Page 7 of 7 FirstFirst ... 567
Results 91 to 94 of 94

Thread: Introduction- Surgery in 3 days

  1. #91
    Join Date
    Nov 2012
    Location
    South London
    Posts
    1,136

    Default Re: Introduction- Surgery in 3 days

    I am already in the process of applying for it. Just waiting to hear back from them of what i can get. Although it isn't to do with my back, but i could see if i can get a screen with it, as i'll be using it for everything due to my dyslexia, so will be at a computer a lot more than the standard student... So it might warrant a screen, but if not I'll look on Amazon to find a decent one. But i do already have a decent desk chair, which I'm planning on taking with me at some point if the one supplied isn't good enough.
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half by the amazing, Mr Bernard.
    And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

  2. #92
    Join Date
    Jan 1970
    Location
    Weird Wiltshire
    Posts
    9,243

    Default Re: Introduction- Surgery in 3 days

    Definitely do see what they can do to help. If you're going to be in halls, you should also contact your university and ask to speak to their disability bods, because they should be able to do things such as making sure you have a good quality mattress, and they may also have different chairs available, which would save you from having to lug yours across
    Diagnosed at 15 with 50 curve, but probably juvenile IS. Fused in kyphosis (by non-specialised ortho) with a/p surgery T10-L2 @ 21, posterior only revision surgery to correct kyphosis @ 29. Now 38 with further revision surgery and extension of fusion to sacrum required to correct residual kyphosis, restore lordosis and address spinal stenosis.

  3. #93
    Join Date
    May 2014
    Location
    Texas
    Posts
    53

    Default Re: Introduction- Surgery in 3 days

    Quote Originally Posted by titch View Post
    I ended up taking something of a hiatus due to having another child, so I wasn't around when you had your surgery, but it's really great to hear how well you're doing

    Computer work always does have the potential to cause problems There are quite a few things that you can do to help though, such as making sure your seat fits you well and is at the right height (and with a foot support if necessary), having your monitor at the correct distance and height (and this isn't necessarily quite the same for us as it is for non-fused people - they generally recommend that the monitor be tilted outward at the bottom, and with the top of it in line with your eyes as you sit in a natural posture with your head looking slightly down - however, what works best for me is to have my eyes in line with the two thirds line, and the monitor vertical to reduce glare!), and using appropriate peripherals - if you don't already use one, a tablet and pen can make a huge difference for doing some things, and I wouldn't be without my ergonomic keyboard for anything. I don't currently have one, but found that my old vertical mouse was good for doing general work with, such as surfing and documents and the like.

    Anyway, very belatedly from me, and I'll look forward to seeing your xrays
    Thank you very much titch! I've seen your posts around the site, it's nice to officially meet you! We do use a pen/tablet combination for 2d work, but I usually just stick with a mouse for most 3d. One of the guys at work puts me to shame with his workstation, he has it completely decked out with a ball chair, hand-fitted keyboard, wrist braces and lift for his tablet monitor.

    HAYLEY! Great to hear from you again! I'm afraid to say I forgot about you being around, but it is great to hear things are going to plan sounds like you are doing fantastically in the recovery front too, seems like we are on the same pace of recovery too, as i've also just started doing a bit more sporty things and without pain (albeit without the consent of my surgeon... so im being diligent :P) Fantastic to hear about the apprenticeship as well, sounds like a fun thing

    Like you and titch, i have issue when at the computer for 5 hours plus a day, but what really has helped is a good computer chair which makes long stints at my desk much more bearable. But i need to do something about my screen, as my neck feels it after a while, but looking into something to help, maybe a screen raiser and also a plug in key board so i can type when its sitting on something high, so this could be something to help you too,
    Jay!!!! I know, It's been too long. I have dropped by a few times over the months to check up on things, but haven't posted. I was upset to hear about tonibunny- we only spoke a couple of times, but she was such a fixture here.
    That's great to hear that you're getting back to your sports! Have you done any cycling? I haven't done a heck of a lot physically, the bellydancing is pretty recent and it's light so far. Regarding the computer- sounds like you're doing a good job of scouting out the right equipment. I'm definitely looking into a screen lift like the guy I was mentioning at work. Those of us with high fusions need to watch our necks as the years go by!

    Hayley, there you are......I knew you would chime in at the 1 year mark. It’s a milestone....

    And it sounds like you are doing well, which is good..

    I didn’t know they had full fusion belly dancing classes? I have heard of full fusion hula hooping classes, but was way too afraid to sign up. I wouldn’t want to “throw something out” you know?.....even if there isn’t much left on me to throw out. (Scoliosis forum humor) He he I’m not sure if the British posters know or use that expression when a spinal disc herniates or a level slips. Funny how much incorrect slang is used when talking about the spine.

    You must feel pretty good about getting all this behind you now....

    Congratulations...

    Ed
    It is indeed, Ed! Good to see you again

    It's actually a normal bellydancing class- one of the girls at work is a pro so she organized it with the CEOs. She knows I have a fusion though, so she's always asking me if I'm feeling ok with the current move. I know what I should and shouldn't be doing, so if there's a crazy warm-up stretch I'll just substitute something else.

    Haha- I was never that into hula hooping, even as a kid- it's cool that they have all these classes for fused spines though!

    It's great to get back in touch with everybody. I don't have my X-rays yet, but here's a view of the back/scar. I've probably settled a bit, with the muscles relaxing over the months, but nothing drastic. I've been back to my pre-surgery weight for awhile now, and I think the scar's looking pretty faded.



  4. #94
    Join Date
    Nov 2012
    Location
    South London
    Posts
    1,136

    Default Re: Introduction- Surgery in 3 days

    Quote Originally Posted by HayleyM View Post


    Jay!!!! I know, It's been too long. I have dropped by a few times over the months to check up on things, but haven't posted. I was upset to hear about tonibunny- we only spoke a couple of times, but she was such a fixture here.
    That's great to hear that you're getting back to your sports! Have you done any cycling? I haven't done a heck of a lot physically, the bellydancing is pretty recent and it's light so far. Regarding the computer- sounds like you're doing a good job of scouting out the right equipment. I'm definitely looking into a screen lift like the guy I was mentioning at work. Those of us with high fusions need to watch our necks as the years go by!


    It was a real shock to all of us, she is deeply missed around here.

    Yes, I'm surprised that im able to do them and without pain, considering a year before i could barely walk 10 feet! But then a week after that i was walking huge amounts as you may remember... But cycling is one thing i havent done. My bike isnt suitable for me right now, due to it being a road racer with very low handle bars, so they need sorting first, but im thinking of getting something different so im a bit more relaxed on it so i take the strain off of my back and neck, mainly the old neck due to having limited movement in it due to my fusion going to C5. But i really cannot wait to get on one again, really miss cycling!

    But its great to hear about the belly dancing, bet it requires a lot of effort and strength, possibly more than you realise. You should be able to pick one up from Ikea for not a huge amount, would say no more than $20 (just a guess though) But we sure do.
    Diagnosed at 14 in '08 with Neuromuscular Kyposcoliosis (due to my Neurofibromatosis Type 1) in the Thoraco-lumber region (T-65* L60*).
    Halo traction for a week then I had surgery 08/05/14, fused C5-T12 correcting curves by about half by the amazing, Mr Bernard.
    And then an Anterior Iliac Strut graft in my neck/ chest on the 05/06/14

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •