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  #1  
Old 26th January 2014, 09:09 AM
orangebear4 orangebear4 is offline
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Default Good luck Centelleo and Becky Rosen

Just wanted to send good wishes to Centelleo and her mum Becky Rosen going into RNOH tomorrow for surgery. Daunting though it seems at the moment I am witness to the fact that it does get better, and you will soon be on the road to recovery. Thinking of you both over the next couple of weeks. x
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  #2  
Old 26th January 2014, 10:21 AM
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JayMoe JayMoe is online now
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Default Re: Good luck Centelleo and Becky Rosen

Hope it all goes well for you and that you both have a good recovery
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Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
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  #3  
Old 26th January 2014, 12:03 PM
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Default Re: Good luck Centelleo and Becky Rosen

Will be thinking of you guys, wishing Holly a comfortable speedy recovery, and Becky make sure u have some chill time too!!
Kerry xx
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34 year old, diagnosed @ 15 with 75* curve, progressed to double curve 110* and 60* by time of surgery.
2stage surgery under Mr Lehovsky @ Stanmore aged 32- Anterior 16th Jan 2013 and Posterior 22nd Jan 2013. Came home 30th Jan 2013. Fused t1-t12.
I am very thankful to Mr Lehovsky, Hanny registrar, Dr Inyaki and the rest of guys at RNOH Stanmore for taking such good care of me and giving me a chance to improve my life.
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  #4  
Old 26th January 2014, 01:10 PM
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Default Re: Good luck Centelleo and Becky Rosen

Ha ha, you beat me to it!! Massive good wishes coming form a very cold, windy and rainy Sheffield
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  #5  
Old 26th January 2014, 02:53 PM
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Becky Rosen Becky Rosen is offline
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Default Re: Good luck Centelleo and Becky Rosen

Thank you everyone for the good wishes. We are as prepared as we'll ever be, and really is down to all the good advice and support we have received from everyone here. So thank you for that too.

I'll try to keep you posted and up to date on our progress. If I can't get on-line, I have Kezpet's number and I'll text her an update.

Thanks again.
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  #6  
Old 26th January 2014, 03:06 PM
Sporty gal Sporty gal is offline
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Default Re: Good luck Centelleo and Becky Rosen

Would really love to hear how you get on my son is due to go to Stanmore next month he has congenital kyphosis and is being operated on by Mr Lehovsky , have had a few sleepless nights already Hope all goes well for your daughter .
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  #7  
Old 26th January 2014, 03:08 PM
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Default Re: Good luck Centelleo and Becky Rosen

Good luck, both of you! We're all here if you need us to keep you cheered up
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #8  
Old 26th January 2014, 04:02 PM
KMaxwell KMaxwell is offline
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Default Re: Good luck Centelleo and Becky Rosen

Best of luck to you, Holly! Becky, from your posts it seems that you have done a great job preparing your daughter for this day.

Just so you know, 27 is my lucky number and I'll bet it will be for you both as well.
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- Kay

I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 50 degrees and my scoliosis to about zero.
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  #9  
Old 26th January 2014, 08:05 PM
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Becky Rosen Becky Rosen is offline
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Default Re: Good luck Centelleo and Becky Rosen

Thank you everyone.
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  #10  
Old 27th January 2014, 04:49 PM
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cork_lass cork_lass is offline
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Default Re: Good luck Centelleo and Becky Rosen

Best of luck,
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  #11  
Old 27th January 2014, 09:24 PM
LizzleB LizzleB is offline
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Default Re: Good luck Centelleo and Becky Rosen

Good luck, I hope everything went well.
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  #12  
Old 28th January 2014, 04:05 PM
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Becky Rosen Becky Rosen is offline
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Default Re: Good luck Centelleo and Becky Rosen

Sitting on the ward, waiting for Centelleo to come out of surgery. As a parent, it is one of the most difficult things to do.

I've been knitting a scarf. It'll be 6 feet long by the time we finish here.
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  #13  
Old 28th January 2014, 04:06 PM
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tonibunny tonibunny is offline
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Default Re: Good luck Centelleo and Becky Rosen

Oooh, hope she's out soon
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #14  
Old 28th January 2014, 04:32 PM
KMaxwell KMaxwell is offline
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Default Re: Good luck Centelleo and Becky Rosen

Quote:
Originally Posted by Becky Rosen View Post
Sitting on the ward, waiting for Centelleo to come out of surgery. As a parent, it is one of the most difficult things to do.

I've been knitting a scarf. It'll be 6 feet long by the time we finish here.

LOL - it's good to keep busy though. I hope all is going well.
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- Kay

I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 50 degrees and my scoliosis to about zero.
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  #15  
Old 29th January 2014, 12:28 PM
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GillyG GillyG is offline
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Default Re: Good luck Centelleo and Becky Rosen

Quote:
Originally Posted by Becky Rosen View Post
Sitting on the ward, waiting for Centelleo to come out of surgery. As a parent, it is one of the most difficult things to do.

I've been knitting a scarf. It'll be 6 feet long by the time we finish here.
Proper Doctor Who job eh?

Seriously though, it must be hell waiting and not knowing how things are going Hope you get some good news soon
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