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  #16  
Old 1st July 2014, 09:46 AM
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Default Re: I need further surgery

Hi Kay

Thanks for the kind words

Take care

Mark
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  #17  
Old 2nd July 2014, 01:16 PM
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Default Re: I need further surgery

Well I made the call to my surgeons secretary and I'm on the list

She couldn't tell me when or how long I have to wait

Back on the rollercoaster folks

Thanks for all the support

Take care

Mark
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  #18  
Old 2nd July 2014, 06:53 PM
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cork_lass cork_lass is offline
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Default Re: I need further surgery

Well Mark you have taking the first brave step, well done. I do hope you won't be waiting too long. Sending you lots of love, XXX
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  #19  
Old 2nd July 2014, 09:39 PM
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Default Re: I need further surgery

Thinking of you darling bro, I hope you don't have to wait too long xx
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #20  
Old 4th July 2014, 12:40 AM
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Default Re: I need further surgery

Good for you Marky
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  #21  
Old 4th July 2014, 08:59 AM
Rod Stewart Rod Stewart is offline
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Default Re: I need further surgery

The rollercoaster...ohhh boy.

There are some great rollercoaster vids on you tube to pass the time, and much safer for the neck!

This one is a guaranteed neck wrecker......

http://www.youtube.com/watch?v=9hjHQ9aZT80

Hang in there

Ed
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  #22  
Old 4th July 2014, 03:26 PM
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JayMoe JayMoe is offline
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Default Re: I need further surgery

Great to hear Mark! Hope you manage to get a date soon
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Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
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  #23  
Old 4th July 2014, 06:39 PM
Rod Stewart Rod Stewart is offline
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Default Re: I need further surgery

Wow Jay, I hope you didn’t watch that video, your too early! He he

Jay: “Doc, I trashed my neck”
Doc: “What did you do?”
Jay: “I watched Ti-Ed’s rollercoaster video on You Tube”
Doc:” Jay, I didn’t release you for You Tube”

Ed
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T70 L70 double trouble
A/P T2-Pelvis BMP Jan 2008
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  #24  
Old 4th July 2014, 10:52 PM
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GillyG GillyG is offline
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Default Re: I need further surgery

Quote:
Originally Posted by Rod Stewart View Post
Jay: “Doc, I trashed my neck”
Doc: “What did you do?”
Jay: “I watched Ti-Ed’s rollercoaster video on You Tube”
Doc:” Jay, I didn’t release you for You Tube”
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  #25  
Old 4th July 2014, 10:57 PM
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JayMoe JayMoe is offline
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Default Re: I need further surgery

Quote:
Originally Posted by Rod Stewart View Post
Wow Jay, I hope you didn’t watch that video, your too early! He he

Jay: “Doc, I trashed my neck”
Doc: “What did you do?”
Jay: “I watched Ti-Ed’s rollercoaster video on You Tube”
Doc:” Jay, I didn’t release you for You Tube”

Ed
Love this! made me smile. and yes, i did watch it
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Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
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  #26  
Old 5th July 2014, 01:11 AM
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Cassie Cassie is offline
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Default Re: I need further surgery

Dear Mark,
I hope you dont have too long to wait for surgery. Your surgeon sounds like a caring person. You so deserve a great outcome and I am sending loads of good vibes up to you.
take care.
xxx
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  #27  
Old 7th July 2014, 01:08 PM
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Default Re: I need further surgery

Hi All

Thanks for the well wishes,

Cassie - How are things with your pain, I hope they have managed to get things under control

Toni - How's me little sister, It if it wasn't for meeting you all those years ago I wouldn't be where I am now, I owe you so much

Gilly - Its about time I came down to Sheffield to visit, it's been too long

Rod Stewart - You make me laugh dude, keep on keeping on

Mary - I hope things are well in your life and you have managed to get your pain under control, you truly are one of lifes inspirations

Jay - Hope things are well with you dude, rest easy and take your time recovering

Take care everyone

Mark
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Mark's a groovin an a movin
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  #28  
Old 25th July 2014, 11:26 PM
wildcats56 wildcats56 is offline
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Default Re: I need further surgery

Hi mark sorry not been I touch a lot going on. So pleased you are on the list get your pain sorted out eventually. Will give you a call soon catch up sue x
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  #29  
Old 31st July 2014, 03:05 AM
Astra_Sam Astra_Sam is offline
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Join Date: Jan 2011
Location: Bristol
Posts: 297
Default Re: I need further surgery

Hey Mark, I'm sorry to hear you have to undergo further surgery but on a more positive note if it helps your daily pain and gives you a fuller and happier life it'll be more than worth it!
You're an awesome and brave man, you'll blitz it!

Hugs,
Sam xx
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Currently awaiting my surgery date to correct my kyphoscoliosis and other congenital spinal abnomalies
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