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#1
12th July 2010, 10:14 PM
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Cannot get any response from registration
Hi Can someone please help? I have tried setting up my daughter on this site & have sent 2 emails & also posted back the authorisation form however when we log on as her she is unable to post any threads or edit her profile.
She is very keen to get on and talk to others her age (teenagers) & it is getting increasingly frustrating. 
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#2
12th July 2010, 11:14 PM
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Re: Cannot get any response from registration
Sorry to hear about this. I can't do anything myself - this is a problem one of the admins (tonibunny or titch) will need to deal with - but I just thought I would extend the reassuring hand, and let you know that someone has read your post and someone should be able to sort it shortly for you
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Diagnosed with adolescent idiopathic scoliosis on the 10th April 2007. Seen at the Child Development Centre at the Medway Maritime Hospital on 18th June – then referred to Mr Noordeen at the RNOH Stanmore. Seen by consultant on the 13th July – x-rays revealed 77o thoracolumbar curve and severe rotation. Surgery planned in 6 months – had surgery on 26th November 2007. Admitted for pre-op on 23rd – stayed in over the weekend. Curve then 90o, suffering from pain and reduced lung function. Moved from HDU to ward after 24hrs, then into isolation for suspected infection after 3 days. Symptoms turned out to be a bad reaction to antibiotics.
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#3
12th July 2010, 11:21 PM
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Re: Cannot get any response from registration
Hiya,
I'm really sorry about this - the emails and forms must have gone to Titch and she has been away recently so possibly needs to catch up with things, but I have gone in and given your daughter access now so she should be able to go ahead and post Apologies again, Toni xx
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35 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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#4
23rd July 2010, 07:57 PM
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Re: Cannot get any response from registration
I am having the worst time getting my registration activated. I have never received the activation email after registering. This very thing happened at the other scoliosis forum and I am at a loss as to why its happening. I am seriously hoping someone here will finalize my registration so I can participate on this forum.
UserName: Sapphoria email: I would really appreciate some help. Thank you.
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#5
23rd July 2010, 10:09 PM
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Re: Cannot get any response from registration
Hi Sapphoria, sorry about that! You should be able to log in now
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35 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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