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Thread: Magnetic Rods/Delay in getting surgery and associated risks/complicatins

  1. #1
    Join Date
    Dec 2013
    Location
    Ireland
    Posts
    20

    Default Magnetic Rods/Delay in getting surgery and associated risks/complicatins

    Hi everybody,
    My daughter who is 12 shortly is on a waiting list for magnetic growing rods at Crumlin Hospital and we have being informed that her curvature is now at 74 degrees.

    Due to long waiting lists at the hospital her surgery could be delayed till November/December 14 or later.

    Can anyone explain to us the risks/complications associated with this delay. Any information would be very much appreciated.

    We are now considering getting a second opinion from Dr. Noordeen and costs associated with getting surgery done in the UK.

    Also has anyone had surgery done by Dr. Noordeen for growing rods?

    Any advice is most appreciated.
    Lorraine

  2. #2
    Join Date
    Nov 2012
    Location
    South London
    Posts
    991

    Default Re: Magnetic Rods/Delay in getting surgery and associated risks/complicatins

    Hi Lorraine,

    I dont know anything about that Magnetic rods im afraid, but from what i have heard and kind of remember (memory is terrible) about Mr Noordeen is that he is a respected surgeon and a few people on here are under his care from what i remember, hopefully they'll come around soon and give you some advice.

    All the best,
    Jay
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  3. #3
    Join Date
    Dec 2013
    Location
    Ireland
    Posts
    20

    Default Re: Magnetic Rods/Delay in getting surgery and associated risks/complicatins

    Jay, sincere thanks for your reply. Lorraine

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