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  #1  
Old 23rd December 2013, 02:17 PM
anutz anutz is offline
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Default Straight Spine ( Added Pics ) - Getting a Diagnosis and Assistance...

Hello...

This is my first post on here...hope this meets the required standard

I have been facing a range of issues for the past five years, i don't suffer from Scoliosis...i have had no form of operation and no fixation at any levels. I have a L5/S1 grade 1 slip which seems insignificant based on opinions i have received.

I have great difficulty with breathing and walking as well as balance...i have also had issues with symptoms of TOS which i have managed to keep under control recently. Sitting is stressful which is providing concerns for employment.

However i seem to be hitting wall after wall with regards to getting any recognition or assistance with the issues i have. None of the specialists i have seen aside from a recent visit to a Chiropractor, have performed analysis on the Saggital films.

Does anyone have any experience with Hypolordosis in the Lumbar and Hypokyphosis in the thoracic, who was able to constructively advise you?

I did not have these issues until i started a range of exercises - in hindsight the wrong ones, pelvic tucking, shoulders back, quad stretching etc...

I live in the UK

I would add an few MRI images if that would assist for people commenting

Regards
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  #2  
Old 23rd December 2013, 06:03 PM
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tonibunny tonibunny is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

Hiya, welcome to SSO

I'm going to ask a few questions, hope you don't mind but it will help me to work out how best to help you

Your main problem is hypolordosis/hypokyphosis and you have the symptoms of Thoracic Outlet Syndrome, is that correct?

Have you been seen by a medically qualified spinal doctor? I'm assuming that you have had x-rays done - if so, were they taken with you standing up or lying down? Do you have copies that we could look at? It is impossible to assess spinal deformities from scans because the spine flattens out when you are lying down, so standing images are required.

In what way is sitting stressful for you? Could you describe your symptoms further please?

Respiratory problems are very unlikely to be connected to hypokyphosis/hypolordosis unless you actually have thoracic hyperlordosis. Considering you are having real trouble with breathing I think you should seek a referral to get help directly from a doctor who specialises in respiratory issues. You obviously need help here, so a respirologist would be able to get that help sorted for you. They would then be able to refer you on to a spinal specialist if they felt that your spine was the cause.

Exercises would not usually induce hypolordosis or hypokyphosis - or indeed any spinal deformity - in a healthy mature adult, so please don't blame yourself for this.

Don't worry, we'll do our best to aid you in finding help!

Welcome again,
Toni
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #3  
Old 23rd December 2013, 08:54 PM
anutz anutz is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

OK so here goes...

Yes main problem ( as far as i can tell ) is hypolordosis in the Lumbar/hypokyphosis or maybe even lordosis in the Thoracic - until recently i did have symptoms of TOS quite aggressively, but they have some what lessened since i stopped any form of shoulder retraction exercise, yet i cannot stop a feeling of toppling forwards or backwards, and now even my hips feel as if they will tuck at a moments notice.

I have seen 2 Neurologists, multiple sclerosis has been ruled out, and i have also seen 4 spinal surgeons. The L5/S1 spondylothesis has not been seen as significant by them. Indeed i have had lateral X-rays of the lumbar/cervial, but as of yet not the thoracic which i was hoping would have been done. I shall upload an image of the standing Lumbar X-ray i have in Neutral, Flexion and Extension.

Sitting/Bending over in general have been getting difficult, i seem to give at the hips and no where else, my Flexion X-ray shows this well i think and it has also meant from my interpretation when sitting i am having to increase hip flexion to allow me to keep forward and type etc...its very tiring. Lying on my front is difficult now as i do not seem to have any lordosis or say from the lower lumbar but a very large dip at L1/2 or T12/L1 and then a straight thoracic area up to my neck hump.

The Respiratory issue have been really draining, i shall post an MRI, i understand that i am laying down so it may not be 100% helpful but it is something else to asses. It may give some measure or indication of abnormallity. I have seen ENT specialists to help rule out other reasons for breathing disorder but there is nothing of indication. I did see a respiratory physio and was given Buteyko breathing exercises to practice, but no follow up appointment and the exercises did not provide any relief.

I recently have seen a Chiropractor who specializes in Chiropractic Bio Physics. I have not had any treatment and had X-rays done of the Lumbar and Cervical. Their comment was i had a significant flattening of the back and also a Forward Head Posture with the Lordotic curve starting to reverse. I have the offer of a treatment plan but am hesitant right away until i have gathered some more information on the possible risks of any Neck Manipulations etc. I dont have the X-rays from this visit but will try to get them.

