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Thread: Kyphosis Links

  1. #16
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    Originally posted by marmyte@Nov 4 2005, 11:04 AM
    ok i currently don't have my advice sheets scanned in, but it would only take me two minutes. if any mods/admins think it appropriate, i can spend all afternoon getting my dense brain to figure out how to post them to the downloads section
    Yes load it up Becky any information that can help members with post operative recovery is really useful
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  2. #17
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    Good site Mark, you're doing plenty of research! Nice one.

  3. #18
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    neither sins or i can load it up mark but we're working on it
    Diagnosed in March 2001 by family GP after my mum noticed an asymmetry in my spine. Referred to a consultant at the RNOH, Stanmore and started attending consultations for x-rays twice a year. Prescribed a TLSO brace to be worn 16 hours per day. Began with double major curves at approx 48 degrees. Offered surgery in 2003 aged 16 and declined to continue with school. Requested surgery in 2005 instead. Had T11-L3 fused on 16th July 2005 and haven't looked back! Released for all activities in March 2006, having been driving and riding horses with consultant's permission since 7 weeks post op.

  4. #19
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    Yes you are correct Becky - I was told that I couldn't drive because of the emergency stop issue. They are being really strict about it aswell because whenI went to see my GP the other week she read out the letter that my consultant had sent her. It said that "joanna is strictly not allowed to drive swim or exercise".

    I think once I am back in for my next consultant appointment in January that they might lift some of the restrictions.

    How have you found driving again Becky?

  5. #20
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    like i said above, not too bad. i think one of the best things to do is not put too much pressure on yourself and just attempt short journeys at first, and if you need to go far, make sure there are places you can stop and/or you have someone with you who can take over (or have an alternative means of getting home) my consultant told me no hideously long drives when i was first allowed to drive again. two weeks ago i drove from sussex to nottingham and back (i think it's about 200 miles?) in 48 hours and that was ok, but at that point i was 14 weeks post op and had been driving around for a little while. i'm at the point again where i can drive without thinking about it. like i said, handbrake and looking over my shoulder for extended periods (rather than just a split second glance) were the problems for me
    Diagnosed in March 2001 by family GP after my mum noticed an asymmetry in my spine. Referred to a consultant at the RNOH, Stanmore and started attending consultations for x-rays twice a year. Prescribed a TLSO brace to be worn 16 hours per day. Began with double major curves at approx 48 degrees. Offered surgery in 2003 aged 16 and declined to continue with school. Requested surgery in 2005 instead. Had T11-L3 fused on 16th July 2005 and haven't looked back! Released for all activities in March 2006, having been driving and riding horses with consultant's permission since 7 weeks post op.

  6. #21
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    Even driving an automatic transmission and not having to worry about all that manual transmission stuff, I didn't drive for about two months. Just wasn't comfortable turning my head quickly to check blind spots, etc (My fusion went up to T2)... The surgeon told me I could drive when I was off of narcotic pain medication (Which for me was before a 2 week checkup). The nurses in his practice told me they'd wring my neck if I drove that soon. :-P

  7. #22
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    my parents would have ensured i was not a healthy person if i'd done anything "too soon" :P ah manual's easy when you know how
    Diagnosed in March 2001 by family GP after my mum noticed an asymmetry in my spine. Referred to a consultant at the RNOH, Stanmore and started attending consultations for x-rays twice a year. Prescribed a TLSO brace to be worn 16 hours per day. Began with double major curves at approx 48 degrees. Offered surgery in 2003 aged 16 and declined to continue with school. Requested surgery in 2005 instead. Had T11-L3 fused on 16th July 2005 and haven't looked back! Released for all activities in March 2006, having been driving and riding horses with consultant's permission since 7 weeks post op.

  8. #23
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    Originally posted by marmyte@Nov 4 2005, 01:06 PM
    neither sins or i can load it up mark but we're working on it
    Good luck with it
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  9. #24
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    I was always confused about why I wasn't allowed NSAIDs I think they explained it to me but I obviously didn't absorb anything. I blame it on the morphine. Anyone know anything?

  10. #25
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    Many NSAIDs interfere with the development of a fusion, so they're really not a good idea. QMC will prescribe you a certain amount of diclofenac to aid your pain control while you are in hospital, but it's still limited and is only supplemental the the opiates - paracetamol is preferred for breakthrough pain and supplemental relief, because it does not affect fusion at all.
    Diagnosed at 15 with 50 curve, but probably juvenile IS. Fused in kyphosis (by non-specialised ortho) with a/p surgery T10-L2 @ 21, posterior only revision surgery to correct kyphosis @ 29. Now 38 with further revision surgery and extension of fusion to sacrum required to correct residual kyphosis, restore lordosis and address spinal stenosis.

  11. #26
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    Oh, ok! Thanks titch.

  12. #27
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    http://www.scoliosislinks.com

    Here is another useful link. This is a website written by a neighbor in California who had surgery. Theres more detail lists of what to bring to the hospital etc.

    I have not received my book yet but I will definitely will give a review on it

    Christina

  13. #28
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    Thats a useful website Christina i have used its links. I look forward to reading your review
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  14. #29
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    Maybe its like a disclaimer

    "Those who enter, enter at your own risk"
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

  15. #30
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    discussion on the merits of physical therapy

    Physio
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


    Mark's a groovin an a movin

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