Re: Surgery next Thursday
Hi there Daniel, welcome to SSO
One of our mods, Ali, also has SB and uses a wheelchair. She's had surgery - hopefully she'll be along to chat to you soon do you know which vertebrae you are having fused? From what you've said, I'm assuming it will be something like T1 down to S1 or into the pelvis with pelvic anchor instrumentation. That is a really long fusion; has your surgeon said whether it will impact your ability to do your sports? Obviously this is very important to you, so it's important that you discuss this with him. Once you've had a fusion you can't bend or twist your spine, and whilst that doesn't necessarily prevent a mobile person from doing sports it might make things different for you. I'm glad you're happy with your new surgeon, that is really good news!
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.