Re: Risks of surgery
I'm really sorry to hear your pain has got this bad I think it would be worth investigating other nonsurgical techniques though, even if physio is no longer helping.
Here in the UK we have specialised "Pain Clinics" which we can get referred to in order to try out various pain management techniques. These clinics are usually staffed by specialist doctors who have more in-depth knowledge about pain management than ordinary doctors. Do you know if there is anything like this available where you are? I attended a Pain Clinic a couple of years back and tried various things, and some were very very helpful - in particular, I had steroid nerve-blocking injections and was prescribed a painkiller specifically for neurological pain, which made a huge difference to my quality of life.
The amount of pain you're getting might be unusual - have you had this fully investigated, with scans etc?
Keep your chin up - I'm sure there are still tons of things you could try before considering surgery if you are keen to avoid it - we'll do our best to help you find something.
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.