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View Poll Results: How Did You Come To Find SSO !!
Was It Though a Search Engine .Ie Google/Yahoo 201 85.53%
Was It Though A Member Already On Sso If so What Member was it 16 6.81%
Did you see a link on another Internet Page Ie Facebook/Nsf 15 6.38%
Was It Though Word Of Mouth . 5 2.13%
Multiple Choice Poll. Voters: 235. You may not vote on this poll

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  #16  
Old 17th May 2010, 09:17 PM
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Round The Twist Round The Twist is offline
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Join Date: Jan 1970
Location: Essex, UK
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Default Re: Poll !!!!

I met Titch on a Flatback group on Yahoo/msn groups quite a few years ago now, she informed me of her forum as i had other issues aswell as flatback and I've been here ever since, I think its been since about 2004ish
I'd like to add thankyou Titch you pretty much saved my life! x
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  #17  
Old 22nd May 2010, 07:56 PM
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Emily-Evanopsi Emily-Evanopsi is offline
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Join Date: Jan 1970
Location: Brighton, UK
Posts: 470
Default Re: Poll !!!!

I think through wikipedia... but it was so long ago (I was 10 or 11!) that it's kind of hard to remember...
And there was a surgey in the middle so I think my memory has been addled somewhat by the variety of different meds...

But I think we were linked through wikipedia
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  #18  
Old 23rd May 2010, 08:52 PM
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Poppy :) x Poppy :) x is offline
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Location: 'мistleч.
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Send a message via MSN to Poppy :) x
Default Re: Poll !!!!

I think Toni caught me too.. but i also found it on google.. x
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Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.
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  #19  
Old 23rd May 2010, 09:31 PM
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Ceirdwyn Ceirdwyn is offline
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Join Date: Jan 2010
Location: East Lancashire (UK)
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Default Re: Poll !!!!

The great omniscient Google
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  #20  
Old 26th May 2010, 09:00 AM
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Mustang Sal Mustang Sal is offline
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Join Date: Aug 2008
Location: Norwich
Posts: 6,606
Default Re: Poll !!!!

I actually can't remember! It seems like I joined such a long time ago, but in reality it was less than 2 years ago! Google sounds likely though

I was so ignorant about a lot of things to do with my spine before I found this place - all I had were my medical notes, which didn't make a lot of sense to me, so this forum really did help to 'enlighten' me!
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I'm Sally, 31, and I have congenital kyphoscoliosis in association with Spina Bifida, Diastematomyelia and tethered cord. Surgery to detether spinal cord and remove bone spur at Addenbrooke's in 1984 aged 3. Developed 'pes cavus' and weakness in legs, various foot surgeries between '92 and '94. Decompression of spinal cord, hemivertebrectomy and fusion L2-L4 with instrumentation by Mr Crawford and Mr Laing (neurosurgeon) in 1998 aged 17. Had two stage anterior-posterior T10 to pelvis fusion surgery on 27th February 2012 at NNUH by Mr Crawford and Mr Lutchman. Fused well but now curving over top of fusion, so facing fusion extension up to T1. Trying a brace first in order to put off surgery til next year
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  #21  
Old 10th June 2010, 09:39 PM
moe moe is offline
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Join Date: Jun 2010
Posts: 5
Default Re: Poll !!!!

I found it on yahoo search.
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  #22  
Old 20th June 2010, 07:18 PM
Charley Charley is offline
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Join Date: Aug 2009
Location: Scotland
Posts: 23
Default Re: Poll !!!!

Google when i was down and looking for someone to talk too
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  #23  
Old 14th July 2010, 10:40 PM
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penny1997 penny1997 is offline
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Join Date: Jul 2010
Location: New Hampshire
Posts: 4
Talking Re: Poll !!!!

ok i also found the site from google! im seeing a trend here? hahahaha
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  #24  
Old 15th July 2010, 09:04 PM
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mark mark is offline
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Join Date: Jan 1970
Location: South Shields via Bradford
Posts: 14,008
Default Re: Poll !!!!

Quote:
Originally Posted by penny1997 View Post
ok i also found the site from google! im seeing a trend here? hahahaha
Isn't google brilliant lol
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  #25  
Old 16th July 2010, 10:04 PM
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Paramore Girl Paramore Girl is offline
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Join Date: Jan 2009
Location: Ipswich, Suffolk
Posts: 155
Default Re: Poll !!!!

Dr Harrison at Stanmore told me about the site
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  #26  
Old 16th July 2010, 11:19 PM
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tonibunny tonibunny is offline
T Sr: Admin, Big Sister and Da Police!
 
Join Date: Jan 1970
Posts: 15,331
Default Re: Poll !!!!

Mr Harrison!! That's really wonderful, I knew that a couple of the consultants recommend us but I didn't know that he did too!!
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #27  
Old 19th July 2010, 04:39 PM
juliemc juliemc is offline
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Join Date: Jul 2009
Location: Cavan, Ireland
Posts: 133
Default Re: Poll !!!!

Hi my GP gave us the web site at one of our appointments and coincidently I had come across it the day before while surfing the internet trying to educate myself
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  #28  
Old 22nd July 2010, 05:26 PM
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redangel21 redangel21 is offline
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Join Date: Jul 2010
Posts: 60
Smile Re: Poll !!!!

I am soooo glad I found SSO!!!! I love it soo much It has helped me so much already! Its feels good to know there are so many people like me

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  #29  
Old 24th July 2010, 05:18 PM
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Sapphoria Sapphoria is offline
AKA Megan
 
Join Date: Jul 2010
Location: US, Northern Virginia
Posts: 50
Default Re: Poll !!!!

Not sure who posted it, but I saw a link to this forum over at the National Scoliosis Foundation. I was never able to post there because they never confirmed my registration. But I was grateful for the posted link as I did not find this forum in searches.
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  #30  
Old 21st August 2010, 11:29 AM
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Lizzie Lizzie is offline
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Join Date: Aug 2010
Location: Sydney, Australia
Posts: 18
Default Re: Poll !!!!

Hi folks,
I was googling for info over the last couple of days & found the forum that way.
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Congenital scoliosis (no treatment), diastematomyelia; aged 52.
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