Scoliosis Support  

Go Back   Scoliosis Support > Scoliosis > Kyphosis, Lordosis and Flatback Room

Notices

Reply
 
Thread Tools Display Modes
  #31  
Old 24th May 2013, 10:18 AM
GillyG's Avatar
GillyG GillyG is offline
Admin & Da Police Force!
 
Join Date: Jan 1970
Location: Sheffield, UK
Posts: 16,043
Default Re: A new beginning

Things could have progressed since 2006, so it makes sense to work from the most up-to-date scans.
__________________
Me, a Mod? Nah ... I'll always be a rocker
Reply With Quote
  #32  
Old 24th May 2013, 10:52 AM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

Yeah, you're right. Time flies, it's already 7 years ago..
Reply With Quote
  #33  
Old 28th May 2013, 02:48 PM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

Things are in motion. My GP's request for x-rays ended up in the right place. I've got an x-ray appointment on June 5. Can't help but getting a bit excited!
Reply With Quote
  #34  
Old 29th May 2013, 03:36 AM
daikori daikori is offline
Junior Member
 
Join Date: Mar 2013
Posts: 4
Default Re: A new beginning

hi tor,

im curious about your history and would be glad if you could share your past with me. what were your pain levels like in your late 20's/late 30's? im 28 and currently battling with pain due to kyphosis, im managing to keep it at bay and at the moment it isnt really impacting my life if i stick with my strict stretching and weight training/physio schedule. what im worried about is what will happen when i get closer to your age. ive been told that my curvature shouldnt increase if i take care of myself, but ive been lied to many times by doctors/physios/chiros in regards to my condition so ive found the best way to get accurate information is to discuss my condition with people who share the same journey.

were you active in your younger years? did you have to model your lifestyle around taking care of your back?
Reply With Quote
  #35  
Old 29th May 2013, 10:05 AM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

Hi daikori!

Actually, it's only during the last 7-9 years that pain has become problematic. Before this, up until I was 36-38, I had only limited problems related to my back. I don't know for sure, but I imagine that a very active lifestyle contributed to this. I've been doing rock climbing/bouldering, mountaineering, off-road cycling, skiing (both cross-country and downhill). Norway isn't terribly interesting unless you like being outdoors.

Then, 5-6 years ago, I started working on my PhD degree and this naturally involved quite a bit of sitting/reading. I started getting more and more pain. I would get pain in my lower back and hips at the 4-6 level (1-10 scale.) The natural reaction to pain is to slow down, sit still, be easy. The pain escalated and I felt totally lost. I could feel depression sneaking up on me and to be honest it was a very hard period.

Sitting down, being passive is not good. My experience is that the opposite works much better. For the last couple of years I've become better at fighting this tendency. 2-3 times a week I practice with RedCord (check out their website at http://www.redcord.com, it's fairly cool.) These exercises are brilliant for body core musculature. Quite recently, I've started sailing (fairly big yachts) and I believe these types of activities contributes to keep a back healthy. Of course, I avoid the very heavy lifting (the sails can weight 60-70 kg) and bending with my back - I try to "stiffen my upper body" and use my knees and legs more. You know, our spine is made for movement. The moment you stop moving the back is in a unnatural situation. And it will complain.

Part of the motivation for the training and exercises is to reduce pain-levels in the day-to-day life and simply take care of my body, but I'm also very conscious that the extra strength I'm building now will become beneficial during recovery after surgery (which I _really_want.) Like you, I'm worried that my curve will progress. I'm probably at the 90-100 degree level now. I don't want to end up in a total mess when I reach my 70-ties and 80-ties.
Reply With Quote
  #36  
Old 29th May 2013, 02:48 PM
daikori daikori is offline
Junior Member
 
Join Date: Mar 2013
Posts: 4
Default Re: A new beginning

thanks tor, good luck with your request for surgery. you seem like a really decent bloke and i hope everything works out for you mate.
Reply With Quote
  #37  
Old 30th May 2013, 02:49 PM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

Thanks! And good luck to you too.
Reply With Quote
  #38  
Old 28th August 2013, 06:52 PM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

Finally something is happening. Got the confirmation from the hospital today that a orthopedic surgeon will meet me on October 28. It's a long wait but hopefully he'll be able to help me.
Reply With Quote
  #39  
Old 28th August 2013, 06:59 PM
Angeceilien Angeceilien is offline
Senior Member
 
Join Date: Apr 2013
Posts: 805
Default Re: A new beginning

Quote:
Originally Posted by toref View Post
Finally something is happening. Got the confirmation from the hospital today that a orthopedic surgeon will meet me on October 28. It's a long wait but hopefully he'll be able to help me.
goodluck had my kyphoscoliosis corrected 6 weeks ago. Painful but worth it even as an adult.

Any questions welcome to pm

Ange
Reply With Quote
  #40  
Old 28th August 2013, 08:16 PM
KMaxwell KMaxwell is online now
Member
 
Join Date: May 2013
Location: Washington State
Posts: 324
Default Re: A new beginning

Quote:
Originally Posted by toref View Post
Finally something is happening. Got the confirmation from the hospital today that a orthopedic surgeon will meet me on October 28. It's a long wait but hopefully he'll be able to help me.

Progress! October 28 will be here before you know it. I have my fingers crossed for you.

