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Thread: Flatback Sydrome surgery - super scared

  1. #1
    Join Date
    May 2014
    Posts
    1

    Default Flatback Sydrome surgery - super scared

    I have Harrington rods that were put in 36 years ago.
    Now I'm having lower back pain, shooting pain hip to hip, soreness in thighs and in butt and some loss of strength on left side.
    I do not lean forward yet.
    It seems that surgery to correct this so serious and risky doing a 6 hour anterior surgery cutting part of my rod to fix the L4 part and the 1 day later go back into the front and fix the spaces between two vertebrae and then get flipped over to put all the screws and rods to align everything. This requires the spine surgeon, the neuro surgeon and a vascular surgeon.
    I'm really scared with all the complications that could happen and nerve damage that could be so damaging.
    Has anyone had this surgery or have any advice.
    I do believe I have top notch doctors so that's not the problem.

  2. #2
    Join Date
    Jan 1970
    Location
    Dublin
    Posts
    1,335

    Default Re: Flatback Sydrome surgery - super scared

    Hi Suejo,
    I had Harrington rod surgery 34 years ago. I had a replacement inserted 4 months later due to complications with the original rod and had the replacement rod removed due to complications with that. In 2010 I had revision surgery I had a decompression an osteotomy and fusion extended, I am now fused from T3 to Pelvis. My surgery was posterior it took about 10 hours, I spent 1 day in ICU and 4 days in HDU. I was in hospital for 12 days followed by 2 weeks in a nursing home before going to stay with my folks who looked after me for a couple of months until I was able to go home again. It does take approx. 2 years to fully recover from this surgery. I am doing really well now and living my life to the full again. Hope this helps. Muriel xx

  3. #3
    Join Date
    Dec 2012
    Location
    Reno, Nevada USA
    Posts
    266

    Default Re: Flatback Sydrome surgery - super scared

    Hi Sue

    Welcome to the forum....

    I actually dodged surgery back in the 70ís and finally had my surgeries done in Jan 2008. It was a 2 stage, massive anterior then posterior with 2 scoli surgeons and a vascular surgeon.

    They did studies at UCSF about having multiple specialists and its very positive. Its good to have these guys around for sure.

    I have been reading and posting on NSF for many years now and they have a revision section. There are many posts of elder Harrington and cast scolis that have had their revisions done. Its amazing to read some of the testimonials, many incredibly complicated surgeries. You guys are all troopers!

    You hang in there....deep breaths

    Ed

    56 yr old male
    T70 L70 double trouble
    A/P T2-Pelvis BMP Jan 2008

  4. #4
    Join Date
    Jan 1970
    Location
    Dublin
    Posts
    1,335

    Default Re: Flatback Sydrome surgery - super scared

    Sue

    Rod forgot to mention that he skis post op and is very good at it.

  5. #5
    Join Date
    Apr 2015
    Posts
    9

    Default Re: Flatback Sydrome surgery - super scared

    Sue, me and you are alike. I'm scheduled next month. Going to.go for it finally. My flat back is getting worse and now I have neuropathy and planters fascitis I right foot. Not waiting any longer for more problems to crop up on me.

  6. #6
    Join Date
    Apr 2011
    Location
    Midlands
    Posts
    46

    Default Re: Flatback Sydrome surgery - super scared

    I have made the same decision.....I have opted for surgery to prevent any further problems.

    However, whilst I'm awaiting a date I keep having mixed emotions as it is such a big surgery. Sometimes I'm positive that something can be done about my problems and other days I wonder if I have made the right decision.

    It's good to chat to people on here though because however supportive your family is they can only support you so much but there are people on here who have gone through the same or similar surgeries and can help put your mind at rest!

    Where are you having your surgery Shelia?
    Juvenile Idiopathic Scoliosis diagnosed aged 6/7
    Milwaukee brace 1980 - 1984, Fused T2 - L3 with Harrington Rod 1984, 10 rib costoplasty 1999, artificial disc at L3/L4 2003, extended fusion to L5 2006.
    Awaiting revision surgery.

  7. #7
    Join Date
    Apr 2015
    Posts
    9

    Default Re: Flatback Sydrome surgery - super scared

    Hi everyone. I am having my surgery done out of state in Raleigh NC. AT Duke. I live in Beaufort sc.

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