new 7yr old

[Norlalos76]

Hi Cheri,

I agree with tonibunny about looking through the website for physicians that specialize in this area. That is a good starting point.

It will also depend on your insurance as well. For us, we have to get referrals and all that wonderful stuff. We are just starting on this journey as well, my daughter was diagnosed 2 weeks ago, also complains of knee pain and ankle pain as well as shortness of breath.

Since you are in the US as well, don't forget about Shriner's. If nothing else, the care is free and they don't just specialize in burns. We live in Texas, and the Shriner's in Houston also specializes in pediatric orthopedics. So we are keeping that in mind as well.

I've also been looking at them because if surgery becomes a possibility for my daughter (and from what I've read so far that may be inevitable, then I was looking into VBS (just to know ALL of our options).

Good luck, and remember, you aren't alone! The people here are very supportive!