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Thread: Mattress recommendations and UPDATE

  1. #1
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    Default Mattress recommendations and UPDATE

    So, firstly, went to docs yesterday and the new doctor I saw was "horrified" I have had to wait four months for the physio team to contact me. She was very apologetic and wrote another email to the local hospital as she said it's the only way in for x-ray and MRI scans in our PCT.

    She also had a good look at my back...touch your toes etc. She said my scoliosis is "significant" but also highlighted that she wasn't an orthopaedic surgeon and I MUST be seen by one. She hinted that surgery may be inevitable but would prefer to wait until later on in life.

    I was then phoned by the physio team later in the day and have consultation with NHS ones next week and also booked myself a private ome.

    Doctor also recommended a meshed orthopaedic chair at work (that was delivered today ) a curved corner desk (ordered) swimming three times a week and pilates for scoliosis.

    She also recommended a new mattress.

    Any recommendations? Memory foam is the way i feel.

  2. #2
    tonibunny's Avatar
    tonibunny is offline T Sr: Admin, Big Sister and Da Police!
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    Default Re: Mattress recommendations and UPDATE

    Hi Jimmy,

    Yay for your GP! She sounds very helpful I hope things start to move properly for you now. The chair at work will hopefully help you to feel a lot more comfy.

    Memory foam mattresses are very popular here, though I don't have one (I have a lovely pocket-sprung one instead). Quite a few people recommend getting a "topper" rather than an entire mattress, as it's a lot cheaper and works just as well. Memory foam can feel quite hot I believe, but you can get some toppers with ventilation holes to help your skin to breathe.

    Hopefully someone who has one can give you more info

    Toni xx
    37 years old, diagnosed with infantile idiopathic scoliosis at 6 months old with curves of 62(T) and 40(L) degrees. Casting and Milwaukee braces until surgery at 10 - ant release/pos fusion T1-T12, halo traction. Post op cast and then TLSO. Further surgery at 18 (ant release/pos fusion extended to L3 to include lumbar curve, costoplasty) and 25 (another costoplasty). Fusion extended to L4 at 33 (XLIF with 4 pedicle screws and two short rods). Pre-op curves: 76(T) and 70(L). Post-op curves: 45(T) and 35(L). Diagnosed with Ehlers-Danlos Syndrome aged 34; scoliosis almost certainly due to this rather than being idiopathic.

  3. #3
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    Default Re: Mattress recommendations and UPDATE

    Jimmy It does sound as if you have had a great consult with your doctor. I disagree with the idea that you should see an Ortho doctor. They are not as up to date on scoliosis as you need. Really in a best case you should see a scoliosis specialist. Yes they are Scoliosis surgeons but that doesn't mean that they will want to do surgery but it does mean that they will be able to compare your spine to many others who have scoliosis. A couple opinions are not a bad idea. You will then be able to ask a lot of questions and get answers before you make a decision! Do keep posting here as there is a ton of knowledge and experience and we will support you through anything that comes up.
    I am 61 years old and the resident SSO fossil. I live in Oklahoma,USA with my husband Allen. We have one daughter Jae and she has three kids.Our grandkids are: Aidan is8. He's the one pictured in my current avatar. Jenna Jean is 7 and Ryan Allen is just 4 It's full time chaos here! I was diagnosed in 1965 at 14 years with Kyphoscoliosis and 2 curves measuring 68 and 63 degrees. My last measurements were in 2004 at 155, 88 and 55+ degrees. I have never had surgery or bracing so I now am on full time oxygen and use a Non Invasive Ventilator at night. at night.

  4. #4
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    Default Re: Mattress recommendations and UPDATE

    Your GP sounds fab!! I wish our was as helpful!!

    Izzi has a memory foam mattress topper, which she says, help enourmously. Her mattress underneath the topper is reasonably soft. She has also just got a memory foam pillow too and has had a couple of the best nights sleep for a long time - could be a coincidence, but you never know!!!!

    Good luck with the Physio, we have found it very beneficial!!

    Kathryn x
    My name is Kathryn, and I am Mum to Izzi, who is 13 years old and was diagnosed with Idiopathic Scoliosis on 13th March 2012. Izzi is under the care of Mr Gibson at the RNOH Stanmore. 30* Thoracic and 21* Lumbar.
    Follow-up appointment through for 11th September 2012! Working hard on Physio and Hydrotherapy to keep the pain and/or curve at bay!!!! (Ever the optimist!)

  5. #5
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    Default Re: Mattress recommendations and UPDATE

    I have a memory foam mattress, it's half foam and half sprung and it's loooovely. It came with free memory foam pillows which are nice too. Cost us about 300 for a king size which was pretty great value. If your buying online look for ones with a "trial" period so you can return if you don't want.

    Your gp sounds great, but keep on insisting. Took me over a year for them to take me seriously and I ended up going private, so don't let it drop, keep hassling!

  6. #6
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    Default Re: Mattress recommendations and UPDATE

    I am *totally* going to get Dan a topper & pillow now as she sometimes has rough nights & it sounds as though they really help.

    Jimmy, your GP sounds amazingly enlightened, lucky you! Do push for a referral to a spinal surgeon, general orthopaedic surgeons just don't have the knowledge or experience to advise you properly. Believe me...we've been there

    Giselle x

  7. #7
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    Default Re: Mattress recommendations and UPDATE

    My son is reducing the amount he needs his brace now that he has stopped growing ( he has Scheuermann's). He needs a new mattress and his consultant has suggested a Relaxsan Original which I believe comes from Italy. I only seem to be ale to find it online. Does anyone have experience of one or any ideas where to see one in situ to try? We are in SW Hertfordshire UK. Thanks

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