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Thread: A new beginning

  1. #46
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    Default Re: A new beginning

    It's always a bit of a shock when you first see your X-rays, it's a lot to take in isn't it? It sounds as though you are in good hands though and there's a heck of a lot to be said for that. Between now and January appointment I would suggest getting a notebook and jotting down all the things you want to ask. I always do this, plus I leave a gap after each question so that I can quickly scribble down his answers, otherwise I'd forget them by the time I get home
    Me, a Mod? Nah ... I'll always be a rocker

  2. #47
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    Apr 2013
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    Default Re: A new beginning

    Thank you Gilly for your good advice!

  3. #48
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    Default Re: A new beginning

    I remember another thing also. I think he said that he was merely giving advice and that the decision for having surgery or was mine. But I was in a rather confused state so I'm not sure if I understood him correctly. This I'll make sure to clarify of course. Is this similar to the UK way of things?

  4. #49
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    Default Re: A new beginning

    Yes, in the UK this type of surgery is classed as 'Elective' and it is always the choice of the patient themselves whether or not to go ahead with it.
    Me, a Mod? Nah ... I'll always be a rocker

  5. #50
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    Default Re: A new beginning

    did you get any copys of the xrays for yourself?

  6. #51
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    Default Re: A new beginning

    Gilly: Thanks for the info.

    Daniel: No, I didn't. But I guess they cannot deny me if I ask for it? Perhaps I could just make a few snapshots using the mobile-camera

    Wish you all a merry christmas

  7. #52
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    Default Re: A new beginning

    Quote Originally Posted by toref View Post
    No, I didn't. But I guess they cannot deny me if I ask for it? Perhaps I could just make a few snapshots using the mobile-camera
    its worth getting copys for you own self you never know if they will be of use for you in the future.
    you should ask the Dr for copys and they should give you some.

  8. #53
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    Apr 2013
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    Default Re: A new beginning

    Just a quick update. Nothing has really changed but I had a new meeting with the specialist two weeks ago and he recommended for the hospital management that I should be given surgery! He was very clear that his recommendation was no guarantee that I will get the surgery though. Before the meeting I had new x-rays taken while lying on my back with a kind of sharp pillow under the apex of the curve. It bloody hurt lying like that, but the picture showed that my spine was still quite flexible. The vertebrae around T6-T8 opened up on the anterior side. The specialist wanted to avoid osteotomies if he could, but he said he would do that if he thought it was necessary to give me a decent correction. He estimated that he could correct me to 45-50 degrees using instrumentation and spinal fusion between T2 and L2. I just can't wait to receive the next letter from the hospital which will inform me about the decision.

    During the meeting the specialist showed me the result he'd obtained from two previous Scheuermann surgeries the last half year. Both patients were 17-18 yr old and the results were truly impressive! The had curves even worse than mine (which is 104 degrees now) and after the surgeries they were both in the 30-35 degree range. Both had been corrected without osteotomies, just by use of really stiff rods. So I guess there is significant improvement in current practice for Scheuermann surgery now. If you are diagnosed early and meet with the right surgeon then Scheuermann is no longer the terrible disease that it used to be. I hope this can be some form of comfort to young people with Scheuermann and their parents.

  9. #54
    Join Date
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    Enniskillen N Ireland
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    Default Re: A new beginning

    Fingers crossed you will get the go ahead , my son (16) had surgery for congenital kyphosis 8 weeks ago his curvature was over 100 and the correction has been amazing as has the improvement in his pain (off all pain meds at 8 weeks) he is in much less pain now than before surgery
    Mum to Aaron who has congenital kyphosis . Surgery performed by Mr Lehovsky and his team (Matt & Charlie ) on Tuesday 18th February at the Royal National Orthopaedic Hospital in Stanmore . surgery was anterior and posterior approach carried out in the one surgery .

  10. #55
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    Default Re: A new beginning

    So happy to hear about your son! I hope his recovery continues to be as good and fast forward

  11. #56
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    Default Re: A new beginning

    Hope things go ahead for you. I had one of those X-rays you mention and found it incredibly painful too! Unfortunately, mine showed no flexibility whatsoever
    Me, a Mod? Nah ... I'll always be a rocker

  12. #57
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    Default Re: A new beginning

    Thanks Gilly!

    I was really surprised that there was some flexibility in there. I feel really stiff.

    Last night I was thinking that this whole process would not have started if it wasn't for you and the other nice people on this forum. What a wonderful thing this forum is!

  13. #58
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    Default Re: A new beginning

    So eager to hear what's going on at the hospital that I decided to give them a call to get an update. To my joy it was confirmed that I'm in the waiting line for surgery! I can almost not believe it, I've been dreaming of a corrected spine for 25-26 years!

    They couldn't say anything about the time of surgery though. My main contact so far is apparently off for a leave of absence Aug-Dec, so I hope the surgery will be scheduled either before or after this period. I really want to have this guy doing the surgery on me.

  14. #59
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    May 2013
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    Default Re: A new beginning

    Quote Originally Posted by toref View Post
    So eager to hear what's going on at the hospital that I decided to give them a call to get an update. To my joy it was confirmed that I'm in the waiting line for surgery! I can almost not believe it, I've been dreaming of a corrected spine for 25-26 years!

    They couldn't say anything about the time of surgery though. My main contact so far is apparently off for a leave of absence Aug-Dec, so I hope the surgery will be scheduled either before or after this period. I really want to have this guy doing the surgery on me.
    Exciting! I hope you get your date sooner rather than later and with the surgeon you prefer.
    - Kay

    I was diagnosed with Scheuermann's Kyphosis at age 16. I had an 80-degree thoracolumbar kyphosis and mild scoliosis. My posterior fusion surgery was performed by Dr. Sethi in Seattle on Earth Day 2014. It reduced my kyphosis to 50 degrees and my scoliosis to about zero.

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