Page 1 of 7 123 ... LastLast
Results 1 to 15 of 95

Thread: More surgery Thursday!

  1. #1
    Join Date
    Nov 2012
    Location
    South London
    Posts
    992

    Default More surgery Thursday!

    So im going to be having more surgery this Thursday. Nothing has gone wrong thankfully but this time it is to go in via the front of my neck and to graft a block of bone there to make it stronger than it is and to make sure that it holds first time round and so that i wont need even more surgery later on because things havent taken well. All come pretty quickly though as it was booked last week. The only thing that will mean it doesnt go ahead is that theres no ITU bed available for me due to where and whats being done.

    Will update you when i can
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  2. #2
    Join Date
    Jan 1970
    Location
    Kent, SE England
    Posts
    3,147

    Default Re: More surgery Thursday!

    Oh my! Sorry you have to have more surgery Jay, but glad to hear nothing is wrong and I guess it makes sense to get it all out of the way in one go! Hope they find a bed for you and it all goes well
    Diagnosed with adolescent idiopathic scoliosis on the 10th April 2007. Seen at the Child Development Centre at the Medway Maritime Hospital on 18th June then referred to Mr Noordeen at the RNOH Stanmore. Seen by consultant on the 13th July x-rays revealed 77o thoracolumbar curve and severe rotation. Surgery planned in 6 months had surgery on 26th November 2007. Admitted for pre-op on 23rd stayed in over the weekend. Curve then 90o, suffering from pain and reduced lung function. Moved from HDU to ward after 24hrs, then into isolation for suspected infection after 3 days. Symptoms turned out to be a bad reaction to antibiotics.

  3. #3
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
    Join Date
    Jan 1970
    Posts
    15,423

    Default Re: More surgery Thursday!

    Ooof Jay, I hope this didnt come as too much of a shock for you when they said that's what they wanted to do! It sounds like a good plan though and it's a much smaller surgery so you prob won't notice any extra pain/inconvenience as you are recovering from the fusion anyway, but we'll all be thinking of you again
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  4. #4
    Join Date
    Jan 1970
    Location
    Sheffield, UK
    Posts
    16,238

    Default Re: More surgery Thursday!

    Hope all goes yo plan Jay, good luck!!
    Me, a Mod? Nah ... I'll always be a rocker

  5. #5
    Join Date
    Jul 2008
    Location
    west midlands
    Posts
    4,383

    Default Re: More surgery Thursday!

    Gosh your so brave to face more surgery already!
    I'm sure it won't be as bad as what you've already been through though, wishing you all the best
    Thoracic 72 degrees, lumber 30 degrees-fused aged 44, T2-L4, posterior fusion with costoplasty (8 ribs were chopped) on 3/11/10 under the care of Mr Ahmed at North Staffs Hospital. Now nice and straight

  6. #6
    Join Date
    Jul 2009
    Location
    Sussex
    Posts
    706

    Default Re: More surgery Thursday!

    Hope all goes well - well done for such a positive attitude
    Burdle -

  7. #7
    Join Date
    Jan 1970
    Location
    London
    Posts
    2,360

    Default Re: More surgery Thursday!

    Fingers crossed on the bed for you, I hate that system as it's a constant worry til the day but I understand their reasons.

    Best of luck with everything, I guess you don't have time to build up any nerves!

  8. #8
    Join Date
    Nov 2012
    Location
    South London
    Posts
    992

    Default Re: More surgery Thursday!

    Thanks very much for all the support guys, really means a lot

    Toni- I knew for a while that they wanted to stabalise my neck, but when he was telling me and then when he drew up a diagram of what he wanted to do, thats when i shocked me, as I just imagined something like before just packing in bone. But its pretty complicated what he wants to do, but i have every faith that he will do a grand job, as from what he did with my fusion is amazing and better than i could ever imagine so im sure he'll do the same here. But this wont give me anymore height, which im not bothered about, just think of it as a bracing agent thing, to try and stop it bouncing as much (I hope that makes sense). I'm hoping that with it being smaller it will be less painful, but it depends as my neck got pretty sore after the fusion surgery, so im prepared for that again.

    Bluestone- to tell the truth, I'm not ready for more, but im just going with it to get it all out the way, and so that I can get on and get my life back on track ASAP, as im bored of just being at home all the time. As i need a job and i want to study some more too, so i dont want to waste more time than necessary and as im still healing from the first fusion, it makes sense to just get it all out the way with one hit so i heal pretty much at the same time from both than waiting 3 months to heal up from the posterior fusion to the have the anterior neck fusion. But i know i'll be able to get through it as its a much smaller op

    Burdle- i always try and have one as it really helps getting through this. but at first i really didnt like the fact that i was going to have it so soon after, i very nearly phoned them up after i had said yes to the date, because i didnt think i was ready, but who ever is ready to have more surgery after 3 weeks of a major one?! But after speaking to my parents i just decided to go with the flow and go with it as knowing me i'd just keep pushing it back.

