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Old 3rd April 2014, 02:06 PM
Amy Dawson Amy Dawson is offline
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Smile SOS Clinics/Scoliogold Method - Do I, Don't I?

Hello everyone!

I am new to this support site, and have come here for, quite obviously, support!
I was diagnosed with idiopathic scoliosis when I was 18. It was a huge shock to me and was devastating for myself, and for family, as I'm sure you have all experienced!

I went to see Brad Williamson in Manchester (scoliosis surgeon and expert - chairman of the scoliosis society) and he offered me surgery - not as a MUST even though I have two curves over 50. S shaped. But as an option. I suffer from pain occasionally, and my physical appearance does get me down every so often - but not enough to make me want to have surgery as I know it is risky.

At the time I sort of buried my head in the sand, completed my A Levels, passed, went to University and I am coming to end of Uni now - it's been the best three years. I finish in June. I have done physio in the past and do exercises regularly to help with pain. However, now I am considering these SOS clinics - the scoliogold method, created by Erika Maud. I've heard so many mixed reviews and the cost is huge, that I am really unsure of what to do.

So I'm simply asking, has anyone had any experiences with these clinics - did it really help you? As I am 21 now, I've been told my curve has stopped growing, so does that mean this method is rather useless for my condition?

Thankyou so so much! Anything you have to say would be massively beneficial, as I feel so lost with my condition!
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  #2  
Old 3rd April 2014, 05:50 PM
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tonibunny tonibunny is offline
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Default Re: SOS Clinics/Scoliogold Method - Do I, Don't I?

Hi Amy, welcome to SSO

We have had various members who have tried this method over the years. If you do a search you should find more info. As with any specialised nonsurgical scoliosis treatment, I would want to ask what the medical qualifications of the person who devised the method are.

The Scoliogold Method is based on the Schroth Method, and there are various other physiotherapists in the UK who now offer this technique so there's more choice of where to go. There's a list of officially certified Schroth therapists at the top of the Nonsurgical forum. These sorts of methods can help improve pain and posture; if your curve is stable then you might well experience some cosmetic correction and would have little to lose trying it, except a lot of money of course.

Have you ever tried the Alexander Technique? This can also help you to improve pain and posture, and although it isnt scoliosis-specific we have members who find it a big help. It is quite easy to find AT practitioners and they aren't hugely expensive compared to the scoliosis-specific therapies.

Welcome again
Toni xx

PS I hope you don't mind, but I have removed your other thread as we don't allow duplicates, to save the forum from getting disorganised.
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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Old 3rd April 2014, 07:06 PM
Amy Dawson Amy Dawson is offline
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Default Re: SOS Clinics/Scoliogold Method - Do I, Don't I?

Dear Toni,

Thankyou so much for your help! That is extremely useful advice!

I will look into those other options before I spend so much money! The Alexander Technique I have heard of and intend on trying that out.

And no, I don't mind at all! I was trying to delete it myself actually haha, but I'm new to this

What do you do to monitor your curve, and/or help with pain/posture?

Thankyou for your reply again Toni,

Kind regards,

Amy
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Old 3rd April 2014, 07:15 PM
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tonibunny tonibunny is offline
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Default Re: SOS Clinics/Scoliogold Method - Do I, Don't I?

I had to have surgery myself, as I had a very progressive form of scoliosis since I was a baby. So, my spine is now fused from T1-L4 (that's all of my back apart from the vertebra at the bottom) and I have great posture from that I like to swim to keep my back strong, and I don't get much pain so that's not a problem.

Toni xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #5  
Old 3rd April 2014, 07:54 PM
Amy Dawson Amy Dawson is offline
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Default Re: SOS Clinics/Scoliogold Method - Do I, Don't I?

Dear Toni,

That's great news then! Yes, I find swimming helpful too - seems more relaxing than any other core strength training

I'm so glad pain is no problem, I hope you stay healthy and happy!

Best wishes,

Amy
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  #6  
Old 10th April 2014, 09:16 PM
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tiffany.m tiffany.m is offline
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Default Re: SOS Clinics/Scoliogold Method - Do I, Don't I?

I did work experience shadowing a spinal consultant in London and we spoke to their physiotherapy consultant who worked with all of the scoliosis and kyphosis patients specifically and she said regarding things like SOS and Scoliogold that you pay the money for the intensity not for a magic cure and any specialist physiotherapist like her can offer similar exercises based around Scroth and she sad there has been no x-ray evidence proving that physiotherapy has any anatomical effect on a large curve (over 35\40 range in skeletally mature(r) patients). It can improve posture and aesthetics with continued use but it's a very big commitment.

When was your last X-ray because even when your growth is complete, gravity can cause it to continue to progress.

I'm glad you have enjoyed university!

TIFF x
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I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).
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