Re: How can I help Nicol?
Hi there. I can relate to the weight issues. Maddy was skeletal after surgery and had no appetite. No amount of parental anxiety will help, in fact it hindered our situation as we got stressy with each other. She nibbled biscuits for a while. Then I think the turning point came when she said she fancied pancakes, she ate them for days! Then she fancied Dominos pizza, I even let her have the leftovers for breakfast! Once she was eating I made a pact with her that she could eat what she wanted as long as she had one main meal a day that I cooked and that included vegetables! It took at least 18 months before she stopped looking skinny and 2.5 years until she became an acceptable weight. Its a long haul but you will get there.
Mum to Maddy aged 14. Maddy is a patient at Great Ormond Street Hospital and had a growth rod inserted in November 2007. In March 2011 the growth rod was removed because the curve became too strong. In May 2011 Maddy had anterior release, 2 weeks traction on a Stryker Frame and then spinal fusion.