Re: Magnetic Rods - Delay in Treatment- Risks/Complications
If you are getting a second opinion Mr Noordeen is your man. My daughter used to be under him at GOSH. He is a lovely man, very easy to talk to, answers all your questions and (most importantly) has the most experience of magnetic rods in the UK.
Is your daughter particularly small for her age? 12 seems old for any type of growing rod in girls as doctors tend to want girls fused before then. My daughter was 10 years 11 months when she was fused. She had the traditional growing rods prior to that as the magnetic ones were still being developed when she started her journey.
In terms of complications of delaying, these would be individual to the child so it is hard to generalise. As a 7 year old my daughter's curve was very flexible but as a 10 year old it had gone stiff. One thing I do know is you should trust your instincts as a mother. Pursue all avenues until you find a consultant you trust and whose treatment plan you feel happy with. That's what we did and it involved changing hospitals/consultants.
Best wishes to you on your journey.
Mum to Maddy aged 15. Maddy is a patient at Great Ormond Street Hospital and had a growth rod inserted in November 2007. In March 2011 the growth rod was removed because the curve became too strong. In May 2011 Maddy had anterior release, 2 weeks traction on a Stryker Frame and then spinal fusion.