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Thread: Anyone with experience of bracing?

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  1. #1
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    Default Anyone with experience of bracing?

    Hi my daughter aged 13 has just been referred to the Stanmore under Mr Lehovsky, we are due to see him on 20th March. The doctor that referred her said that due to the increase in her curves ( last measured in December at 33 degrees) she will need to be braced within the next few months.
    I wonder if anyone can offer any advice regards bracing and what to expect at her first appointment with Mr Lehovsky. Also if anyone can suggest questions that would be useful to ask at this appointment. My daughter stands very straight at the moment and her back muscles are pretty strong due to her training between 5 and 8 hours per week in gymnastics. Does anyone know if it will be ok for her to continue with this as she would be extremely upset if she had to give it up as a result.
    Any help or advice would be great, thanks.

  2. #2
    Join Date
    Jul 2010
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    Default Re: Anyone with experience of bracing?

    Hi,
    I have the same questions to ask, also I don't know which is the best brace for my daughter. I also appreciate any help
    Thank you

  3. #3
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
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    Default Re: Anyone with experience of bracing?

    Hi, it's been many years since I was braced so I'll wait for other people to chime in with more up-to-date info, but please don't worry about your daughter's gymnastics Karis. She will almost certainly be able to continue with this and will be allowed to remove the brace whilst doing so. Having a strong back is a very very good thing

    As to which brace is best - there are many, many different opinions on this. I would simply advise that you follow the advice of your daughter's consultant. There are a handful of charlatans out there who sell braces privately, so be careful of this. The "standard" type of brace prescribed in the UK is a custom-made TLSO; this is a hard-plastic corset-style brace. It is similar to the Boston Brace, which is also commonly prescribed; the difference between the two is that the Boston is constructed from prefabricated parts rather than being custom-made from a plaster cast of your child's body.

    You may also hear about the Spinecor brace, which only a few NHS hospitals provide; this is made from fabric bands so it is more comfortable to wear and allows for more movement, but the jury is out as to whether or not it is an effective brace.

    The Milwaukee brace is still used very occasionally for children with very high thoracic curves. Modern designs are much nicer than the old style Milwaukees but this is still seen as a tough brace to tolerate and so it has fallen out of favour with most consultants.
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  4. #4
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    Default Re: Anyone with experience of bracing?

    Is it better to take measurements for brace by casting or by laser?

  5. #5
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
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    Default Re: Anyone with experience of bracing?

    I have no experience of taking measurements by laser. It sounds wonderfully high-tech but making a brace directly from a plaster mould of the patient's body usually results in a very well-fitting brace.
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  6. #6
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    Default Re: Anyone with experience of bracing?

    My son Nicol has had a brace for 2 years and has continued with his karate during this time, even competing in a world championship overseas, he just takes it off to train. The first two weeks were really bad tbh, but after that, once he was in it for 20 hours, he adapted to it very quickly as it helped so much with his pain. We have been on holiday with it too. With his clothes on, you can't see it, especially if he is wearing school uniform. It has been a positive experience for him as it has allowed him to grow before having his operation (he has a growth deficiency problem), which was a major issue for him. His was done with a plaster cast and he is on to his second one. Hope this helps. XX

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