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  #1  
Old 8th January 2014, 05:48 PM
NatashaFaye1 NatashaFaye1 is offline
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Default Feel down that there is nothing that can be done about rib hump :-(

Hi, I posted last year to say how I went back to query my large rib hump after being 8 years post op and was told after having a CT scan that due to my rib hump being mostly spine nothing can be done apart from inserting a implant onto the other side of my back so both sides look the same which to me sounds even worse!
I know that my curve was over 150 degrees pre op but I am finding it really had to deal with that nothing can be done as I am so self concious of it and I feel uncomfy all the time because no matter what I wear nothing fits properly.
I would like to upload a pic if someone could tell me where to send it to?
Tonibunny has always been there to give me great advice and I was going to see the syrgeon you advised privately but did not book it after I was told nothing could be done as he may say the same?

xx
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Old 8th January 2014, 06:51 PM
LizzleB LizzleB is offline
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

Hi Natasha, I read on another thread that you can upload pictures by making an account on the website photobucket. Apparently you upload the pictures and once you have uploaded them you click on the picture and then a URL address should be at the side and then you just copy and paste the address to this forum. I think it also says how to upload pictures in the FAQ section on this site.
I am sorry that you are feeling down. I hope everything gets sorted out for you soon
Sending a hug
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Old 8th January 2014, 07:10 PM
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

Hi Natasha, Lizzie is correct (thanks for that helpful post Lizzie!).

I'm really sorry that they're not able to do much to help you it is so frustrating, but yes - if your spine still rotates into your ribcage then they can't flatten it with a costoplasty. In your position I would see Mr Tucker though, just in case he has any other suggestions.

Toni xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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Old 8th January 2014, 07:12 PM
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

We have a thread to explain how to upload pictures which can be found here:

http://www.scoliosis-support.org/showthread.php?t=14561
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  #5  
Old 8th January 2014, 11:41 PM
NatashaFaye1 NatashaFaye1 is offline
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

[IMG]http//i953.photobucket.com/albums/ae12/Natasha_Swindells/Mobile%20Uploads/DSC_1422_zps6e0d11ee.jpg[/IMG]

not sure If that link will work for a photo I have uploaded.

Yeah I think I will see mr tucker as my last hope, it is a lot of money to pay to be told poss the same thing but at least i would have tried everything.

xx
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Old 9th January 2014, 02:09 AM
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

The correct link to see your picture would be like this:



What I can see is that the position of your arm in that picture exacerbates the curve in your back. I'm sorry that I can't give any advice about scoliosis or surgeries but I hope you find some option soon.
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Old 9th January 2014, 11:12 AM
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

I think that looks like a significant rib hump and I find it hard to believe that nothing can be done to help you, although obviously I'm not a doctor and I don't have the expertise or the rest of your medical history to go by. I think it would be money well spent to see Mr Tucker since he seems to take on cases that others would baulk at. Good luck!
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Old 13th January 2014, 01:25 AM
AishaA AishaA is offline
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

Do not give up Natasha. My husband spent 3 years looking for a surgeon who would even consider trying to help him. I can not count the number of spine surgeons that said he was "beyond their skills" We finally found the severe spine center in St. Louis, MO and he goes in for surgery tomorrow morning God willing. Consider looking into centers specializing in severe spinal conditions. They have a lot more to offer if other doctors have turned you down. We will see in the next couple of days if they can give him good results. For us it is more about quality of life and not about looks, but we are a lot older and set in our life so of course we have different goals.
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Old 14th January 2014, 05:18 PM
Marie4james Marie4james is offline
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

I second the recommendation to see Mr tucker. Nobody would touch my spine because of my medical condition. After seeing Mr Tucker, he gave me a solid plan and hope. He performed my surgery which was a great success, despite being told it was a no go by several other Spinal surgeons. Good luck.
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Old 17th January 2014, 08:26 AM
NatashaFaye1 NatashaFaye1 is offline
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

thankyou for posting the pic for me and all your replies.

I am going to book in with him as my last hope and keep you updated, although the dr wilson mcdonald at nuffield was quite certain nothing could be done as the rib hump is spine and not rib.



Thankyou xx
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  #11  
Old 17th January 2014, 08:43 AM
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

The amount that my spine continued to rotate into my ribcage was the reason they couldn't get a better correction for me, so I understand how this can limit things I think it's a good idea to see Mr Tucker as it may be possible that he could do a costoplasty which would give a little cosmetic correction, but even then you'd probably have to be prepared for it to not be a massive difference. Good luck, we're all behind you and I really hope Mr T can help a little.
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #12  
Old 18th January 2014, 08:57 AM
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

Hi. Another member of the Mr Tucker fan club here! I thinks its always wise to get a second opinion and I know that Mr T relishes the more difficult cases. I also know that he will say if he cant help and not give you false hope. I really recommend you see him. Best of luck.
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Mum to Maddy aged 14. Maddy is a patient at Great Ormond Street Hospital and had a growth rod inserted in November 2007. In March 2011 the growth rod was removed because the curve became too strong. In May 2011 Maddy had anterior release, 2 weeks traction on a Stryker Frame and then spinal fusion.
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Old 18th January 2014, 11:29 AM
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

I've seen Mr Tucker in theatre (as a student, not a patient) and he does take on hugely complex cases - don't give up hope yet!
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I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).
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  #14  
Old 3rd February 2014, 10:52 PM
CelineBean CelineBean is offline
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

I have quite a significant rib hump as well- very similar to yours if not worse. I have never had surgery as I don't experience severe pain and was told that if I was to go through with the surgery that there was a chance that a.) they may not be able to reduce my rib hump and b.) I may experience chronic pain afterwards- I was about 12 at the time and this terrified me and my family and ultimately we decided against it. I am 26 now and getting married this summer so I really do understand the frustration of clothing fit and comfort overall. I feel now though that I wish I had gone through the surgery when I was 12 or so as I looked into it seriously last year once again, but since I plan to have children quite soon I was told that it would have to be one or the other.
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Old 6th May 2014, 09:20 PM
NatashaFaye1 NatashaFaye1 is offline
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Default Re: Feel down that there is nothing that can be done about rib hump :-(

Hi All

Thankyou for all the replies, I saw Mr Tucker privately last month at the Wellington Hospital.
He had a quick look at my back with me standing up and completely agreed with me that how he could understand how it was affecting my life in so many ways.
The consultation only lasted 15 mins as he wants to see me in clinic in Stanmore for further consultations.
He said he cannot promise me anything at the moment as it would be a high risk operation to do anything further including breaking my spine to pull it upwards (his words!)
and he would have to look at further CT scans etc to see if he could do anything.

I have since made a GP referral to see him in Stanmore which they are hoping for June/July time so a waiting game now but there is hope at last!

Thanks again for all your support xx
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