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Thread: help! need advice

  1. #1
    Join Date
    Apr 2013
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    Default help! need advice

    hi guys i havnt been on here for a long time, i remember gilly and toni bunny so big hello to you all.
    ok advice needed im fused from t3 to l4 4yrs post op,all great untill about a year ago and now gradually getting worse last mri showed degeneration of discs at l4 and l5 and a disc bulge but no obvious signs of root compression,i have a apt booked for 22nd july last seen a year ago, so im in agony canot sit for long or stand,or walk very far ,pains in hips and pelvis,legs just dont seem to want to work i carnt straighten up after sitting,i have been like this for a year now and have had enough, tried lots of pain meds im now on tramadol i only take one a day been on them for two weeks ,they were good at first i could actually run upstairs,but now they are not so good and i dont want to start taking the 4 a day i was prescibed as they make me sick and tired i have two children to look after so anything making me drowsy is not good, any ideas of what might be happening ,has anyone had problems with the unfused lumber area? and will that need fusing too? i just want to try and get back to normal again . hope you are all well !

  2. #2
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    Default Re: help! need advice

    Hello and welcome. sorry to hear about this, as it sounds really horrible. I cant really help with advice and things like that, as i dont know enough about degeneration but i have heard of others with this problem before on here, so someone will hopefully come along soon and give you advice on this all
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  3. #3
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    Default Re: help! need advice

    thanks , im sure someone on here has had simular problems and will have some advice

  4. #4
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    Default Re: help! need advice

    I was fused to L5 from the beginning, so I only have the disc between L5 and S1 left! Thankfully (fingers crossed) it's holding up at the moment and I'm now almost 9 years out from my original surgery. I did, however, have a problem with the fusion at L3 which caused my rods to break and I had to have an osteotomy and the bottom sections replaced.
    Me, a Mod? Nah ... I'll always be a rocker

  5. #5
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    Default Re: help! need advice

    Sorry to go off topic, but GillyG - can titanium rods break? Really? I thought they were invincible. Anyway, back on topic, I'm sorry I don't have answers for you but I hope you come across someone who can help you, and that you can get this sorted and be pain free asap
    I'm 44, I had a scoliosis: thoracic at 49 degrees, lumbar 47 with severe rib rotation. My surgery took place on 28th March 2014, I have 26 screws and 2 titanium rods.

  6. #6
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    Default Re: help! need advice

    thanks lucy ! yes i think they can snap, but dont take my word for it

  7. #7
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    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
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    Default Re: help! need advice

    Rods may break if there is an area of non-union of the fused area of the spine, because the micro-movements caused by this non-union puts tiny amounts of stress of the rod which can eventually lead to metal fatigue. This is rare but it does happen. It was more common with the old-style Harrington Rods as they were only attached to the spine at he ends of the rod so weren't as secure as modern instrumentation (this is why Harrington patients always wore casts or braces post-op, until their fusion was looking secure).
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  8. #8
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    Default Re: help! need advice

    wow - isn't this forum awesome? This community and the wealth of knowledge on here is brilliant. I am so glad I found you all
    I'm 44, I had a scoliosis: thoracic at 49 degrees, lumbar 47 with severe rib rotation. My surgery took place on 28th March 2014, I have 26 screws and 2 titanium rods.

  9. #9
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    Default Re: help! need advice

    I've replied to your thread Lucie, giving you the history of my crazy rod breakages
    Me, a Mod? Nah ... I'll always be a rocker

  10. #10
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    Default Re: help! need advice

    I'm sorry I can't offer any advice Lisa-Lou, other than maybe trying other medications with the Tramaol but, I just wanted to say I'm sorry you're in so much pain
    Born 1981 with Spina Bifida Myelomeningocele. Surgery to close lesion at birth. Anterior fusion T11-L5 aged 12. Laminectomy June 06. Posterior fusion with instrumenation T8-T11. Degenerative Disc C4/C5

    Under the care of Jeremy Fairbank.

  11. #11
    Join Date
    Apr 2013
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    Default Re: help! need advice

    Thanks Ali.....i find the tramadol really strong they make me sleepy , i think if i take anything as well il be asleep allday

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