I've only just recently discovered this wonderful forum. What a great community you are!
Thanks to the many people that stand up and share their stories here, I've finally found the courage to move forward with my own situation and share it with you. My hope is to ease the journey and perhaps give inspiration and courage to others in a similar position.
I'm a Norwegian man in my mid-40's. I was diagnosed with Scheuermann in my early teens. From the conversation with the specialist, now some 30 years ago, a few words have been stuck in my memory: “90 degrees kyphosis and a significant scoliosis” ... “However we do not recommend surgery due to extreme risk of complications.” I wore a brace for some time, but it was so unfortable that I quickly stopped using it.
Over the years I've coped fairly well with life. I've gotten through school and I've got an interesting job. Never had much success with romance, but I don't think it's fair to fully blame my back condition for this. A near total lack of self-esteem is probably the most important part here. I've never been able to respect my body. Nevertheless, the idea of surgery and the fear of severe complications was kept under lid. I wanted to be strong and “play with the cards that were given to me.”
After I turned 35-36 the pain took a gradually bigger part in my life. From the rather mundane episodes a'la “alright, that was my lower back speaking” to the really dramatic “ohh my God, I've just got to get out of this chair - this pain is killing me!”
It's scary to describe this next period. I can see how my pain and my appearance have shaped what I do, what I think I am, my relations with other people. During the past 4-5 years my back problems seem to “have gotten the better of me” and I'm becoming gradually more isolated and focused on the negative. I hate myself when that happens, as it is not who I really am. I'm generally a positive and optimistic fella.
Now I've just turned 44 and the weight of it all is just too much. I've decided that I want to try to get surgery. Fully aware that surgeries rarely solves everything I'm hoping that it may give me more of my life back. Guess I've reached the point where I'm desperate to get a change. I've read the numerous and gripping stories here on SSO and despite all the perils, shores and challenges described they've all contributed to give me the courage to push for surgery.
I've got an appointment with a GP the coming Thursday and I've made a list of the things I'd like to tell him. Hopefully I'll manage to convince him to refer me to a scoliosis/kyphosis specialist.
Alright, that was the first step. I'm feeling a little better already.