Re: Went To Scoliosis Sos Today
Luckily there are plenty of options on the NHS if people don't wish to pay thousands of pounds to a private clinic. I had amazing results from a free NHS inpatient programme run by the Pain Clinic at my hospital - I spent three weeks doing intensive physio and hydrotherapy amongst other things. An advantage of this was that I was checked by a qualified spinal surgeon rather than just by the physiotherapists.
If anyone is in a lot of pain I can really recommend getting referred to a Pain Clinic in the first instance, and take it from there. They are run by doctors who are specialised in pain management and have more options for pain relief than the GPs can offer.
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.