Scoliosis Support  

Go Back   Scoliosis Support > Scoliosis > General Discussions

Notices

View Poll Results: How Did You Come To Find SSO !!
Was It Though a Search Engine .Ie Google/Yahoo 202 85.59%
Was It Though A Member Already On Sso If so What Member was it 16 6.78%
Did you see a link on another Internet Page Ie Facebook/Nsf 15 6.36%
Was It Though Word Of Mouth . 5 2.12%
Multiple Choice Poll. Voters: 236. You may not vote on this poll

Reply
 
Thread Tools Display Modes
  #1  
Old 12th May 2010, 05:30 PM
ssoAdmin ssoAdmin is offline
Admin
 
Join Date: Jan 1970
Posts: 15
Default Poll !!!!

We'd love to know where you all heard about SSO, and how you came to join us!

The Staff xx

Last edited by tonibunny; 21st June 2010 at 10:59 AM.
Reply With Quote
  #2  
Old 12th May 2010, 08:25 PM
cherrybird's Avatar
cherrybird cherrybird is offline
I love a CurlyWurly
 
Join Date: Mar 2009
Location: physically in Aylesbury, mentally on another planet
Posts: 3,451
Default Re: Poll !!!!

I found it when toni saw me on nsf
__________________
Adolescent Idiopathic Scoliosis. Started in 1990 with a harrington rod for thoracic curve, 1995 it was removed as interferring with lumbar curve. In 1999 I had left leg shortened to pull hip down, then in 2000 the metalwork was removed. June 2010 had revision surgery, making the entire fusion t2-l5. Unfortunately in worse pain now than before
Reply With Quote
  #3  
Old 12th May 2010, 11:04 PM
tonibunny's Avatar
tonibunny tonibunny is offline
T Sr: Admin, Big Sister and Da Police!
 
Join Date: Jan 1970
Posts: 15,399
Default Re: Poll !!!!

I was here at the start, so I'm going to say I came here through Titch
__________________
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
Reply With Quote
  #4  
Old 12th May 2010, 11:05 PM
mark's Avatar
mark mark is offline
Mod with a rod (or two)
 
Join Date: Jan 1970
Location: South Shields via Bradford
Posts: 14,025
Default Re: Poll !!!!

Quote:
Originally Posted by tonibunny View Post
I was here at the start, so I'm going to say I came here through Titch
Me too, titch caught me
__________________
Latitude: 54 57' 34" N Longitude: 1 25' 16" W


Mark's a groovin an a movin
Reply With Quote
  #5  
Old 12th May 2010, 11:27 PM
madmclw's Avatar
madmclw madmclw is online now
SSO Scavenger Queen
 
Join Date: Jan 1970
Location: Kent, SE England
Posts: 3,133
Send a message via MSN to madmclw
Default Re: Poll !!!!

Google! Though I won't take credit for it - my mother signed up here before I did and posted a couple of times, then disappeared once I'd made my own account and she saw how much I was getting from it
__________________
Diagnosed with adolescent idiopathic scoliosis on the 10th April 2007. Seen at the Child Development Centre at the Medway Maritime Hospital on 18th June then referred to Mr Noordeen at the RNOH Stanmore. Seen by consultant on the 13th July x-rays revealed 77o thoracolumbar curve and severe rotation. Surgery planned in 6 months had surgery on 26th November 2007. Admitted for pre-op on 23rd stayed in over the weekend. Curve then 90o, suffering from pain and reduced lung function. Moved from HDU to ward after 24hrs, then into isolation for suspected infection after 3 days. Symptoms turned out to be a bad reaction to antibiotics.
Reply With Quote
  #6  
Old 13th May 2010, 12:08 AM
Little Ali's Avatar
Little Ali Little Ali is offline
SSO Groupie!
 
Join Date: Jan 1970
Location: Newbury, Berkshire
Posts: 7,497
Default Re: Poll !!!!

I was rescued from Slife by Tim (Pikey)
__________________
Born 1981 with Spina Bifida Myelomeningocele. Surgery to close lesion at birth. Anterior fusion T11-L5 aged 12. Laminectomy June 06. Posterior fusion with instrumenation T8-T11. Degenerative Disc C4/C5

Waiting for VP Shunt surgery. Under the care of Mr. Tucker who wants to fuse me T2-pelvis!
Reply With Quote
  #7  
Old 19th July 2010, 05:39 PM
juliemc juliemc is offline
Senior Member
 
Join Date: Jul 2009
Location: Cavan, Ireland
Posts: 133
Default Re: Poll !!!!

Hi my GP gave us the web site at one of our appointments and coincidently I had come across it the day before while surfing the internet trying to educate myself
Reply With Quote
  #8  
Old 22nd July 2010, 06:26 PM
redangel21's Avatar
redangel21 redangel21 is offline
RedL
 
Join Date: Jul 2010
Posts: 60
Smile Re: Poll !!!!

I am soooo glad I found SSO!!!! I love it soo much It has helped me so much already! Its feels good to know there are so many people like me

__________________
-Samantha
Reply With Quote
  #9  
Old 13th May 2011, 04:22 PM
chocolate chocolate is offline
Junior Member
 
Join Date: May 2011
Location: Scotland
Posts: 10
Unhappy Re: Poll !!!!

Quote:
Originally Posted by ssoAdmin View Post
We'd love to know where you all heard about SSO, and how you came to join us!

The Staff xx

Came across you simply by searching for "Scoliosis" on-line. Have just been diagnosed with idiopathic adolescent scoliosis and am trying to find out as much as poss and get my head round it.
Reply With Quote
  #10  
Old 14th May 2011, 10:23 PM
Mustang Sal's Avatar
Mustang Sal Mustang Sal is offline
Marvellous Moderator
 
Join Date: Aug 2008
Location: Norwich
Posts: 6,606
Default Re: Poll !!!!

Quote:
Originally Posted by chocolate View Post
Came across you simply by searching for "Scoliosis" on-line. Have just been diagnosed with idiopathic adolescent scoliosis and am trying to find out as much as poss and get my head round it.
Hi there, glad you found us! Why not post a message on the main discussions forum telling us a bit about yourself? We're very friendly and supportive, and can try to help you navigate the world of scoliosis you've just found yourself in
__________________
I'm Sally, 31, and I have congenital kyphoscoliosis in association with Spina Bifida, Diastematomyelia and tethered cord. Surgery to detether spinal cord and remove bone spur at Addenbrooke's in 1984 aged 3. Developed 'pes cavus' and weakness in legs, various foot surgeries between '92 and '94. Decompression of spinal cord, hemivertebrectomy and fusion L2-L4 with instrumentation by Mr Crawford and Mr Laing (neurosurgeon) in 1998 aged 17. Had two stage anterior-posterior T10 to pelvis fusion surgery on 27th February 2012 at NNUH by Mr Crawford and Mr Lutchman. Fused well but now curving over top of fusion, so facing fusion extension up to T1. Trying a brace first in order to put off surgery til next year
Reply With Quote
  #11  
Old 7th June 2011, 12:22 AM
mark's Avatar
mark mark is offline
Mod with a rod (or two)
 
Join Date: Jan 1970
Location: South Shields via Bradford
Posts: 14,025
Default Re: Poll !!!!

Hi Chocolate

Welcome to SSO, i hope we can support you through your scoliosis journey

If you have any questions just post away

once again welcome

Mark
__________________
Latitude: 54 57' 34" N Longitude: 1 25' 16" W


Mark's a groovin an a movin
Reply With Quote
  #12  
Old 14th August 2011, 12:06 AM
ellen124 ellen124 is offline
OrangeL
 
Join Date: Mar 2011
Location: Lives in NYC
Posts: 25
Default Re: Poll !!!!

Search engine
Reply With Quote
  #13  
Old 18th January 2012, 04:41 AM
redangel21's Avatar
redangel21 redangel21 is offline
RedL
 
Join Date: Jul 2010
Posts: 60
Default Re: Poll !!!!

Well, I saw a yahoo answers page. Someone had asked a question about scoliosis and In a reply someone posted this link

I'm very glad I found you guys!
__________________
-Samantha
Reply With Quote
  #14  
Old 15th June 2012, 04:55 AM
Sparkles's Avatar
Sparkles Sparkles is offline
OrangeL
 
Join Date: Mar 2010
Location: North Wales,UK
Posts: 405
Default Re: Poll !!!!

Quote:
Originally Posted by redangel21 View Post
Well, I saw a yahoo answers page. Someone had asked a question about scoliosis and In a reply someone posted this link

I'm very glad I found you guys!
May have been me on yahoo answers,i always answer scoliosis questions and add a link so yeah it may have been my answer you saw,was it a top contributor if so then hmmmm yes as i am one on yahoo answers for the past 4 years!
Reply With Quote
  #15  
Old 15th June 2012, 05:32 PM
tonibunny's Avatar
tonibunny tonibunny is offline
T Sr: Admin, Big Sister and Da Police!
 
Join Date: Jan 1970
Posts: 15,399
Default Re: Poll !!!!

Good work, Sparkles!
__________________
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump


All times are GMT +1. The time now is 07:44 PM.


Powered by vBulletin® Version 3.7.1
Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
(c) Scoliosis Support