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  #1  
Old 31st May 2014, 08:37 PM
Angeceilien Angeceilien is offline
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Default cold weather

Hi, does anyone else feel worse in cold weather? The minute winter really hit it was like earlier in recover type pain.

Ange
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  #2  
Old 31st May 2014, 08:49 PM
Mari42 Mari42 is offline
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Default Re: cold weather

I've heard of it, but I haven't experienced it myself, yet. I'm learning that I experience different things at different times in recovery.
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29 years old, diagnosed with AIS at age 14. Now have a 58* thoracic curve, a 37* lumbar curve, and a 20* high thoracic compensatory curve. Due for surgery at the Baylor Scoliosis Center in September 2013.
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  #3  
Old 31st May 2014, 09:06 PM
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JayMoe JayMoe is offline
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Default Re: cold weather

Well pre surgery i sure felt worse with tight muscles etc and as its coming to being the summer here in the UK im feeling okay and but i still have post op pains. but i think it is common for people to feel worse when its cold and damp though.
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Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
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  #4  
Old 31st May 2014, 09:17 PM
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GillyG GillyG is offline
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Default Re: cold weather

Cold, damp weather definitely makes me feel worse.
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  #5  
Old 31st May 2014, 11:40 PM
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bluestone bluestone is offline
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Default Re: cold weather

I'm definately worse in the cold weather too. Since my surgery I absolutely hate being cold, I hate how my middle back goes all weird and tries to 'shiver' when I'm cold ugh
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Thoracic 72 degrees, lumber 30 degrees-fused aged 44, T2-L4, posterior fusion with costoplasty (8 ribs were chopped) on 3/11/10 under the care of Mr Ahmed at North Staffs Hospital. Now nice and straight
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  #6  
Old 31st May 2014, 11:52 PM
Ellenlouise Ellenlouise is offline
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Default Re: cold weather

Hiya.
I haven't had an op I wear a brace but yes y back hurts a lot more in cold weather of rain, what I do is get. Hot water bottle or something warm and put it on my back and lie down.
Hope this helps,
Ellen x
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  #7  
Old 1st June 2014, 07:15 AM
Angeceilien Angeceilien is offline
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Default Re: cold weather

Hi,

Thanks, at home I use alot of heating things like hot water bottles and electric blankets. The problem is when I'm not home. I just wrote a 4 hour very complicated final exam im cold hard chairs in a cold hall. About half an hour in the spasm started and I tried to focus but it kinda took over.

I wasn't sure if I should leave because if it eased up on the way to the doctor I wouldn't have any proof of why I walked out. I'm having nightmares about how painful it was and how I was struggling to write. I also think maybe I've been putting too much strain on. Im not sure whether I should maybe try and get a doctors note if there is a possibility of a rewrite.

It feels like such an excuse though...but its really affecting me...


I don't know what to do.

Ange
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  #8  
Old 3rd June 2014, 09:37 PM
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titch titch is offline
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Default Re: cold weather

I would definitely get things in place to try to get a re-sit - if you've done ok, then no problem, but it may be that you don't even need to do a re-sit, but can be re-graded based on your performance in other exams and / or coursework. It's *not* an excuse - a 4 hour exam is always going to be taxing, but to try to do it when you're not that far out from a major spinal surgery is hard. I'd have no compunction at all about requesting a re-sit if my back or my joints interrupted my exam sufficiently on any of the courses I've done.
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Diagnosed at 15 with 50° curve, but probably juvenile IS. Fused in kyphosis (by non-specialised ortho) with a/p surgery T10-L2 @ 21, posterior only revision surgery to correct kyphosis @ 29. Now 38 with further revision surgery and extension of fusion to sacrum required to correct residual kyphosis, restore lordosis and address spinal stenosis.
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  #9  
Old 3rd June 2014, 11:14 PM
Angeceilien Angeceilien is offline
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Default Re: cold weather

Thank you, Titch. I'm going to speak to them and I really hope they understand the situation. I've really had a bad week...4x4hours exams within 5days in freezing weather. I've been able to semi manage the rest of the term with some difficulty-but manageable but the strain of this week was too much.

Thank you again

Ange
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  #10  
Old 3rd June 2014, 11:51 PM
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tonibunny tonibunny is offline
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Default Re: cold weather

Yes, do it Ange. It really hasn't been long since you had surgery, and cold exam halls coupled with having to sit hunched over a desk for so long is going to be tough on anyone with a fusion. Good luck!
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #11  
Old 4th June 2014, 12:30 PM
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Default Re: cold weather

Quote:
Originally Posted by Angeceilien View Post
Hi, does anyone else feel worse in cold weather? The minute winter really hit it was like earlier in recover type pain.

Ange
Hi Ange

I used to say I could feel the cold weather deep in my bones, now its deep in my rods

Joking aside I do feel the cold more than I did before surgery, just got back from an holiday in Turkey and everything felt just right the heat really did help with the pain
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  #12  
Old 5th June 2014, 01:37 AM
Rod Stewart Rod Stewart is offline
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Default Re: cold weather

Quote:
Originally Posted by Angeceilien View Post
Hi, does anyone else feel worse in cold weather?
Yes. I’m going to have to grow some wings so I can fly south next winter.....

My “bear traps” or thoracic gripping seem to happen upon approaching winter storms. Pressure related along with the cold.....

http://en.wikipedia.org/wiki/Baroreceptor

Ed
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  #13  
Old 5th June 2014, 07:33 AM
Angeceilien Angeceilien is offline
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Default Re: cold weather

Hi,

When I wrote the last one it started snowing on the mountain and we were in a huge concrete hall with no heat. It was during the day so i managed to get to the nurse afterwards but she couldn't do anything except tell mee to go to my gp for a note and because my one arm was shaking to consider a neurosurgeon and reconisder my career choice.

I was trying to explain that I'm almost sure its a muscle spasm. I made an appointment with the gp but it took 4 hours to get appointment so I rested and warmed up at home and felt tons better. When the gp checked my back she said there is still a nasty muscle spasm but at that point it was feeling a million times better

So I got muscle relaxers and a note.



The go said because my back is abnormal I will always be prone to muscle spasms. Im scared of on of the nasty ones hitting while I'm driving.


Thanks

Ange
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  #14  
Old 5th June 2014, 07:36 AM
Angeceilien Angeceilien is offline
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Default Re: cold weather

Quote:
Originally Posted by Rod Stewart View Post
Yes. I’m going to have to grow some wings so I can fly south next winter.....

My “bear traps” or thoracic gripping seem to happen upon approaching winter storms. Pressure related along with the cold.....

http://en.wikipedia.org/wiki/Baroreceptor

Ed
Bear traps sounds painful
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  #15  
Old 5th June 2014, 03:55 PM
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cork_lass cork_lass is offline
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Default Re: cold weather

I hate the cold damp weather we have here in Ireland. I have Rheumatoid arthritis and it really flares up in bad weather, my joints swell up more and I have a lot more soreness and pain.
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