Re: New here, would love some help
Hi Elizabeth, welcome to SSO
My gosh you have a lot to deal with, you sound like a pretty awesome mum! We are all here for you and will hopefully be able to support you as your daughter goes through this surgery. I'm not sure we have any members with kids who have similar issues to your daughter, but there are plenty of us who are either parents or who have had surgery ourselves. I myself had surgery at 10 for a 76 degree curve, but with no other issues I bounced through it. Hopefully your daughter will come through just fine too- hospitals are great at managing post-op pain in children, in fact I can't remember being in any pain following those surgeries when I was 10, just some stiffness when I got up for the first time afterwards
Lots of love to you and your daughter,
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.