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Thread: I need further surgery

  1. #16
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    Default Re: I need further surgery

    Hi Kay

    Thanks for the kind words

    Take care

    Mark
    Latitude: 54° 57' 34" N Longitude: 1° 25' 16" W


    Mark's a groovin an a movin

  2. #17
    Join Date
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    Default Re: I need further surgery

    Well I made the call to my surgeons secretary and I'm on the list

    She couldn't tell me when or how long I have to wait

    Back on the rollercoaster folks

    Thanks for all the support

    Take care

    Mark
    Latitude: 54° 57' 34" N Longitude: 1° 25' 16" W


    Mark's a groovin an a movin

  3. #18
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    Cork Ireland
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    4,731

    Default Re: I need further surgery

    Well Mark you have taking the first brave step, well done. I do hope you won't be waiting too long. Sending you lots of love, XXX

  4. #19
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
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    Default Re: I need further surgery

    Thinking of you darling bro, I hope you don't have to wait too long xx
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  5. #20
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    Sheffield, UK
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    Default Re: I need further surgery

    Good for you Marky
    Me, a Mod? Nah ... I'll always be a rocker

  6. #21
    Join Date
    Dec 2012
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    Reno, Nevada USA
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    Default Re: I need further surgery

    The rollercoaster...ohhh boy.

    There are some great rollercoaster vids on you tube to pass the time, and much safer for the neck!

    This one is a guaranteed neck wrecker......

    http://www.youtube.com/watch?v=9hjHQ9aZT80

    Hang in there

    Ed

    55 yr old male
    T70 L70 double trouble
    A/P T2-Pelvis BMP Jan 2008

  7. #22
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    South London
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    Default Re: I need further surgery

    Great to hear Mark! Hope you manage to get a date soon
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  8. #23
    Join Date
    Dec 2012
    Location
    Reno, Nevada USA
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    Default Re: I need further surgery

    Wow Jay, I hope you didn’t watch that video, your too early! He he

    Jay: “Doc, I trashed my neck”
    Doc: “What did you do?”
    Jay: “I watched Ti-Ed’s rollercoaster video on You Tube”
    Doc:” Jay, I didn’t release you for You Tube”

    Ed

    55 yr old male
    T70 L70 double trouble
    A/P T2-Pelvis BMP Jan 2008

  9. #24
    Join Date
    Jan 1970
    Location
    Sheffield, UK
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    Default Re: I need further surgery

    Quote Originally Posted by Rod Stewart View Post
    Jay: “Doc, I trashed my neck”
    Doc: “What did you do?”
    Jay: “I watched Ti-Ed’s rollercoaster video on You Tube”
    Doc:” Jay, I didn’t release you for You Tube”
    Me, a Mod? Nah ... I'll always be a rocker

  10. #25
    Join Date
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    Default Re: I need further surgery

    Quote Originally Posted by Rod Stewart View Post
    Wow Jay, I hope you didn’t watch that video, your too early! He he

    Jay: “Doc, I trashed my neck”
    Doc: “What did you do?”
    Jay: “I watched Ti-Ed’s rollercoaster video on You Tube”
    Doc:” Jay, I didn’t release you for You Tube”

    Ed
    Love this! made me smile. and yes, i did watch it
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  11. #26
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    Jan 1970
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    UK
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    2,544

    Default Re: I need further surgery

    Dear Mark,
    I hope you dont have too long to wait for surgery. Your surgeon sounds like a caring person. You so deserve a great outcome and I am sending loads of good vibes up to you.
    take care.
    xxx

  12. #27
    Join Date
    Jan 1970
    Location
    South Shields via Bradford
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    Default Re: I need further surgery

    Hi All

    Thanks for the well wishes,

    Cassie - How are things with your pain, I hope they have managed to get things under control

    Toni - How's me little sister, It if it wasn't for meeting you all those years ago I wouldn't be where I am now, I owe you so much

    Gilly - Its about time I came down to Sheffield to visit, it's been too long

    Rod Stewart - You make me laugh dude, keep on keeping on

    Mary - I hope things are well in your life and you have managed to get your pain under control, you truly are one of lifes inspirations

    Jay - Hope things are well with you dude, rest easy and take your time recovering

    Take care everyone

    Mark
    Latitude: 54° 57' 34" N Longitude: 1° 25' 16" W


    Mark's a groovin an a movin

  13. #28
    Join Date
    Jan 2011
    Location
    London
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    Default Re: I need further surgery

    Hi mark sorry not been I touch a lot going on. So pleased you are on the list get your pain sorted out eventually. Will give you a call soon catch up sue x

  14. #29
    Join Date
    Jan 2011
    Location
    Bristol
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    297

    Default Re: I need further surgery

    Hey Mark, I'm sorry to hear you have to undergo further surgery but on a more positive note if it helps your daily pain and gives you a fuller and happier life it'll be more than worth it!
    You're an awesome and brave man, you'll blitz it!

    Hugs,
    Sam xx
    Currently awaiting my surgery date to correct my kyphoscoliosis and other congenital spinal abnomalies

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