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  #31  
Old 11th July 2014, 02:34 PM
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Default Re: My knee

I did what Gilly has suggested during my earlier recovery-recommended by Gilly
My surgeon like Gillys took it very seriously and that's when I had all the extra scans for infection etc.

I know how hard it is once your in that room to put it across how much your suffering, its easier I think if someone is with you.

I really hope your appt goes well, let us know how it went.
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  #32  
Old 11th July 2014, 03:21 PM
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Default Re: My knee

Hi Burdle

I hope the appointment goes well this afternoon, I have everything crossed for a good outcome

take care

mark
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  #33  
Old 14th July 2014, 10:59 AM
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Default Re: My knee

I had an ok appointment- which bearing in mind how I am feeling is not bad at all.


I was transferring from private to Mr T's NHS list.

I know he was leaving at end of August and I was referred by my GP in February but when I got there they had arranged for me to see a consultant physiotherapist. My hackles rose at the incompetence but actually it was a really good appointment, although the news is pretty bad.

They did xrays and she told me that my neck curve is now 49*!!! and my lumbar is now 39*!!! but she measured my thoracic one at 47*. Last time it was 55*- she said that it depends on how it is measured etc. ( which we all know) but you could apply the same statement to the other two measurements as well. Anyway what was clear was that my head is skewed off at an angle and my neck is very curved. But she said that the problem that I was going to have was that my lumbar is very straight in the sagittal plane. When I first saw the xray I thought that it was a front one and it was straight and I felt a surge of hope- but it was from the side. She said this would give me the most problems moving forward- can anyone advise me on the specifics???


The main point of the apt was that I had to move on to another surgeons list. She offered me Sean Molloy or a Mr Lee. Apparently if I wantedt to pursue the operation privately ( PLIF) with MR T then I have to stay with him but If I want to have it on the NHS then I have to move AND the new surgeon might disagree and not do it. She agreed it was a bit of an odd situation. What was worse was that if I choose NHS I have to be referred from scratch. So another 3 months to wait before I even get seen. Going back to Stanmore each time is a flog for me.

Even though this is a bit rubbish- the woman was so easy to talk to and she said things like - ' woman of our age' etc. and this just made me feel so safe- something I have not felt for a long long time. And as I now have much worsening curves I have to think very carefully about whether the PLIF might be too much a short term solution and could possible detrimentally affect any further treatment. She recommended Mr Molloy as she said he was very experienced with idiopathic scoliosis in adults rather than adult degenerative scoliosis but she did say he was very conservative about surgery. But she also said I would need it at some point and probably something pretty substantial. She has also ordered another mri but this time a lumbar only to take in my knee in case there is something affecting its not allowing me to walk properly.

I think I am in a bit of shock still - I met up with my two boys in London straight afterwards so could not really digest anything- we did not talk about it - I had not really mentioned my apt beforehand - just said I was in London ( where they both live now) and shall we go for a drink. Then they both came back for weekend and what with the world cup etc. I have not has a moment.

now I am at my desk and feel a bit fragile. Please can someone advise about the sagittal plane problems. And thanks Mark, Gilly and Sarah
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  #34  
Old 5th August 2014, 03:25 PM
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Default Re: My knee

At my last appointment they ordered another MRI.

I had a call from RNOH to book an apt and I said that I would prefer to have it done locally.

This is because since my knee injury I can only walk about 500 yards and also because after an MRI I cannot walk at all because of my lumbar spine and I live in Sussex.

The MRI is for Mr. Malloy (I haven't seen him yet but this is for my first appt. with him) Anyway the girl I spoke to from the imaging department said that this was fine and that the doctor (who I did see at the RNOH would have to agree) and if so would write to my GP to refer me locally.


I have heard nothing but then last week the doctor phoned me and said that not all MRI centres could do the special 'slices' that they needed and that I should have it done at Stanmore.

I n the end I just thought of how vulnerable I would be stuck in North London, having to get back to Sussex on train by myself and said that I would go locally and if the slices weren't good enough then I would have to have it done again.

I am a bit confused though because Mr Tucker ordered two MRIs for me in the past and both of them were done locally - he never even suggested that I had them done anywhere specific.

We have a big MRI centre in Sussex so it is all a bit weird- is this just a control thing by Mr Malloy do you think - surely they should have skilled people doing MRIs anyway?
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  #35  
Old 5th August 2014, 05:33 PM
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Default Re: My knee

I don't think it would be Mr Molloy being a control freak about this, as you say, any large-ish centre should have the necessary equipment to do the MRI satisfactorily and it would be the imaging specialist who decided what could and could not be achieved. Could you try phoning your local hospital to ask if they envisage any problems with it? There's no way you should have to trail to Stanmore when you have such limited mobility.
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  #36  
Old 6th August 2014, 07:44 AM
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Default Re: My knee

Quote:
Could you try phoning your local hospital to ask if they envisage any problems with it? There's no way you should have to trail to Stanmore when you have such limited mobility.
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I could phone but I have no more information about the slices. As I have had two full spine MRIs there before I can't ask if they can do a lumbar one as the answer will be 'yes'. I am intrigued as to what the slices will be - maybe it will be on the referral letter and then I can check with the hospital.
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