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  #1  
Old 4th April 2014, 05:17 PM
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flavio flavio is offline
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Default Update

Hello all,

It has been a while since I've posted something here, I've been doing some stuff in order to improve my kyphoscoliosis and manage the pain level:

- I started to work out at the gym (about 1 year ago until now), mostly bodyweight exercises (planks, dips, chinups) and very light free weights. I'm somewhat happy with the outcome although the pain levels are almost the same, I just find it easier to do some day-to-day activities. Here are some progress pics:

https://dl.dropboxusercontent.com/u/...sz_slide60.png

- I did a CAT scan on my back, it revealed a protruded disc at L5-S1, I went on a follow-up appointment with a neurosurgery specialist. The doctor checked me for signs of paralysis (which I didn't have) and told me that there weren't enough reasons for a disc repair surgery. He basically told me to "deal with it" and prescribed me some tramadol for the pain.

- A month ago I scheduled an appointment with a column specialist in a private hospital. He actually mentioned that spinal fusion could be an option, however it would have to be very long (L5 - T4) to cover the whole scoliosis, also because I'm 25 y.o. and have a matured spine my chances of a good correction are slimmer. He also stated that there are no guarantees that my pain levels are going to be any better which I find very odd.
His opinion is that spinal fusion is out of the table unless my curve worsens (like 3-4 degrees) in the span of 1 year (which I don't believe it will happen), the bright side is that at least I'm going to have my cobb angles measured after years of disregard by GP's upon my requests, I've always wanted to know.

- I started to go to physiotherapy recently, I'm doing some GPR (global postural reeducation) sessions that look like this:

http://www.youtube.com/watch?v=5vsSRyFTQ6c

It's more of a palliative thing, I go out feeling more relieved but I get the same pain level after a couple of days (or day). It is worth pointing out that the therapist worked with some spinal fused patients that developed all kind of complications and compensatory curves over the years, he strongly advised me AGAINST spinal fusion because he believes that it will actually worsen my quality of life, he told me that I wouldn't be able to twist my torso for instance, like this:

https://dl.dropboxusercontent.com/u/...orso_twist.jpg

I don't find this to be true at all, for what I've seen on the web there are people with fused spines with great mobility, I believe it depends on the characteristics of the individual (curve severity, age, fitness level, etc..), the kind of technique used for surgery and the overall skill of the doctor. I suspect that the techniques used for spinal fusion in my country are somewhat outdated, I don't see any other reason for the amount of nightmarish tales around.

It's insane the amount energy and joy that this condition has sucked up from me, I feel really depressed, I find it harder over the time to push my self up..

Best,

Flavio.
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  #2  
Old 4th April 2014, 08:44 PM
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GillyG GillyG is offline
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Default Re: Update

Try not to be too disheartened Flavio, looking at the photos you posted shows a fantastic improvement in your posture
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  #3  
Old 26th May 2014, 07:43 PM
AhiGibor AhiGibor is offline
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Hey flavio.. what is your degree?
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Old 27th May 2014, 07:17 AM
Angeceilien Angeceilien is online now
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Default Re: Update

Hi,

Looking good-muscles have an amazing effect of almost masking a curve in men. Keep up all the hard work.

I would get another doctor for a second opinion. Just because the scoliosis goes all the way download doesn't mean they have to fuse all the way.

Ange
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Old 10th June 2014, 07:54 PM
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flavio flavio is offline
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Default Re: Update

Quote:
Originally Posted by AhiGibor View Post
Hey flavio.. what is your degree?
In the last x-ray report it says the following:

- double major scoliosis with 20 and 19;

- thoracic kyphosis angle: 40 (normal range between 20 and 40);

- lordosis angle: 42 (normal range between 15 and 30);

So apparently I have lordosis which is a little bit of a surprise for me but I don't fully trust the measurements and their 'normal' ranges.

Edit: These are the xray images:
https://dl.dropboxusercontent.com/u/6467783/frontal.jpg
https://dl.dropboxusercontent.com/u/6467783/perfil.png
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Old 10th June 2014, 08:11 PM
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flavio flavio is offline
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Default Re: Update

Quote:
Originally Posted by Angeceilien View Post
Hi,

Looking good-muscles have an amazing effect of almost masking a curve in men. Keep up all the hard work.

I would get another doctor for a second opinion. Just because the scoliosis goes all the way download doesn't mean they have to fuse all the way.

Ange
Hi Ange,

I went to a second doctor, this one doesn't even consider that I have hyper kyphosis and refused promptly to perform any kind of surgery. Both doctors are considered the best spine specialists around here and were quite expensive, so I guess I should stop seeking medical help.
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  #7  
Old 11th June 2014, 10:47 AM
garyf garyf is offline
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Default Re: Update

Hey flavio, great improvement with your posture, I've had some success with schroth and gym work myself, my kyphosis is still there but it's certainly less noticeable, well done.
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  #8  
Old 11th June 2014, 02:22 PM
Angeceilien Angeceilien is online now
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Default Re: Update

Hey,

Again wow to the photos. I wouldn't say stop seeking medical help. I would say to monitor the condition in case it gets worse as you age. Also to keep up the exercise especially for your posture and fotos.

As another 25year old who had the surgery. My personal experience that I have suffered quite alot afterwards and would use it as a last resort. I also see alot of people who are still quite flexible but I really feel the restriction of the fusion.

Kyphosis really does suck the life out of in a way. It is exhausting to walk around out of balance. The upper limit isn't exactly normal so I think its wrong of them to make it seem normal. I would really try find a physio who understands spines to give targeted exercises to prevent progression and help with some fatigue.

Ange
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  #9  
Old 11th June 2014, 05:11 PM
AhiGibor AhiGibor is offline
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Default Re: Update

Quote:
Originally Posted by flavio View Post
In the last x-ray report it says the following:

- double major scoliosis with 20 and 19;

- thoracic kyphosis angle: 40 (normal range between 20 and 40);

- lordosis angle: 42 (normal range between 15 and 30);

So apparently I have lordosis which is a little bit of a surprise for me but I don't fully trust the measurements and their 'normal' ranges.

Edit: These are the xray images:
https://dl.dropboxusercontent.com/u/6467783/frontal.jpg
https://dl.dropboxusercontent.com/u/6467783/perfil.png

hmm..your spine is pretty straight from the side. I also have this kyphotic - lordotic posture (60 degree kyphosis and i can estimate about 40 degrees lordosis too.. it's real curved. And no one wants to operate me and im only 16
It is a real headache.. hard life :/

good luck man..
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