Page 38 of 39 FirstFirst ... 2836373839 LastLast
Results 556 to 570 of 575

Thread: Pictures of my back, the psychological and physical pain of living with kyphosis

  1. #556
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    [quote=Alex65;248728]Hi to everyone. My name is Alex. I'm 47 y.o. and i'm affected by dorsal hyperkyphosis that influenced all my life both psychological and physical side. You can imagine the pain and what means to live with a body like mine!
    Alex/quote]

  2. #557
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    [quote=Alex65;248730]another my pics.../quote]

  3. #558
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis


  4. #559
    Join Date
    Jan 1970
    Location
    Edmond,OK USA
    Posts
    6,567

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Alex, You certainly have courage. I definitely am more twisted and have a larger hump, but to this day I could not post photos. I admire your courage because it is important for others to know what we are talking about. Your photos and Mark's should give some of the people pause. This scoliosis thing is serious business and if there is no treatment the disease can ruin our preset and future. Thanks Alex!
    I am 61 years old and the resident SSO fossil. I live in Oklahoma,USA with my husband Allen. We have one daughter Jae and she has three kids.Our grandkids are: Aidan is8. He's the one pictured in my current avatar. Jenna Jean is 7 and Ryan Allen is just 4 It's full time chaos here! I was diagnosed in 1965 at 14 years with Kyphoscoliosis and 2 curves measuring 68 and 63 degrees. My last measurements were in 2004 at 155, 88 and 55+ degrees. I have never had surgery or bracing so I now am on full time oxygen and use a Non Invasive Ventilator at night. at night.

  5. #560
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Quote Originally Posted by Amazed Jean View Post
    Alex, You certainly have courage. I definitely am more twisted and have a larger hump, but to this day I could not post photos. I admire your courage because it is important for others to know what we are talking about. Your photos and Mark's should give some of the people pause. This scoliosis thing is serious business and if there is no treatment the disease can ruin our preset and future. Thanks Alex!
    Thanks to you my dear friend. It's for this reason that i've uploaded my pics!...so that others could to see and to know. I'm 48 y.o. but i've a severe hyperkyphosis and an evident hump that is in aggravation. I'm legally disabled for my severe flat feet yet. I've an acute chronic plantar fasciitis that makes me unable also only to walk.
    Thank you very much. Your words give me many power!!!...upload some my feet pics to show how flat they are!!!...thank you,
    Alex

    Flat feet: lateral and plantar side

  6. #561
    Join Date
    Apr 2013
    Posts
    849

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Hi Alex,

    Thank u for posting. Have u been to see an orthopaedic specialist to see if there is one that can offer some relief for feet and/or spine?

    Ange

  7. #562
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Quote Originally Posted by Angeceilien View Post
    Hi Alex,

    Thank u for posting. Have u been to see an orthopaedic specialist to see if there is one that can offer some relief for feet and/or spine?

    Ange
    Hi Ange,
    oh yeah, i'm under an orthopaedic and a physiotherapist. I'm doing many physical therapies. Ultrasound therapy, TENS (Transcutaneous Electrical Nerve Stimulator), physiotherapy for feet and spine.
    For my feet there's no many other to do. For spine i might have surgery because my kyphosis is getting worse quickly but i've severe diabetes and severe hypertension that could make surgery many more risky. I take in many medicines every day. I hope to have some relief with these rehabilitations!!!...Thank you.
    Alex

  8. #563
    Join Date
    Apr 2013
    Posts
    849

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Hi,

    Sorry to hear, sounds really hard. How well is ur diabetes controlled? Besides the medications do they have u on a diet and exercise programme? In case surgery becomes necessary it will be best with as much physical fitness as u can manage.

    I made sure I got my cholesterol down as far as possible from high to moderate ybefore surgery by lots of exercise and a strict diet.


    Ange

  9. #564
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Quote Originally Posted by Angeceilien View Post
    Hi,

    Sorry to hear, sounds really hard. How well is ur diabetes controlled? Besides the medications do they have u on a diet and exercise programme? In case surgery becomes necessary it will be best with as much physical fitness as u can manage.

    I made sure I got my cholesterol down as far as possible from high to moderate ybefore surgery by lots of exercise and a strict diet.


    Ange
    Hi,
    my diabetes is controlled by medications and diet but the other big problem is severe hypertension...i must take in 5 different medications to control it every day.
    I don't know if it'll be ever possible to be operated because i've osteoporosis too...it's for this problem too that my kyphosis is in progressive aggravation.
    alex

  10. #565
    Join Date
    Jan 1970
    Location
    Sheffield, UK
    Posts
    16,238

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Oh Alex, you do have an awful lot going on there don't you I do hope you can get some sort of help from someone.
    Me, a Mod? Nah ... I'll always be a rocker

  11. #566
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Quote Originally Posted by GillyG View Post
    Oh Alex, you do have an awful lot going on there don't you I do hope you can get some sort of help from someone.
    Hi Gilly,
    i've met many good and professional doctors that are trying to help me but it's very very hard...however your words and your partecipation (also if from the other side of the ocean!) arrive up to me and help me really too!!!
    Thanks to everyone!!!
    Alex

  12. #567
    Join Date
    Jan 1970
    Location
    Sheffield, UK
    Posts
    16,238

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Quote Originally Posted by Alex65 View Post
    i've met many good and professional doctors that are trying to help me but it's very hard
    Well it's good to know that someone skilled is looking out for the practical side of helping you, we'll always be here to help in any way we can with the friendship and support side of things
    Me, a Mod? Nah ... I'll always be a rocker

  13. #568
    Join Date
    Apr 2013
    Posts
    849

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Hi,

    Also hope they can sort out out for u. I am genetically from up there. ..Mediterranean and UK ....I send my support from the bottom of the world.

    Ange

  14. #569
    Join Date
    Jan 1970
    Location
    South Shields via Bradford
    Posts
    14,036

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Hi Alex

    As Gilly says, I really hope we can help with the friendship side of things, we certainly know what you are going through, just wanted to let you know I am thinking about you and the internet makes the world seem less lonely and less large
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  15. #570
    Join Date
    Feb 2012
    Location
    Milano (Italy)
    Posts
    43

    Default Re: Pictures of my back, the psychological and physical pain of living with kyphosis

    Quote Originally Posted by mark View Post
    Hi Alex

    As Gilly says, I really hope we can help with the friendship side of things, we certainly know what you are going through, just wanted to let you know I am thinking about you and the internet makes the world seem less lonely and less large
    Thanks to everyone. You are all special persons...i feel less alone certainly.
    Now i have another severe problem to my feet. i'm losing sensitivity to my soles and doctors think i could have a neuropathy from diabetes. They suspect i could have Charcot foot disease. Tomorrow i'll do an electromyography to my legs and feet.
    Alex

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •