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Old 25th May 2014, 04:15 AM
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AlwaysRyan AlwaysRyan is offline
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Default It happened yesterday

After wanting this for so long, I finally had my fusion surgery yesterday. I had scheuerman's kyphosis at about 85 degrees, and my doctor informed me today that the curve is now between 45-50 degrees. I just want to thank you all so much for your support and I couldn't be more grateful to have found this web forum. I was fused from T3-L1 and currently am managing my pain at the hospital with a button I press when I need some medicine. Getting out of bed has to be the hardest part so far, and standing up felt pretty weird. I also got fitted/a mold done today for a brace.

I know that everyone is different, but does anyone have any pointers/advice for a quicker recovery or things to do while recovering that helped you?

Once again, thank you all so much

-Ryan
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Old 25th May 2014, 10:09 AM
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GillyG GillyG is offline
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Default Re: It happened yesterday

Wow! So pleased to hear you got your surgery at last! Recovery comes on in leaps and bounds once you become mobile. Frequent short walks are the key, gradually increasing the distance as you feel stronger and more able to do so. Good luck, please keep in touch
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Old 26th May 2014, 01:02 AM
AhiGibor AhiGibor is offline
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Default Re: It happened yesterday

Hey man!! I am so jealous of you right now. I have 60 degress (Maybe more, the doctor said "about", didn't invest much in it) and can barley wear a t shirt - which i always need because it's alyways hot in here, never a real winter. I saw your other therads from the past and saw you have an 80 - 85 degree.. how did you made it man?? I am in 60 (And if you ask me its 65) and my back looks so horrible and i will proalby will never get a surgery because i need to be at least 70 and more, doctors are a pain in the ass here and i don't know what to do. Is there any chance you post your x ray images before and after?
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Old 26th May 2014, 01:23 AM
KMaxwell KMaxwell is offline
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Default Re: It happened yesterday

Congrats on a successful surgery, Ryan!

I don't know if I can offer any suggestions - I'm at week 4 myself and still trying to sort out how much I can do and when to stop and get help from someone else. I guess my advice would be to master the log roll, wear the brace as directed and do your best not to bend, lift or twist. That last part's been hard for me but I want to get into better habits now to avoid accidental movements I shouldn't make - that's important since it's a critical time for my spine healing and fusing.

Best of luck with everything! I'd love to see pre/post op x-rays as well when you get them. Always great to see the changes.
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- Kay

I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 47 degrees and my scoliosis to about zero!
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Old 26th May 2014, 05:24 PM
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JayMoe JayMoe is online now
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Default Re: It happened yesterday

Great stuff to hear, was just thinking about you the other day as well and how you were getting on with sorting it all out, as i rarely look at the Kyphosis forum.

getting up and doing stuff has to be one of the top things. Even though walking is very difficult to do to start with, i managed to pick it up quickly, and within a few days, i was able to walk with the physios without having to hold onto them eating helps as well, and eating often, as you wouldnt believe how hungry you get when sitting all day doing nothing. Resting when you feel tired too, sleep for a few hours during the day if needed as that will help too. Also i think having a happy mind set about it helps too, as it makes you look to the good about it all, and you'll surprise yourself at what you can do if you say yes, to something instead of no i dont think i'll be able to do that.

Anways hope this helps with recovery, take it easy at first and you'll come in leaps and bounds in no time

Jay
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Diagnosed at 14 in '08 and i have Neurofibromatosis Tpye 1 + Neuromuscular Kyposcoliosis in the Thoraco-lumber region (T-65* L60* if what i interpret is correct).
Had surgery 08/05/14, fused C5-T12! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14
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Old 28th May 2014, 08:21 PM
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AlwaysRyan AlwaysRyan is offline
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Default Re: It happened yesterday

Thank you all for your replies! Currently I'm still in the hospital and may get the chance to even go home today (even though I barely feel ready). Getting in and out of the beds here have been tough and hurt more than I ever imagined. I guess I didn't really expect the shoulder blade pain. I feel like I'm getting better at the log roll, and my doctor suggested wearing this new brace now as much as I can to make sure the new curve heals how we want it. I didn't realize that it could become messed up again even with metalwork back there now?

Did anyone else's back look a little swollen afterward for a while still? I know it may be just part of the bandage, but I just guess I'm being overly critical and scared of finding any little noticeable curve. Did anyone notice a curve at the their neck specifically?

Jay, you're definitely right about having the right mindset for this. I have to keep reminding myself that all of this pain will go away and that it'll be worth it . I've also been pretty hungry, but I'm trying not to eat too much since I became a little constipated, and trying to force a bowel movement felt like the world was ending.

As for Ahi, it sounds like you're going through a pretty rough time, and I myself have experienced much mental anguish related to my back. But please hang in there and keep trying. My advice is to try what the doctors say, but also don't limit yourself to the opinions of only a couple of doctors. I know that everyone is different, and I do hope you find something that works for you.

I'll post the before and after pics as soon as I get the "after" x-rays. I asked my doctor for it, but he said it might be a little bit before he's able to get it to me. I really am anxious to see how it looks on the inside!

Oh and does anyone have any good suggestions when it comes it alternative medicine for pain relief. I definitely am going to continue my prescribed pain medications, but there was this woman who came into my room yesterday with essential oils and did the "healing touch" and it felt amazing. Anyone have any suggestions for alternative things that worked for them?
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