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#1
30th July 2010, 09:36 AM
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Re: new 7yr old
Hi Cheri, welcome to SSO
 We have a list of US surgeons in a sticky post at the top of the General Forum. These aren't really "preferred" surgeons though, just people who our members have seen in the past. I'd advise that you seek out a surgeon that belongs to the Scoliosis Research Society (SRS) because they have the most expertise with scoliosis, and also that you visit the excellent National Scoliosis Foundation of America forum too, which can be found here. Welcome again! Toni xx
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35 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic. 
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#2
30th July 2010, 07:28 PM
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Re: new 7yr old
Just wanted to say
 I'm in the UK so I'm afraid I can't be of any more help with finding a US surgeon than Toni has already given you. Good luck, let us know how you get on 
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Me, a Mod? Nah ... I'll always be a rocker 
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#3
31st July 2010, 08:57 AM
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Re: new 7yr old
Hello, and welcome to SSo
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Mum to Erin, 8, diagnosed with 62 degree curve in May 04. Serial casting '04-'07. Growth rods inserted June '08 under Mr Tucker at RNOH, Stanmore, UK. Due her fifth lengthening Dec 10.
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#4
1st August 2010, 10:38 AM
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Re: new 7yr old
Hello and Welcome!
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I am 58 years old and the resident SSO fossil. I live in Oklahoma,USA with my husband Allen and our daughter Jae and her three kids. Aidan is 5. He's the one pictured in my current avatar. Jenna Jean is 4 and Ryan Allen is just 1. It's full time chaos here! I was diagnosed in 1965 at 14 years with Kyphoscoliosis and 2 curves measuring 68 and 63 degrees. My last measurements were in 2004 at 155, 88 and 55+ degrees. I have never had surgery or bracing so I now am on full time oxygen and wear a Bipap machine at night.
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#5
1st August 2010, 01:40 PM
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Re: new 7yr old
Welcome
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♥ =D succsessful correction surgery took place 1st december at alder hey after waiting for 23months fused from t2 to l3 ♥
http://www.facebook.com/bronteh
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#6
4th August 2010, 09:03 PM
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Re: new 7yr old
Hi Cheri,
I agree with tonibunny about looking through the website for physicians that specialize in this area. That is a good starting point. It will also depend on your insurance as well. For us, we have to get referrals and all that wonderful stuff. We are just starting on this journey as well, my daughter was diagnosed 2 weeks ago, also complains of knee pain and ankle pain as well as shortness of breath. Since you are in the US as well, don't forget about Shriner's. If nothing else, the care is free and they don't just specialize in burns. We live in Texas, and the Shriner's in Houston also specializes in pediatric orthopedics. So we are keeping that in mind as well. I've also been looking at them because if surgery becomes a possibility for my daughter (and from what I've read so far that may be inevitable, then I was looking into VBS (just to know ALL of our options). Good luck, and remember, you aren't alone! The people here are very supportive!
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