Thanks for the Welcome and thankyou for the initial question.....

I will attach 4 MRI Images, one from 2010 and 3 from 2013, i shall also get the standing lumbar lateral X-rays ( from one of my spinal surgeon consults ) and convert them for upload

Anutz!
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  #4  
Old 23rd December 2013, 09:39 PM
anutz anutz is offline
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Default Re: Straight Spine Pics added - Getting a Diagnosis and Assistance...

OK here are some pictures...

Lumbar Neutral



Lumbar Flexion




Lumbar Extension




2013 Cervical MRI



2013 Thoracic MRI



2013 Lumbar MRI



2010 L-T MRI


Last edited by anutz; 23rd December 2013 at 10:18 PM. Reason: Added Pics
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  #5  
Old 24th December 2013, 10:48 AM
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GillyG GillyG is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

Hi there Anutz and

I'm not terribly good at interpreting MRI's but you do seem to have an unnaturally straight spine and that L5/S1 spondylothesis looks very painful

I mentioned in a PM that the surgeons on our specialist list deal with the full range of spinal issues, so it might be worth trying to get a referral to one of them, or even pay to go privately for an initial assessment if at all possible. The link to the list is:

http://www.scoliosis-support.org/showthread.php?t=7250
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  #6  
Old 24th December 2013, 01:11 PM
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tonibunny tonibunny is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

The MRI was done lying down though Gilly, so the natural lordosis and kyphosis is flattened out - I don't think it's possible to say whether or not someone has an unnaturally flattened lordosis or kyphosis just from an MRI image like this. I agree that it would be a good idea to seek a referral to one of the specialists on our list.
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37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
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  #7  
Old 15th January 2014, 02:46 PM
carolad carolad is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

This is how a lot of people stand and walk now (and physios encourage it by telling you to 'tuck' your pelvis under): http://corewalking.com/

His blog has some interesting posts about how you can try and correct this. He isn't an Alexander Technique teacher but it is still interesting reading
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  #8  
Old 21st January 2014, 04:11 PM
anutz anutz is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

Update....

I have had my reports back from recent consultations and reviewing the general trend from all my appointments is that the lordosis is adequate, the thoracic kyphosis is flattened and as can be seen there are issues in the neck. There are no surgical interventions appropriate, however i am still living day to day with mobility issues and increasing stiffness and issues in my neck/thorax and consequently arms etc.

I am going to push ahead with chiropractic treatment i think as this is the only avenue that i have not explored and based on the X-rays it makes sense to attempt better alignment. I have seen a CBP practitioner, and the only thing i will be wanting to avoid is HVT techniques to the neck. CBP does seem to offer good protocols for restoring the lordosis in the neck, and also for addressing hypokyphosis, however i know the thoracic adjustments and methods can take time.

If anyone has and comments it would be appreciated - simply put there is not surgical intervention warranted as there is no pain - yet the neck/thoracic issues i feel cannot wait to be addressed

Starting to feel like i am between a rock and a hard place....

Anutz!
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  #9  
Old 21st January 2014, 06:07 PM
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GillyG GillyG is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

If you decide to go ahead with this please make sure you find a chiropractor who has some experience with cases such as your own. I don't speak from personal experience but one of my friends was made infinitely worse by having chiropractic treatment

Please consider finding an Alexander Technique practitioner, if you can afford to. They work on postural alignment in a much more gentle and natural way

Good luck, please feed back to us with what happens next!
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  #10  
Old 21st January 2014, 06:25 PM
anutz anutz is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

Hi

I actually have an appointment with an APT practitioner on the 31st. So i am looking forward to that. I am concerned about the pros and cons of CBP. I am going to discuss this with my Chiropractor and be honest about my concerns regards certain techniques and potential to make me worse. As things stand however i am getting worse, rotational and balance issues, like a spinning top. I am not sure why no one i am seeing is able to assist me

I can quite happily describe my theories and what i have done to bring about these issues, however plausible they are they do not seem to hold much credence with anyone.

I would rather avoid CBP but its the only thing left on the table right now alongside AT and i am anxious to try get myself better...i don't want to go backwards, i ended up unable to stand earlier this year and it took me a month or so to get myself moving again and balancing a little better

Anutz!
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  #11  
Old 23rd January 2014, 03:22 PM
anutz anutz is offline
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Default Re: Straight Spine - Getting a Diagnosis and Assistance...

Does anybody have an experience with Chiropractic treatment - first hand?

Did it help or hinder you?

Thanks

Anutz
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