Re: Mr Tucker resigning from Stanmore! :-(
Oh Burdle I can see why you are so worried. Hopefully you will be able to insist on seeing Mr Tucker (if only briefly) on 9th July and put this question to him - if he isn't around to operate on you, who could? If you see one of his team, make them go and ask him there and then if they won't let you see him. You need answers and it wouldn't take him more than a minute to provide them.
Luckily you can now insist on seeing any consultant in the country. In the absence of Mr Tucker, I would be confident in Mr Cole or Mr Grevitt. Mr Davies in Southampton is pretty willing to take on difficult cases and do innovative stuff but I don't know whether he does surgeries in adults. Bluestone's surgeon Mr Ahmed at Stoke sounds like a great chap too.
The NHS is in a mess right now, and even the surgeons are getting very frustrated because of funding cuts. I was talking to Jan Lehovsky's old SHO last week and he said that a lot of his colleagues are getting out of the NHS as it has become so difficult to work within it. Many surgeons do genuinely care though; this is something that has been very apparent in the Complex Spinal Surgery group that myself and Gilly belong to (we have monthly meetings with them, and the group also includes scoliosis surgeons from around the country). More than once I have heard them say " look, if this was your family member, how would you want them to be treated?". I will feed back at the next meeting that there is a worry amongst the patient base that adults are not able to access surgeries that they need due to an apparent lack of expertise or willingness to take cases on, and see what they say. In my experience they have been very very good at actually listening to us as patient reps rather than fobbing us off.
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.