If it helps, some folks here advised me to read up on the surgery myself beforehand so I would be informed, plus to write down a list of questions I wanted to ask to take with me as it's easy to forget what you want to ask once you're there.
__________________
- Kay

I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 47 degrees and my scoliosis to about zero!
Reply With Quote
  #41  
Old 28th August 2013, 08:39 PM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

Quote:
Originally Posted by Angeceilien View Post
goodluck had my kyphoscoliosis corrected 6 weeks ago. Painful but worth it even as an adult.

Any questions welcome to pm

Ange
Thanks Ange! I'm happy you're around here - your successful surgery I think is an inspiration to all. I tried to search, but couldn't find any mention of your age..? From your photos I assume you're a lot younger than me..
Reply With Quote
  #42  
Old 28th August 2013, 08:50 PM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

Quote:
Originally Posted by KMaxwell View Post
Progress! October 28 will be here before you know it. I have my fingers crossed for you.

If it helps, some folks here advised me to read up on the surgery myself beforehand so I would be informed, plus to write down a list of questions I wanted to ask to take with me as it's easy to forget what you want to ask once you're there.
Thank you! Good advice! I'm filled with all kinds of emotions, but at the same time I know it's too early to raise expectations. I've watched all relevant YouTube videos I could find, read a lot of posts here and even some scientific papers, but I guess there is still this terrifying aspect that it might be my own body this time. I've been writing a diary for quite many years now. I've used it to write down a summary of my story that I'm planning to tell the doctor. It's strange how we can forget (or suppress?) pain as time goes by. However, I think it's useful to keep also these difficult memories alive at least until the decision of surgery is made.
Reply With Quote
  #43  
Old 28th August 2013, 09:44 PM
Angeceilien Angeceilien is offline
Senior Member
 
Join Date: Apr 2013
Posts: 805
Default Re: A new beginning

Quote:
Originally Posted by toref View Post
Thanks Ange! I'm happy you're around here - your successful surgery I think is an inspiration to all. I tried to search, but couldn't find any mention of your age..? From your photos I assume you're a lot younger than me..
I am 25- im quite chuffed the nurses wrote 15 on my file by accident and wouldn't believe me when I told them it was actually a 2..

diagnosed with scoliosis in feb 2weeks later kyphosis. Immediately surgery was offered-almost fainted when I saw the screws.....and I am not squeamish at all-when it comes to other people.

Im still trying to piece it together. .. like my surgeon asked me at the consultation if I hate standing in queues. ...I was like yea who doesn't. ..took me a day or 2 to realise that its not actually normal for ur neck and shoulders to burn after 5minutes of standing....

So writing stuff down is a good idea....
Also be verbal...like when I woke up my right lung felt dead and I was using left...I only managed to point to right side and say sore....and the nurse just said it was cz they did a lot of work though there. I should have been asking for oxygen...the monitor was going off buy they thought it was glitching. Also be vocal about pain ...I ended up with really bad control prob cz I didn't moan enough.

I really regret not taking more pre op photos. I felt hideous but the change is so amazing its a pity didnt document it it better.

I rem the pre op feeling...the waiting...the day b4 denial hit...it came and went so fast.

Also enjoy stuff now that u won't be able to for a while post op...

Ange
Reply With Quote
  #44  
Old 29th August 2013, 08:53 PM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

What an amazing journey you're having! I can't wait to start mine.
Reply With Quote
  #45  
Old 22nd December 2013, 12:50 PM
toref toref is offline
Member
 
Join Date: Apr 2013
Location: Norway
Posts: 54
Default Re: A new beginning

October 28 was a kick in the face to which I'm yet to recover from. I've wanted to describe it, to share it, here, with you, but it was just too difficult. Now, I think I am ready.

Just prior to the meeting with the specialist I had new x-rays taken. I don't know exactly why, but lately my knees have started acting up so during the x-ray session I had trouble standing - my knees were so painful. It didn't really help that the guys doing the pictures struggled to fit my spine onto the photographic plate. I understood that they didn't really know how to deal with such a curved spine. It took them more than 20 minutes to get the x-rays done.

Then, as I registered with the receptionist she told me that the specialist wasn't going to participate in the consultation today, I was going to have a meeting with the head physician of the unit - the same guy that had previously cancelled my consultation on Aug 15 and messed up my whole summer holiday. Ohh, this is really going great ...

Anyway, after some waiting the consultation started. I got a good impression of the head physician and he explained that the specialist couldn't see me because he was in some kind of quarantine. He would be able to join us by phone, though. He would also be able to see the x-rays simultaneously with us.

The head physician pulled up the x-rays on his monitor and I almost started crying. My spine looked like a massive snake. He had made annotations to the image to determine my Cobbs angle. He said it was now 103 degrees. He then called up the specialist via phone and put on the loudspeaker. I could feel my whole body was in such a turmoil that it was difficult to speak. And it was like a conversation to which I was only listening to. I tried to explain the pain situation and the implications, but the words didn't come out right at all. The two doctors agreed that it was a very difficult case to do surgery on but the specialist wanted to see MRI pictures to determine the status of the surrounding elements of the spine. They told me I would get an appointment for MRI and then a longer consultation with both of the doctors present.

Yesterday I had the MRI done and the next appointment will be January 14. I don't know how I feel about it all anymore. I'm just confused, I guess. I certainly don't dare to hope.
Reply With Quote
Reply

Tags
kyphoscoliosis, scheuermanns

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT +1. The time now is 05:55 AM.


Powered by vBulletin® Version 3.7.1
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
(c) Scoliosis Support