Re: Advice would be great
Hi Laura, welcome to SSO
Sadly, doctors are never able to 100% guarantee that pain will be reduced after spinal surgery. This is because the surgical process causes scar tissue which may itself end up contributing to pain. Your surgeon should be able to give you an idea of whether they feel surgery would likely help you or not, and it sounds like they don't advise it in your case.
However! Don't panic, there are lots of nonsurgical methods for dealing with pain. Physio is the main one, but you do need to see a physio who understands scoliosis. Other methods include various steroidal injections to help relax muscle spasms or block nerve pain, and there are a whole range of painkillers that you may be able to take - there are different drugs for different types of pain (ie muscle spasm pain, nerve pain, etc). If pain is your main problem it would be well worth asking if you can be referred to your local Pain Management Clinic, as they can usually offer more methods of pain control than your GP or regular physio can.
If you manage to break the pain cycle via physio or other methods, you might be able to keep it at bay by swimming or doing regular exercises to help maintain your core strength (your core stabilising muscles act like a sort of "internal corset", supporting your lumbar spine).
Hope this helps! Welcome again
37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.