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  #1  
Old 27th April 2014, 05:14 AM
Momhelp Momhelp is offline
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Unhappy Scared Mom

Has anyone out there had a success story about bracing to avoid surgery? My daughter is 14, with only a 24/20 S curve and pre-menarche...just got brace last week...and this is very difficult for her...this hits t such a hard time, already our girls are inundated with how they are "supposed to look", and now they feel even MORE out of place. My heart breaks every time I think about her struggles, but I know we are doing what we need to do for her now. I am so scared of surgery!
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  #2  
Old 27th April 2014, 06:50 PM
Teri2809 Teri2809 is offline
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Default Re: Scared Mom

Hi
I was diagnosed at 13 years old. I wasn't braced I kind of slipped the net with no monitoring so I can't offer advice on bracing. I'm replying because I'm now 39 and in jan this year I had correction surgery after deteriorating a lot in the last three years. I mainly want to say please don't worry about surgery. Yes it's tough I'm not going to lie but young bones and bodies heal a lot quicker and adapt much better than older bones. I'm really happy with my correction. I am still recovering and have some ongoing issues but everything is improving week on week. Good luck with bracing. Anything is worth trying prior to surgery. All the best. X
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  #3  
Old 27th April 2014, 07:58 PM
Momhelp Momhelp is offline
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Default Re: Scared Mom

Teri, thanks for the reply...this is so hard. What degree were you at 13? Why were you not braced, may I ask? Bless you for your support..
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  #4  
Old 27th April 2014, 09:10 PM
Teri2809 Teri2809 is offline
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Default Re: Scared Mom

My curve I believe was in the 20's. There was no mention of bracing and I think so little was understood about scoliosis then. I was fit and active and had no pain so I was discharged. I had the odd niggle but I was a police officer for 17 years until last sept when I was medically retired. My real probs began after my first pregnancy aged 30. I had some Physio and the pain improved for a while. Then it had my second child three years later at 33. In 2010 at 36 I needed a hysterectomy which meant I wasn't as active and I started to notice a huge increase in pain. I'd seen one specialist after my first child who said your too old for surgery. Your bones are strong the way they are!!!
Then when I couldn't bear the pain anymore I saw two more specialists. The first in 2012 who I didn't gel with. He said pain wasn't a reason for the op but he would do it for cosmetic reasons as a horrible hump had appeared in my back due to my spine rotating and the spine and ribs dropping. It was affecting every part of me and phsyco logically. My boys were 7 and 5 by ten and my mobility was decreasing rapidly and pain increasing.. Then I asked for a second opinion and saw Mr Ahmed at Stoke. He was amazing. He could see what effect it was having on my life and he was happy to do the surgery. I only really suffered for a few years so I wouldn't have considered surgery sooner. There was no need but Mr Ahmed said they know that scoliosis deteriorates by 2% each year on average and I was at 50%. I'm fused from T5 to L1 so I am still able to bend from my hips. After my op I came round and could feel that I was lying flat without the dreaded hump and that made it all worth it for me. Do they have a long term plan for your daughter??. I'm happy to answer any questions you might have. What area are you from?.
Scoliosis is hereditary. I don't know where it came from in my family. It's mainly in girls but can affect males too.xx
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  #5  
Old 27th April 2014, 11:27 PM
Momhelp Momhelp is offline
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Default Re: Scared Mom

I'm glad you are doing better, and that you have two babies in your life! Our long term plan is to wear the brace until her growth spurts are done. We are praying this works, because the psychological part is hard going into high school and being on the swim team. ( changing in locker room ). I am praying this will work and looking for the crystal ball, I suppose. Trying to be string for her...and to convince her that this does not define her.

We are in the US...
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  #6  
Old 28th April 2014, 08:58 PM
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Rachie Rachie is offline
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Default Re: Scared Mom

Hi Scared Mom. I too was a scared mom for a long time! My daughter's scoliosis was seriously huge and she endured 10 surgeries from age 7 to age 10. She is now 3 years post fusion and living life to the full. If your daughter does ever need surgery be encouraged that the young ones really do bounce back quickly. (It was much worse in my head than in reality!)

Bracing is championed by some doctors and not others. I think that it works for some and not others. The trouble is they dont know who it will work for so they try it on most kids whose curve is below the cut off for surgery (40-50 degrees). I definitely have heard of cases where bracing has worked. Sending lots of love. Xxx
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Mum to Maddy aged 14. Maddy is a patient at Great Ormond Street Hospital and had a growth rod inserted in November 2007. In March 2011 the growth rod was removed because the curve became too strong. In May 2011 Maddy had anterior release, 2 weeks traction on a Stryker Frame and then spinal fusion.
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