mistakendrop is offline
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Default Re: Seeking hope

I had the surgery for kyphosis and I regret it. I am in so much pain now I wish I could go back and not get it done. I know the curve sucks but I would rather have the curve and be able to work then to be how I am now.
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  #5  
Old 4th September 2014, 09:01 AM
Angeceilien Angeceilien is offline
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Default Re: Seeking hope

Hi,

Theres has been a number of posts with comestic concerns lately. There is the progression side if u have a large curve as well as current or future pain.

I woukd be very worried about a smaller curve for cosmetics because as mistakendrop experienced the surgery sometimes can have quite nasty side effects long term but there is also the flip side where it can make ur life better.

I found thr decision to be a tough one even with a largr curve and pain.

Ange
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  #6  
Old 4th September 2014, 07:50 PM
KMaxwell KMaxwell is offline
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Default Re: Seeking hope

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Originally Posted by mistakendrop View Post
I had the surgery for kyphosis and I regret it. I am in so much pain now I wish I could go back and not get it done. I know the curve sucks but I would rather have the curve and be able to work then to be how I am now.
Sorry to hear you are still in so much pain, Matthias. Has exercise helped at all? I read so many posts from folks here saying how essential exercise is post-surgery so I would hope that would help you out some.

I'm glad you've posted about the pain making surgery not worth it. It's hard to read about a negative outcome (and a bit scary for me since you and I had similar pre-op curves) but it's important for everyone to be aware it can happen. Many people have positive outcomes but not everyone. I remember reading in your previous posts that you're happy with the cosmetic outcome - your post on this thread though illustrates the point that what's more important post surgery is how we feel physically, now just how we look. That's an important thing for all pre-surgery folks to consider (though that's hard to do when all you can 'see' is the curves...).


I hope your pain improves. Take care-
Kay
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I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 50 degrees and my scoliosis to about zero.
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Old 8th September 2014, 04:04 AM
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mistakendrop mistakendrop is offline
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Default Re: Seeking hope

I should probably go back to physical therapy because it has been a while. Yes my appearance is pretty much perfect now , but the pain caused me to lose my job because I cannot stand very long without everything aching really bad. When I lay down my back always pops in the middle like its trying to go back in to place or something. I know a lot of people have success with this surgery but people need to be aware that they may be worse off.
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  #8  
Old 10th September 2014, 08:13 AM
bokwagter bokwagter is offline
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Default Re: Seeking hope

Sorry o hear about your job loss!! So Mistakendrop you wont advice anybody tp go trough with the operation! What sort of occupation are you in? I am a teacher and stand on my feet a lot. But my back pain feels better when I stand as suppose to sitting.
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  #9  
Old 10th September 2014, 12:55 PM
Angeceilien Angeceilien is offline
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Default Re: Seeking hope

My advice to anyone would be to really consider hard about the surgery. When the curve is large and approaching levels which coukd severly harm your health I think the surgery is a wonderful chance to improve ur life. Especially when there is alot of pain.

However when making the decision u must be aware of the consqences which may be severe.

I think any self image issues should be addressed prior to surgery no matter what the curve because it actually isn't directly related to the curve and the cosmetic result may not be satisfactory or even if it gives beautiful correction often what will occur is the focus may shift to other areas which may lower self esteem.

Ange
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  #10  
Old 12th September 2014, 08:14 AM
bokwagter bokwagter is offline
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Default Re: Seeking hope

Thx for the advise Ange! You are definatelu right to sort out yout selg image first before considering anything! My self image problem is only my back! Constantly walkong past a mirrpr just to check if your back looks fine...
How bad is your curve? And would you consider the operarion?
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  #11  
Old 12th September 2014, 09:45 AM
Angeceilien Angeceilien is offline
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Default Re: Seeking hope

Hi,

I already did have the operation. A similar pre operative curve that is why I am surprised that you don't have pain. I would most definitely seek more opinions because a curve that larhe can cause problems down the line aswell if it progresses. My operation was very successful but there are drawbacks so it is worth alot of consideration before making the final decision.

It is risky

With good correction is can make a hudge physical impact however sometimes they are unable to correct the cosmetics but make the curve stable in the sense it does progress or cause problems which can be disheartening if that is the only benefit. The appearance didn't bother me before too much but the after effects were amazing.

It can take away pre operative pain but there is a risk of creating new permanent pain. This risk can affect your career. It did take away pain and fatigue but it did bring on new problems for me. I am able to continue working however some have not been so lucky. It does affect my performance.

Big curves do tend to progress more likely so that can lead to other health problems. Progression was a major conisderation in my decision.

Everyone has a different outcome. No case is the same. There are many considerations as you can see as well as the small but ever present risk of death or paralysis. I personally believe that cosmetics should be a very minor part of the decision and I am a relatively young female.

I must admit without the cosmetic changes cheering me up I would of struggled with recovery far more if I did not have such an amazing correction. The recovery is long and tough and it was the one thing that made me smile. It is very difficult to think about the health impacts when u r in that much pain.

I would recommend getting more opinions and really considering the decision which in the end only you can make.

Ange
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  #12  
Old 12th September 2014, 12:37 PM
burdle burdle is offline
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Default Re: Seeking hope

Am I reading this incorrectly- I think Bokwagter has an 86 degree Kyphosis and not Scoliosis?.

If it is an 86 scoliosis curve then indeed I think that surgery would be recommended . I am not sure what the threshold for kyphosis is, - maybe it is in the grey area when they want to 'wait and see'
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  #13  
Old 12th September 2014, 02:11 PM
Angeceilien Angeceilien is offline
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Default Re: Seeking hope

Hi

Kyphosis in adult is considered normal to 50-55degrees. Mild is up to 70 about. They usually start recommending surgery at around 75 degrees plus. Once it reaches 90-100 often the health starts to deteriorate.


Ange
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  #14  
Old 13th September 2014, 08:45 AM
bokwagter bokwagter is offline
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Default Re: Seeking hope

Yes budle it is a 86 kyphotic curve and then I have hyper lordosis of my lower back and that makes it look worse.
I am seeing a spinal deformity specialist on the 3 October!
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  #15  
Old 17th September 2014, 03:27 PM
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Default Re: Seeking hope

Hi

One bit of advice I would give is make sure you are seen by a spinal surgeon, general ortho's have no idea of the complexities of spinal surgery

We have a thread in the general forum listing surgeons in the UK, Ireland and the US, where abouts in the world are you

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