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Old 8th March 2010, 10:26 AM
Simon Simon is offline
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Default Beths journey from Ward 11, a story all children and mums should read

Just going found this whilst going though the ROH website .hope it help a few of our children that are going to be having surgery soon .. its from a childs perspective http://www.ward11.roh.nhs.uk/scolie1.html
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Old 8th March 2010, 02:37 PM
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bluestone bluestone is offline
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Default Re: Beths journey from Ward 11 Childrens

Im sure it will help the younger ones enormously simon.
Ive read through it all and it helped me too!
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Old 8th March 2010, 03:08 PM
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Default Re: Beths journey from Ward 11 Childrens

Nice one dude, keep up the good work
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Old 8th March 2010, 03:13 PM
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Default Re: Beths journey from Ward 11 Childrens

Quote:
Originally Posted by mark View Post
Nice one dude, keep up the good work
Wonder if we can change the title a bit and have it as a sticky so if any younger members want to read it has lots of info for the kids x
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Old 8th March 2010, 03:29 PM
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Default Re: Beths journey from Ward 11 Childrens, a story all children and mums should read

Done
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Old 8th March 2010, 03:34 PM
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Default Re: Beths journey from Ward 11, a story all children and mums should read

Hello, I've just clicked on the link...But My virus blocker came up and said it does contain a virus and shut down the website...can anyone copy it to here?

Poppy x
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Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.
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Old 8th March 2010, 03:35 PM
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Default Re: Beths journey from Ward 11, a story all children and mums should read

Nice one Si

Just to clarify, the hospital in Birmingham is the Royal Orthopaedic Hospital - it's not the same as the Royal National Orthopaedic Hospital, which is in Stanmore in Middlesex (though it's very easy to get the two confused!)
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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