    GloomCookie- The ICU bed is the is the major bit of it, but its all understandable if one isnt avaliable as being at a major trauma hospital theres a possibility one wont be there for me. So i could be turned away on the day, which i really dont want but these things happen as i wont be the first to have that happen to as many here have had it happen to them before.

    And another thing, how rare is it to come out of the fusion with a partially collapsed lung? As it happened to me, (found out yesterday) which is probably the cause of the issues with my breathing when trying to bring me around. And so i had to have a chest xray to make sure it was inflated again, as if it isn't (im sure it is as i dont have trouble or pain when breathing) it wont go ahead for the obvious reasons.
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  9. #9
    Join Date
    Oct 2010
    Location
    Ukiah California
    Posts
    211

    Default Re: More surgery Thursday!

    Good luck jay your a stong young man
    Kara
    22 years old
    Posterior Spinal Fusion March 10,2010
    Foot Surgery November 25,2014




  10. #10
    Join Date
    Sep 2012
    Location
    South Wales, UK
    Posts
    121

    Default Re: More surgery Thursday!

    Wishing you the very best for your surgery Jay - stay strong
    I'm 44, I had a scoliosis: thoracic at 49 degrees, lumbar 47 with severe rib rotation. My surgery took place on 28th March 2014, I have 26 screws and 2 titanium rods.

  11. #11
    Join Date
    Nov 2012
    Location
    South London
    Posts
    992

    Default Re: More surgery Thursday!

    Thanks Kara and Lucie
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  12. #12
    Join Date
    Dec 2012
    Location
    Reno, Nevada USA
    Posts
    238

    Default Re: More surgery Thursday!

    I hope Im not too late Jay, wishing all the best.

    Looking for your report

    Ed

    55 yr old male
    T70 L70 double trouble
    A/P T2-Pelvis BMP Jan 2008

  13. #13
    Join Date
    Jan 1970
    Location
    Weird Wiltshire
    Posts
    9,030

    Default Re: More surgery Thursday!

    As soon as I got to the bit where you said about the bouncing, I think that confirms what I had been going to say, which is that for fusion to the sacrum to take, they've discovered that they pretty much have to take out the L5-S1, and often the L4-5 discs because otherwise there is just too much bounce in the spine, so you are much more likely to get a pseudoarthrosis (failure to fuse) and this can then often lead to hardware failure. I was going to say that I could easily imagine it is the same with the neck, and it appears this is the consideration.

    I know it has to be daunting to be heading in for more so soon, but as you've said, it gets it out of the way and lets you get on with your life again, so fingers crossed there is a bed and it can go ahead
    Diagnosed at 15 with 50 curve, but probably juvenile IS. Fused in kyphosis (by non-specialised ortho) with a/p surgery T10-L2 @ 21, posterior only revision surgery to correct kyphosis @ 29. Now 38 with further revision surgery and extension of fusion to sacrum required to correct residual kyphosis, restore lordosis and address spinal stenosis.

  14. #14
    Join Date
    Nov 2012
    Location
    South London
    Posts
    992

    Default Re: More surgery Thursday!

    That is the case, but also because of my NF my bones aren't as strong as others. But thanks for that input titch has helped understand more why it was done

    But they had a bed for me in the ICU and it all went ahead. It was another 8 hour surgery, but that's because Mr Bernard was taking his time with the whole thing and didn't want to rush and do something to my airways. I also had a bone graft from my hip this time which is very painful if I move, pain relief takes some ofbot away but not all. Swallowing also hurts but that's to be expected as it was from the front right near my voice box, but that should all go down in a few weeks so I mainly eat soft foods, ice cream I've found to be the bwxt as it sothes my throut at the same time walking again will be hard though as I can't out pressure on my right leg as that's where the graft was taken, but I'm sure the physios will sort me some crutches to bare the weight again until I'm able to put weight on it all

    Oh yeah and I've been up on the ward since 3pm.

    Will update again when I can
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half! By the wonderful and amazing, Mr Bernard. And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  15. #15
    Join Date
    Mar 2013
    Posts
    53

    Default Re: More surgery Thursday!

    Oh goodness you really have been through it, hope you can really start to get on with your recovery now!
    Laura x

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •