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  #1  
Old 29th April 2012, 09:09 AM
SKB101 SKB101 is offline
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Smile Scoliosis discovery after car crash

Hi everyone,

I'm 21, female and I was in a car accident in October 2010 and prior to this had no problems with my back at all.

I was a passenger in the car and we were hit on the front passenger side so i took most of the impact, it was treated as a head on collision and the car was a write off. I was taken to hospital by ambulance as i had sever abdominal pain. Although i had a sore back (it didnt hurt as much as my abdomen at the time) it was put down to whiplash and i was not x-rayed. I began Osteopathy from November 2010 which did soothe the burning pains i was getting frequently and i was put on Diclofenic 3 times daily to help.

It really restricted what i could do for eg if i wanted to go clubbing on a Saturday night i ran the risk of being in agony by sunday/monday. If i was due to work Monday then i couldn't really chance being off, so everything had to be planned that i wouldn't affect my work.

January 2011 i was sent to a consultant by the insurance company from the crash to be reviewed. He said he felt after 6 months of physio i would have made a full recovery (wish he had been right!). I was then sent home, stopped the osteopathy and started physio instead which i found good at first but in the long run not much help at all.

In April 2011 (i'm still unsure of how i triggered this) my shoulders went into an agonising spasm. I saw my doctor who put me on diazepam (HORRIBLE!!!) and reffered me to the nuffield hospital. I was X-Rayed (which they never did the night of the crash - my doctor was not happy about this) and saw a consultant. We then found out i had Idiopathic Congenital Scoliosis (sorry if i've got that name slightly wrong, i hope you know what i mean). I weas told that i had developed the curve as a teenager but it would never have caused problems which is why i didn't know i had it. However in the crash a twisting force had been applied to my neck which it what was causing the pain now. I'm not 100% sure of the angles of the curve but i'm basicaly in an S shape.

He also reffered me to have physio which we told him so far had been unsuccessful. He recommended giving it some time and seeing how i go, he told me what to be careful of for triggering it etc etc. He said that my curve was very promanent but however was just borderline of surgery so we would see how i go.

In September 2011 my back went into spasm AGAIN which i think was done by pulling the filing cabinet open at work on an awqkward angle. I was put on dhydrocodiene which made me very sick, then diasepan again for 4 days and then tramadole. From what i can gather i pretty much slept for 2 weeks.

I am lucky that my work are so understanding about what happened as it worrys me that with too much time off i would run the risk of losing my job.

Unfortunately in March 2012 i thought i'd try to defeat my problem and give zumba a go (i had joined weight watchers in November 2011 and have now lost a stone and half ) i had to give up the gym as i couldn't do anything there without being in agony the next day since the crash. The zumba was a bad bad idea and i ended up back on diazepan.

I had to see another consultant in March also who actually made some sense. He was not happy at all with how my spine was progressing and wanted me to have more xrays done asap as it's now a year down the line and it's worse than ever and preventing me from doing lots of things which i find upsets me and hits me like a tonne of bricks. I am starting counselling within the next few weeks as i feel like i've turned into a very angry version of my former self. I have a back support which does help at work, but without it driving or walking alot im in much pain. Of course this does not look nice under your clothes...just as i've lost all this weight im back in baggy clothes because of it which saddens me .

A recent trip to my doctor saw her very confused as to why i've never had an MRI scan. So my mum is now trying to arrange this asap just to find out if there is anything to come up by that.

Very long story here, but i would just like to speak to some people who know what on earth i'm moaning about. I'm not coping to well on my own and theres only so much ear bashing my poor mum can listen to haha x
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  #2  
Old 29th April 2012, 09:19 AM
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tiffany.m tiffany.m is offline
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Default Re: Scoliosis discovery after car crash

Hey there

Sorry to hear about the circumstances that brought upon your discovery!

What you have (as it's diagnosed at the moment) is adolescent idiopathic scoliosis, which is what most of us have.

Well done on losing all that weight, by the way. I too lost a stone and a half last year, but pretty much gained all of it back I'm thinking of starting going to weightwatchers with my mum to lose it again. Anuyways, that's not important

When you say you have a back support, do you mean a brace and if so do you know what type or is it like a soft corset? And about being an angry person, I get told this and have recognised it in myself recently and I think it's just our way of dealing with things, but I completely understand and do have a good old moan about this aswell.

Hmm, so has you curve progressed then? I'm in the grey area and am basically borderline for surgery, so I can relate it's frustrating. And who's your consultant&what hospital are you at?

Sorry for asking so many questions!

Tiff x
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I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).
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Old 29th April 2012, 09:30 AM
SKB101 SKB101 is offline
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Default Re: Scoliosis discovery after car crash

Quote:
Originally Posted by tiffany.m View Post
Hey there

Sorry to hear about the circumstances that brought upon your discovery!

