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Thread: Pictures of my back, the psychological and physical pain of living with kyphosis

  1. #31
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    Mark, I am so impressed by your willingness to share your pictures so openly. You are not allowed to have any more negative thoughts about yourself. You are an amazing person.
    congenital scoliosis, thoracic fusion without instrumentation in 1974 (age 11mos), re-operated in 1975 (age 17mo.s) ~ lung volume 25-30%

  2. #32
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    Mark,

    I had no idea I truly hope something can be done to address your kyphosis. You don't want to leave it too long and have it deteriorate even further.
    I shall be telling this with a sigh..... Somewhere ages and ages hence: two roads diverged in a wood, and I --
    I took the one less traveled by,
    And that has made all the difference. - R. Frost

  3. #33
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    Christine,

    Your correction is AMAZING!!!!! Who did your surgery????
    I shall be telling this with a sigh..... Somewhere ages and ages hence: two roads diverged in a wood, and I --
    I took the one less traveled by,
    And that has made all the difference. - R. Frost

  4. #34
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    Mark,
    I truly appreciate what you are doing.
    I'm glad that someone is finally taking action and telling people not to ignore the issue.
    You are truly a brave person,
    Jamie



  5. #35
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    Originally posted by Sealy@Jan 20 2008, 03:35 AM
    Christine,

    Your correction is AMAZING!!!!! Who did your surgery????
    sealy, christine's surgery was done by Mr Harrison at the RNOH.
    Diagnosed in March 2001 by family GP after my mum noticed an asymmetry in my spine. Referred to a consultant at the RNOH, Stanmore and started attending consultations for x-rays twice a year. Prescribed a TLSO brace to be worn 16 hours per day. Began with double major curves at approx 48 degrees. Offered surgery in 2003 aged 16 and declined to continue with school. Requested surgery in 2005 instead. Had T11-L3 fused on 16th July 2005 and haven't looked back! Released for all activities in March 2006, having been driving and riding horses with consultant's permission since 7 weeks post op.

  6. #36
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    Thank you for sharing these.

  7. #37
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    Hi Christine

    Wow as like the others have said, what a fantastic correction you have. I hope the pain has started to subside and you can get back to living your normal life

    mark
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  8. #38
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    Your brave for posting these pictures and I look up to a man that wants to help out to prevent such things to happen. Salut for that...

    To me though Simon seems to know alot about a good Surgeon also an older man is here with severe Kyphoscoliosis and seems to do wonders with Schroth and has now a Kurbin Brace, so there are options for you to consider if you want to go that way... Good luck mate...

  9. #39
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    Mark you continue to amaze us with your bravery and desire to help others. You have more strength of character and decency than most people have in their little finger. Thank you for posting this.

    Christine, I am so excited to see your results. Seems like only yesterday you were about to go in. I hope the pain leaves you soon.

  10. #40
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    Going to the Docs on wednesday morning, hopefully get a referral to Mr Mike Gibson at the Freeman hospital in Newcastle, its only over the water and its the guy John first saw. I don't paticularly want to thave to travel all the Nottingham as its a pain to get to from this part of the country and John had good words to say about him.

    John if you get to reaad this post can you drop me a pm or an e mail, thanks mate

    mark
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  11. #41
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    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
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    Excellent, go for it Mark! I just found out how good it feels to find a consultant who really wants to help - the sheer relief is amazing. I really hope that this guy can help you, I'm sure that he will. Good luck PS you do know that you're gorgeous even if you have a wonky back, don't you? Love you xxxx
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  12. #42
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    Originally posted by mark@Mar 11 2008, 07:55 AM
    I don't paticularly want to thave to travel all the Nottingham as its a pain to get to from this part of the country and John had good words to say about him.
    I'm sure you'll get a positive response from Mr Gibson, it sounds as though he comes well recommended. But - just in case you need a second opinion - don't forget Sheffield isn't TOO far away!
    Me, a Mod? Nah ... I'll always be a rocker

  13. #43
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    don't forget Sheffield isn't TOO far away!
    Yup, and Mr Cole definitely knows his way around a pedicle subtraction osteotomy, even when doing it with an anterior rod in the way!!

    Anyway, hope it all goes ok with the referral
    Diagnosed at 15 with 50 curve, but probably juvenile IS. Fused in kyphosis (by non-specialised ortho) with a/p surgery T10-L2 @ 21, posterior only revision surgery to correct kyphosis @ 29. Now 38 with further revision surgery and extension of fusion to sacrum required to correct residual kyphosis, restore lordosis and address spinal stenosis.

  14. #44
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    Had a good chat with my GP, he is going to refer me to Mike Gibson at the Freeman hospital in Newcastle. I should recieve a letter shortly

    My journey starts again
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  15. #45
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    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
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    Fantastic Mark!
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

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