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Thread: Scoliosis SOS Clinic, Suffolk, Ipswich

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  1. #1
    Join Date
    Jan 2009
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    4

    Thumbs up Scoliosis SOS Clinic, Suffolk, Ipswich

    Hi All,

    I only found this website a couple of days ago but have found some really useful info in such a short space of time!!

    Anyhow, I just wanted to let u all know that I went for a free consultation at the clinic today and have just got back to my house.

    I just wanted to add my views as someone may find it helpful as I have reading other peoples. Fyi... I have actually booked a place on the course starting on this coming Monday 26th Jan.

    On walking in, I imagined it to be quite a lot larger than what it was. I was very clean and everybody had to take their shoes off (the floor was lovely and warm though) lol!!

    I saw many Thank You cards and reading them gave a positive 1st impression; although Im sure if they have had complaint letters they wont be on display!!

    Anyhow, I was unsure about what the clinic was about and also although I knew I had Scoliosis, I didnt ever fully understand it (btw... Im a 23 yr old male who developed Scoliosis at 16). The surgeons I had seen didnt give half as much info in terms that I understood as the girl who did the consultation did. She was so helpful and kind and explained things really well.

    I felt very comfortable asking the questions I wanted to and they provided answers to all.

    My main concern about my back was my breathing and the pain and discomfort I am in. I feel confident that if I work hard with what they do, it will really benefit me.

    I did feel a little under pressure to give an answer there and then but I dont know if thats because they knew I wanted to be on the course on Monday due to work reasons.

    I have also book my accommodation through them at 100 per week for a single room. They also have accom which can have 2 people stay in as in a patient and parent. It is situated about 5 mins away from the clinic with good facilities around such as pubs serving good food ( I tried dinner and tea) and a large Tesco.

    I must say though when we went into the office upstairs to pay the money and do forms etc.. I saw the Erika who has set it up. I would have thought she would have introduced herself slightly better and a bit of conversation as people have to pay a lot of money to go there. She was probably busy but I would have made the effort as there are only 3 people in the office! Im sure she will introduce herself on Monday!! lol

    Luckily for me, my parents have paid for the treatment but all in all with travel and living expenses plus the clinic costs it will be in the regions of 4000. It is a very lot of money but only someone suffering with the condition could understand the benefits as my breathing is really bad.

    Im sorry Im babbling on... nrly done!! I also feel that although this will have health benefits, I think my understanding of the condition will be a lot greater. I also feel a HUGE thing i will take from this is confidence and feel emotionally I will benefit a hell of a lot.

    In summary, Im really excited but very nervous about the next month and was very happy with what I saw at the clinic. Also, my parents did come with me and they were very impressed; they were extremely sceptical about the clinic before hand!!

    Well I thinks thats my essay complete now so looking forward to Monday a great deal and hope all goes well and cant wait to meet and befriend people in my situation.

    I would like to think that someone will find something helpful out of the above but if anyone would like to ask any questions, Id be more than happy to help if I have the answer.

    Cheers
    Sean

  2. #2
    Join Date
    Jan 1970
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    Sheffield, UK
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    16,220

    Default Re: Scoliosis SOS Clinic, Suffolk, Ipswich

    Hope everything goes well for you Sean Keep us posted!
    Me, a Mod? Nah ... I'll always be a rocker

  3. #3
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    Jan 1970
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    Runcorn, cheshire
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    2,522

    Default Re: Scoliosis SOS Clinic, Suffolk, Ipswich

    Good Luck !!!

    Lets us know the outcome !!

  4. #4
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    Jul 2008
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    york
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    Default Re: Scoliosis SOS Clinic, Suffolk, Ipswich

    good luck xx

  5. #5
    Join Date
    Jan 2009
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    4

    Default Re: Scoliosis SOS Clinic, Suffolk, Ipswich

    Thanks everyone for the good luck!! Im sure that n my effort and their training will hopfeully make a difference to my quality of life. Will keep everyone updated on end of each week!!

    Thank you
    Sean

  6. #6
    Join Date
    Jan 2009
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    4

    Default Re: Scoliosis SOS Clinic, Suffolk, Ipswich

    Just to let everyonce know, I am into my 3rd day and still really positive about it!!

  7. #7
    Join Date
    Feb 2010
    Posts
    102

    Default Went To Scoliosis Sos Today

    Hi all,

    i went to the clinic today in london,i must say it seems very positive.I know even though they cannot give exact measuremet,but they do have some experience obviously.According to him my curve does not seem severe but hey i still wanna know for sure from an expert.Has anyone tried this clinic and how was it for them.

  8. #8
    Join Date
    Jan 1970
    Location
    London
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    2,360

    Default Re: Went To Scoliosis Sos Today

    Hi aqz

    I've moved your thread into the non surgical room as people who've been to SOS are more likely to see it here! In the meantime, have a quick search of the site for some first hand experiences of the place and some spirited discussion about their methods, I'm glad you had a positive outcome and hope you're feeling a little better about the situation now.

  9. #9
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    Jan 1970
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    South Shields via Bradford
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    Default Re: Went To Scoliosis Sos Today

    very wise of you to keep up your appointments with the experts
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  10. #10
    Join Date
    Feb 2010
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    102

    Default Re: Went To Scoliosis Sos Today

    yes defo i think today was just to see how they work

  11. #11
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    Jan 1970
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    South Shields via Bradford
    Posts
    14,027

    Default Re: Went To Scoliosis Sos Today

    Nice one you sound like you have it all under control, as well as scoliosis sos i would also look at Schroth (true schroth not a hybrid) a clinic has opened in London and the Alexander Technique you can find AT if you google it

    If you are thinking of going down the alternative therapy route then you do have a number of options available to you

    Take your time before deciding, about the only good thing this curse we all have is the ability to take a little time to decide what we want and what is best for us

    Mind dont take months deciding but you do not have to make any decisions over night and if we can save you a few pennies then in this current financial climate, well that has be good doesn't it

    If you want my advice i would not look into claims about how good a treatment is i would look for published documents supporting those claims and try to get it on the NHS that will save you even more pounds

    Mark
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  12. #12
    Join Date
    Mar 2010
    Posts
    6

    Smile Re: Went To Scoliosis Sos Today

    Quote Originally Posted by aqz View Post
    Hi all,

    i went to the clinic today in london,i must say it seems very positive.I know even though they cannot give exact measuremet,but they do have some experience obviously.According to him my curve does not seem severe but hey i still wanna know for sure from an expert.Has anyone tried this clinic and how was it for them.
    Hello aqz
    I've only just joined sso today (I'm a bit of a techniphobe so hope you'll all bear with me) It's probably due to being an 'oldie'.
    I wanted to let you know that I have idopathic scoliosis- discovered when I was about 8years old- I am now 61years
    of age(but a VERY young 61 year old!!!)
    I've had all sorts of treatment throughtout my life- I have not allowed it to stop me from doing whatever I have set my mind at doing. I am married to a wonderful husband - who has been extremely patient when I've moaned about my back.
    I discovered the SOS clinic in Suffolk (they've since opened up in London) and I really wished I had discovered the place when I was younger!
    I have got my life back- 'though it's not without it's problems, I still have a few aches and pains but I am able to deal with them in my own way.
    The exercises I was taught to do were 'bazaar' to say the least, but, what a difference, what an investment for me. Hard work, wonderful physios and on my return home (I was away for 4 weeks) so many people noticed such a transformation in my posture, I felt heaps better in myself- my breathing has improved, I was told I looked younger(I need that at my age) My mum proclaimed it a 'miracle'.
    I now have my own little gym and have to exercise for 35mins everyday. Yes, it cost a lot of money and equipment had to be bought etc - but it was about the price people pay for a membership for joining a gym and I have my own private one at homefor the rest of my life!
    I made new friends who understand exactly how I feel, I discovered a 'new' understanding of my condition- even after all these years, I actually gained a new found confidence and I am able to stand far straighter than I've been able to for years and for longer (without pain).
    I am in control of my back instead of it controlling me!
    I would also like to add that I think that all the advice that is and has been offered to you is wonderful and so supportive and I would say don't close any doors, there is so much more information out there, wish I'd had the opportunities when my scoliosis was discovered.
    Would like to think that I've been of some help to you and perhaps somebody else out there!
    By the way I've been offered operations on several occasion and I 'm really pleased that I've always turned it them down- I've worn plaster jackets-plastic jackets and a milwalkee(hated them).As I 've got older my pain was getting worse SOoo for me the BEST remedy has been the SOS clinic Erica Maude the founder (only about 21yrs now?) has scoliosis!
    Good Luck
    and remember you are not alone- it seems there are loads of us Su T x

  13. #13
    Join Date
    Jan 1970
    Location
    Sheffield, UK
    Posts
    16,220

    Default Re: Went To Scoliosis Sos Today

    Hello Sue

    Thank you for posting your story and experience, I'm sure it will be of great help to others who are considering following the non-surgical route. I'm very pleased to hear how positively the exercises impacted on your posture and quality of life.

    We would always advocate that members remain under the care of a scoliosis specialist, even if they follow a non-surgical route, since often they are young people at risk of rapid progression during adolescence - I think you might be out of that bracket now though
    Me, a Mod? Nah ... I'll always be a rocker

  14. #14
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    Jan 1970
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    South Shields via Bradford
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    14,027

    Default Re: Went To Scoliosis Sos Today

    Sounds like Nirvana

    My eye sight seems to be failing me these days so if i missed it i apologise, how much did you say it costs for this treatment

    You see the last gym i joined was free to be a member and was then pay as you go

    Cheers

    Mark
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  15. #15
    Join Date
    Mar 2010
    Posts
    6

    Red face Re: Went To Scoliosis Sos Today

    Quote Originally Posted by mark View Post
    Sounds like Nirvana

    My eye sight seems to be failing me these days so if i missed it i apologise, how much did you say it costs for this treatment

    You see the last gym i joined was free to be a member and was then pay as you go

    Cheers

    Mark
    Sorry Mark I had no intention of 'misleading' anyone regarding the cost of the treatment at the SOS Clinic- I suppose I got rather carried away, I justify the cost to the price of an annual subcription to a gym to myself(I've actually never joined one! (SO what do I know?) too embarassed about my back!) I just wanted to put things in perspective, as I feel I now have an investment for the rest of my life.
    I was just so thrilled at finding something that was so amazing for me after years of progressive pain I wanted to share my discovery with others who unfortunately have a similar condition! YES! it is expensive BUT for me I'm more in control of my life than I've been for years.
    Regards Su T x

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