What you have (as it's diagnosed at the moment) is adolescent idiopathic scoliosis, which is what most of us have.

Well done on losing all that weight, by the way. I too lost a stone and a half last year, but pretty much gained all of it back I'm thinking of starting going to weightwatchers with my mum to lose it again. Anuyways, that's not important

When you say you have a back support, do you mean a brace and if so do you know what type or is it like a soft corset? And about being an angry person, I get told this and have recognised it in myself recently and I think it's just our way of dealing with things, but I completely understand and do have a good old moan about this aswell.

Hmm, so has you curve progressed then? I'm in the grey area and am basically borderline for surgery, so I can relate it's frustrating. And who's your consultant&what hospital are you at?

Sorry for asking so many questions!

Tiff x

Hey i had just Inboxed you cos when i read your info it reminded me of my problem too erm regarding the back support it's more like a fabric thing recommended to me by the osteopath. Like a velcro thing i wrap round my lower back and do up?

I have seen 2 different consultants because i have an ongoing injuries claim from the accident one was recommended by them cant remember his name for the life of me but i usually see a gentleman at Nuffield hospital in Brentwood? thats who i will be seeing hopefully for t his MRI scan as i'm fortunate that we have private health so will hopefully get it done quicker.
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  #4  
Old 29th April 2012, 09:54 AM
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tiffany.m tiffany.m is offline
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Default Re: Scoliosis discovery after car crash

Hey, I've just replied (sorry for the essay!)

Ahh yeah, I've seen them in the pharmacy. And oh I know where that is, is he a specialist in spinal deformation/scoliosis? And ahh, I go to the RNOH and managed to get my MRI done quickly, which was lucky. Aside from the 4 months between each review I've not had to wait more than 2 months for anything so far.

Do you have any copies of your xrays?
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I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).
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Old 29th April 2012, 09:55 AM
SKB101 SKB101 is offline
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Default Re: Scoliosis discovery after car crash

Quote:
Originally Posted by tiffany.m View Post
Hey, I've just replied (sorry for the essay!)

Ahh yeah, I've seen them in the pharmacy. And oh I know where that is, is he a specialist in spinal deformation/scoliosis? And ahh, I go to the RNOH and managed to get my MRI done quickly, which was lucky. Aside from the 4 months between each review I've not had to wait more than 2 months for anything so far.

Do you have any copies of your xrays?

Yeah i do but they are from last April and i dont know how to post them on here or i would lol, how did you do yours xcx
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Old 29th April 2012, 09:58 AM
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tiffany.m tiffany.m is offline
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Default Re: Scoliosis discovery after car crash

Here's a link thatll explain it

http://www.scoliosis-support.org/showthread.php?t=14561 xx
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I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).
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Old 29th April 2012, 10:17 AM
SKB101 SKB101 is offline
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Default Re: Scoliosis discovery after car crash

ah brilliant thanks how do you write that little bit that comes up on every one of your comments?? x
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  #8  
Old 29th April 2012, 10:25 AM
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tiffany.m tiffany.m is offline
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Default Re: Scoliosis discovery after car crash

No worries and ahh that's my signature - I used to have a copy of my xray in it but then I saw this little guy and decided I liked him much better!

If you click on useful links up the top and then edit your signature xx
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I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).
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Old 29th April 2012, 10:31 AM
SKB101 SKB101 is offline
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Default Re: Scoliosis discovery after car crash

when i do my pic on tiny pic all the boxes that should have codes in are empty lol i dont think it likes me haha
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Old 29th April 2012, 10:34 AM
SKB101 SKB101 is offline
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Default Re: Scoliosis discovery after car crash

ooo think ive done it

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  #11  
Old 29th April 2012, 11:08 AM
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tiffany.m tiffany.m is offline
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Default Re: Scoliosis discovery after car crash

Is that your most recent? And hmm. I'm not sure if it's just me, but that doesn't look particularly 'curved' in the sense that it looks 'bent' or 'crooked' I think it's just cos it's a short, sharp curve.
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I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).
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Old 29th April 2012, 12:33 PM
SKB101 SKB101 is offline
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Default Re: Scoliosis discovery after car crash

yeah i know, obvs im not expert but he's called it severe...if you look at your x ray for egsample its alot more pronounced than that and a bigger curve so i would have assumed yours would be more sever? (i hope you dont mind me using that as an egsample but your photo is the only other one ive seen on here lol)

it doesnt look that bad to me when you look at my xray which i why i just dont understand where the pain is coming from. this is why that doctor wants an MRI done incase it's something more to do with tissue around the spine and muscle problems, maybe nerve problems like you mentioned?

