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  #16  
Old 30th April 2014, 05:05 PM
burdle burdle is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Hi,

Hope all goes well x
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  #17  
Old 30th April 2014, 07:05 PM
Teri2809 Teri2809 is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Very best wishes to you. Remember positivity is key x
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  #18  
Old 1st May 2014, 06:13 AM
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Default Re: The all official 'Good luck JayMoe' thread!

Well I'm off to be admitted now. Will be back soon
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
www.facebook.com/jamin.morris1-
https://twitter.com/Scoli_JayJay
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  #19  
Old 1st May 2014, 06:48 AM
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KaraNicole1992 KaraNicole1992 is offline
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Default Re: The all official 'Good luck JayMoe' thread!

good luck jay your a really brave young man
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  #20  
Old 1st May 2014, 01:23 PM
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JayMoe JayMoe is offline
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Default Re: The all official 'Good luck JayMoe' thread!

So I didn't have the op today as there was a bit of miss communication between the surgeons and me so I actually had a halo fitted today and will be having it done in a weeks time
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
www.facebook.com/jamin.morris1-
https://twitter.com/Scoli_JayJay
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  #21  
Old 1st May 2014, 01:38 PM
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tonibunny tonibunny is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Ooof! That must have been a bit of a shock Jay! How is the halo? I hope you're not too uncomfy. I assume you're able to sit upright during the day (halo gravity traction)?

Did you have the halo fitted under local or general? I had mine put on under general, but it was done directly after my anterior release surgery.
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #22  
Old 1st May 2014, 04:45 PM
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JayMoe JayMoe is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Yeah it was, but hey if its going to do me good i dont mind. Its pretty uncomfortable but I'll be able to cope with it even if I need drugs to help numb it down. Yes I am thankfully Able to sit up and i had it fitted under local which was painful!! But one highlight was I was pPhotographed in it for teaching etc so im now famous in St Gs :P
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
www.facebook.com/jamin.morris1-
https://twitter.com/Scoli_JayJay
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  #23  
Old 1st May 2014, 05:31 PM
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GillyG GillyG is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Blimey, that must have come as quite a shock Sounds like you're coping admirably though, do you have to stay in the hospital now until your op? (Sorry if that's a dumb question but I don't really know much about all this halo malarkey )
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  #24  
Old 1st May 2014, 05:37 PM
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JayMoe JayMoe is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Yeah I was really confussed about it all. Bit yes I'm in until my op now but the people on my ward are happy chappies(All male ward) and so are the nurses
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
www.facebook.com/jamin.morris1-
https://twitter.com/Scoli_JayJay
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  #25  
Old 1st May 2014, 07:15 PM
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KaraNicole1992 KaraNicole1992 is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Omg jay I'm so sorry
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  #26  
Old 1st May 2014, 08:37 PM
LucieT LucieT is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Good Luck Jay!!! Hoping everything goes really well for you xx
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I'm 44, I had a scoliosis: thoracic at 49 degrees, lumbar 47 with severe rib rotation. My surgery took place on 28th March 2014, I have 26 screws and 2 titanium rods.
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  #27  
Old 2nd May 2014, 08:28 AM
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GillyG GillyG is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Well, at least you're in there now and know it will definitely go ahead! And think of the amazing correction you should get at the end of it all
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  #28  
Old 2nd May 2014, 12:46 PM
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JayMoe JayMoe is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Yeah that's all I'm thankful of Gilly

And a little update.... Halo has been causing lots of pain, so they had to take a kilo off and now feel better. But I have been sick twice today and felt nausious this is most likely due to the morphine. But the good new is from snoozing all day I have no nausia any more and the pain has gone and ivhave been able to eat a fair amount of my lunch and I feel great from doing so
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
www.facebook.com/jamin.morris1-
https://twitter.com/Scoli_JayJay
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  #29  
Old 2nd May 2014, 12:50 PM
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tonibunny tonibunny is offline
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Default Re: The all official 'Good luck JayMoe' thread!

Oh well done Jay I'm so glad you're feeling better!! Hope you've got some good books and stuff to keep you occupied? Have you got an iPad/tablet with Internet access? xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #30  
Old 2nd May 2014, 02:08 PM
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JayMoe JayMoe is offline
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Default Re: The all official 'Good luck JayMoe' thread!

I've got my kindle with a few books on it so that'll keep me occupied for a hit. And I don't right now but I might see if myparebts will pay for some but don't want to risk leaving my laptop while I'm asleep here
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
www.facebook.com/jamin.morris1-
https://twitter.com/Scoli_JayJay
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