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Thread: Spinecor - 6 month review

  1. #1
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    Jan 1970
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    Hi, we have just returned from Immy's 6 month review with Ashley Cole & Andrew Mills. Fabulous news! Out of brace xray measured 27 or 25 degrees (depending on who you asked&#33. This is down from 38 degrees 6 months ago. Needless to say we are THRILLED. Spinecor is incredible. I wish every child had access to it. This does not mean that she WILL avoid surgery but that there is slightly more chance of avoiding it. At the least, the good news is that she won't need the op any time soon, therefore buying important growing time...

    (a very happy) Laura xx
    Mum of Imogen

  2. #2
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    Jan 1970
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    York, England
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    Aw that's great! She was soooo close to the surgery line. YIPEE!!!!!!!!! !!!

  3. #3
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    Jan 1970
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    Edmond,OK USA
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    Congratulations, I am so happy for all of you that the curve is actually being reduced. You're right that it might not prevent surgery but at least she will get in some good growth time. Good Job Mom.
    I am 61 years old and the resident SSO fossil. I live in Oklahoma,USA with my husband Allen. We have one daughter Jae and she has three kids.Our grandkids are: Aidan is8. He's the one pictured in my current avatar. Jenna Jean is 7 and Ryan Allen is just 4 It's full time chaos here! I was diagnosed in 1965 at 14 years with Kyphoscoliosis and 2 curves measuring 68 and 63 degrees. My last measurements were in 2004 at 155, 88 and 55+ degrees. I have never had surgery or bracing so I now am on full time oxygen and use a Non Invasive Ventilator at night. at night.

  4. #4
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    Cork,Ireland
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    That's wonderful to hear ! It's very encouraging to see how well she's doing.
    Sins
    Scoliosis Support Association Ireland

  5. #5
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    Jan 1970
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    379

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    Thats realy good news

  6. #6
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    Jan 1970
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    Sheffield, UK
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    Wow, that's what I call a result! Fantastic news that she will have more 'growing time', even if she does need surgery in the long run. I'm SO chuffed for you both



    Gilly xx
    Me, a Mod? Nah ... I'll always be a rocker

  7. #7
    Join Date
    Jan 1970
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    Salisbury, UK
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    4,482

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    Congratulations on the great update! I really like the concept of the Spinecor brace for mild to moderate curves. It has a lot of potential to get things going in the right direction while still allowing for good muscle tone and flexibility. Some curves are stubborn, of course, especially when there's a vertebral anomaly at the cause, but whenever possible I think Spinecor should be considered.
    congenital scoliosis, thoracic fusion without instrumentation in 1974 (age 11mos), re-operated in 1975 (age 17mo.s) ~ lung volume 25-30%

  8. #8
    Join Date
    Jan 1970
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    105

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    That's brilliant news Laura. Spinecor was obviously the right decision!
    Sam
    Mum to Megan who had surgery for a 50+ degree lumbar curve on 10/10/08. Fused T11 to L5, 2 rods, 14 screws. 3 years bracing but curve still progressed from 30 degrees. Consultant is Mr Bowden at the Nuffield Oxford.

  9. #9
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    Jan 1970
    Location
    Reading, Berkshire
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    119

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    Wow!!!

    What fantastic news Laura you must be so relieved.

    Love Nicki
    Mum to Lucy who is 13 years old and has idiopathic scoliosis. Lucy was diagnoised at 6 and a half and started wearing a brace when she was 9 and her curve was measuring 43 degrees. Lucy is under the care of Professor Fairbank at the Nuffield Orthopedic Centre in Oxford. Lucy has now had surgery (19 March 2010) to correct her scoliosis after her curve reached 69 degrees, she has been fused from T3 to L3 and had a costoplasty at the same time. The results are fantastic and has gained 3 inches in height as a result.

  10. #10
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    Jan 1970
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    Congratz!!

    Can u say to me ( not english ppl ) what is Spinecor ??

  11. #11
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    Spinecor is a type of brace Arthur, only instead of being rigid, it uses flexible bands which wrap around the body to hold the curve stable - and even offer some correction in some cases too! I'm afraid my description is a bit poor as I have no first-hand experience of braces, but I'm sure the others will come on to explain it better to you!
    Me, a Mod? Nah ... I'll always be a rocker

  12. #12
    Join Date
    Jan 1970
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    273

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    Arthur, Gilly's description was perfect. You could have a look on their website - www.spinecorporation.com. Spinecor is generally used for pre-adolescent children with smallish curves, however I have heard of older people using it for pain management. It is not a miracle cure - nothing is - but I strongly believe that it offers the best option for many children. I think it's a terrible shame that it's not well known in this country; We only found out about it through the NSF forum and we met a lot of hostility from various people when we expressed an interest in trying it out.

    There are two other members of this forum who have daughters wearing Spinecor, anyone wanting to know more, please pm me!

    Laura
    Mum of Imogen

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