It's much more painful now than 18th april 2011 when i had those scans done so we did wonder if the curve may have gotten worse. all this will hopefully be answered in te next month with new xrays and scans haha because it just doesn't make sense lol
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Old 29th April 2012, 06:07 PM
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Sandra2e Sandra2e is offline
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Default Re: Scoliosis discovery after car crash

HI there, so sorry to hear about your accident which brought on your scoliosis, it must be very upsetting for you and frustrating, for years you didn't suffer with and all of a sudden you have . Its hard and at your age now I can well understand how you are feeling.

I was in a road traffic accident in Jan '06 with my daughter Karen who was 8 at the time, it was the first time on way home from friends that I allowed Karen sit in the front with me, but to be honest, had she not been she would not be here today, as we were totally rear ended, boot ended up in the back seat.

From the moment of the accident Karen complained of back pain from the neck down, NEVER BEFORE DID SHE EVER SUFFER WITH BACK PAIN, the pain continued and eventually we saw an orthopaedic surgeon who diagnosed Karen with Scoliosis, same name as yours too long to type. Karen was too young then to understand but when I saw her x-rays I almost had a heart attack on the spot, I just couldn't believe. I think at that stage Karen had a 27' curve, within no time Karen had a S shape curve that you talk about, it progressed, karen did wear two body braces, the Boston brace for a year and then the Cheneau which she rarely wore, but to be honest FOR KAREN THEY DID NOT WORK, for lots of others they helped but not Karen.

Karen's curve continued, until Dec '09 she was 12 over 60' curve karen had her first Sinal Fusion surgery, insertion of titanium rods, she had a second surgery jun'11 age 14 as a section of the rod detached and went into a muscle.

Karen continued to be in pain, always on pain killers, even got epidurals, and Trigger pt injections which gave her more pain than relief, but again thats Karen its different for everyone.

As the pain continued and Karen was constantly unwell it was decided earlier this year to remove the rods, with the hope that the spine was FUSED and would not move.

so 3 weeks ago, Easter wk Karen had her 3rd major surgery to remove the rods.

I got copy of her x-rays post surgery last week, which I was very disappointed about as you will prob see from below it bounced straight back to an S shape curve, I am totally devastated for Karen 3 surgeries later, the prof is away so I am hoping to see him when he gets back.

My GP on seeing x-rays also disappointed and feels 2nd opinion in needed so I am working on that.

But also I have been trying to fight a legal battle also to say that the Road Traffic accident caused the Scoliosis, but no-one agrees, no surgeons at least, they say it had to be there and it would have come on her anyway, I just find this so hard to believe because before this accident Karen was perfect. But yes she was of the age where it comes on, but from day one PAIN ,3 months later curve ?????

Anyway, thats our story, so we wait to see what prof has to say but are under no illusions that Karen needs 4th surgery which she will hate now 15 since thursday to insert metal rods.

Karen's case is different to most, most would have been fine after the first surgery, why it didn't work for Karen I don't know, but am quite upset.

So I really do understand where you are coming from and how frustrated you must feel, its not easy, your just beginning your adult life and this is happening to you, so unfare, please god it won't progress to much and you won't need surgery.

Good that they caught it and they are keeping an eye on it.

I really wish you the best I hope your pain settles down, if you find right meds for you and I hope curve doesn't progress.

So Best Of Luck, and if I can help with any questions you might have don't be afraid to ask.

good luck

Sandra
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Sandra mother to Karen diagnosed with scoliosis at 8 yrs first Spinal Fusion Dec '09 12 yrs, Jun '11 section of rod detached from spine, had to be removed. April '12 had surgery to remove all metal work from her spine due to constant back pain Jan 13 Costoplasty to remove some prominent rib hump.
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  #14  
Old 29th April 2012, 08:33 PM
SKB101 SKB101 is offline
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Default Re: Scoliosis discovery after car crash

:o Sandra / Karen how terrible karen you poor thing i can't beleive it thats so awful!!! What a trip she's been through all of the doctors and hospitals and at her age aswell.

Please let me know how things progress i'll keep checking back to see how karen is getting on.

I am unsure if it is so in my case however i do believe car accidents can cause a scoliosis. There are too many cases similar to that of karens in young children where there were no problems before. I never suffered with any form of back pain prior to this and as you can see from the above x ray suddenly we see i look like that? how strange. New xrays will hopefully tell me more x
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Old 29th April 2012, 09:43 PM
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tonibunny tonibunny is offline
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Default Re: Scoliosis discovery after car crash

Hi there, welcome to SSO

I'm sorry to hear that you're having problems, but am glad that you have found us. As Tiffany has said, it is most likely that you have Adolescent Idiopathic Scoliosis, which is the most common type of scoliosis. This is where there is no obvious reason why the spine is curved - it just is. Congenital Scoliosis is different in that it is caused by malformations of the vertebrae that happened whilst in utero.

Since you have AIS I will move your post to the General Forum, as more people will see it there

Welcome again,

Toni xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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