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Thread: Beths journey from Ward 11, a story all children and mums should read

  1. #1
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    Default Beths journey from Ward 11, a story all children and mums should read

    Just going found this whilst going though the ROH website .hope it help a few of our children that are going to be having surgery soon .. its from a childs perspective http://www.ward11.roh.nhs.uk/scolie1.html

  2. #2
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    Default Re: Beths journey from Ward 11 Childrens

    Im sure it will help the younger ones enormously simon.
    Ive read through it all and it helped me too!

  3. #3
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    Default Re: Beths journey from Ward 11 Childrens

    Nice one dude, keep up the good work
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  4. #4
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    Default Re: Beths journey from Ward 11 Childrens

    Quote Originally Posted by mark View Post
    Nice one dude, keep up the good work
    Wonder if we can change the title a bit and have it as a sticky so if any younger members want to read it has lots of info for the kids x

  5. #5
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    Default Re: Beths journey from Ward 11 Childrens, a story all children and mums should read

    Done
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    Hello, I've just clicked on the link...But My virus blocker came up and said it does contain a virus and shut down the website...can anyone copy it to here?

    Poppy x
    Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
    NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.

  7. #7
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    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    Nice one Si

    Just to clarify, the hospital in Birmingham is the Royal Orthopaedic Hospital - it's not the same as the Royal National Orthopaedic Hospital, which is in Stanmore in Middlesex (though it's very easy to get the two confused!)
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    I was going to say the same thing Toni, but I wasnt sure.
    Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
    NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.

  9. #9
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    cant open the link says it has a virus when i try ,can anybody help would like to the story thanks x

  10. #10
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    I can't seem to get on it
    is it like a diary kinda thing?

    i wrote my own story from being diagnosed until now, mum got it printed professionally and it is hopefully being put in The Queens Medical Centre Nottingham for other people to read..
    i think i sent it to Poppy as well, if i remember correctly.
    i'm 19 years old.
    had surgery at the QMC in 10th Nov08. fused from T5-L1.
    best decision i've ever made.

  11. #11
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    Ellena darling, your story is superb, my mum read it too, she thinks its lovely.

    Lots of love x
    Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
    NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.

  12. #12
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    Not sure why its doing that girls its defo not a virus as its part of the hospitals website try this link

    X

    www.ward11.roh.nhs.uk/scolie1

  13. #13
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    Still coming up as a trojan si' sorry x
    Diagnosed: 16th July 2008. MAY 2009 - Thoracic 56.8 Lumbar 38.3.
    NOV 2010 - Thoracic 83.6 Lumbar 54.9. JAN 2011 - Thoracic 66.4 Lumbar 30.9. May 2011 - Thoracic 45. Lumbar 6.

  14. #14
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    Very odd - it comes up fine on my computer, no mention of a virus and I do have up-to-date AVG protection. I think it's just one of those false positives that anti-virus software sometimes throw up. Bit annoying though eh?
    Me, a Mod? Nah ... I'll always be a rocker

  15. #15
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    Default Re: Beths journey from Ward 11, a story all children and mums should read

    grrrr.. still not working
    really wanted to read that tooo.
    i'm 19 years old.
    had surgery at the QMC in 10th Nov08. fused from T5-L1.
    best decision i've ever made.

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