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Thread: Opinions, please!

  1. #1
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    Default Opinions, please!

    I've had six spinal surgeries and am fused from the very top of my neck to about halfway down my back (I'm the least technical person ever when it comes to my own medical conditions so couldn't tell you exactly where to where without looking it up)... anyway - my lumber spine isn't fused and I have quite prominent lordosis there. All the surgeons I've had have said that it is a compensatory curve and that correcting it surgically would do more harm than good so that's not an option but I was wondering if anyone had any thoughts about anything that might help strengthen the muscles there and hopefully help with the aching that I get in that area. I thought about some kind of support brace but was wondering if anyone else had any ideas about things that had helped them. Thank you.
    Izzie, twenty-two, vegetarian, six spinal surgeries, people, hugs, singing, writing and purple.

    'All these moments will be lost in time, like tears in rain.
    '

  2. #2
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    Default Re: Opinions, please!

    I don't know much, but all I can suggest is some physical therapy that might help build the muscles up. Maybe hydrotherapy if you get really achey? I'd speak to your surgeon or GP as well because there might be stuff on your records that sways you to certain methods.

    When was your most recent surgery by the way?

    Good luck!
    I'm Tiff, I'm 17, my consultant's Mr Gibson at RNOH Stanmore and I was diagnosed in November 2011 and I had my spinal fusion October 3rd 2012 and am now fused T2-T11 with amazing correction (60T/40L to 30T/40L).

  3. #3
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    Default Re: Opinions, please!

    Thank you. I've got a check-up in June so might ask then. My last surgery was November - I had the metal-work completely removed after years of it causing problems and two surgeries that were directly metal-work-causing-problems related!
    Izzie, twenty-two, vegetarian, six spinal surgeries, people, hugs, singing, writing and purple.

    'All these moments will be lost in time, like tears in rain.
    '

  4. #4
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    Default Re: Opinions, please!

    I think the best thing you could do is to work on strengthening your core stability muscles as these act as a kind of natural 'corset' around the spine. To wear a brace would have the opposite effect - it would give you support but at the expense of using your own muscles to do the work, thereby making them weaker.
    Me, a Mod? Nah ... I'll always be a rocker

  5. #5
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    Default Re: Opinions, please!

    Quote Originally Posted by GillyG View Post
    I think the best thing you could do is to work on strengthening your core stability muscles as these act as a kind of natural 'corset' around the spine. To wear a brace would have the opposite effect - it would give you support but at the expense of using your own muscles to do the work, thereby making them weaker.
    Gilly has it bang on again, strengthening your core muscles will give you so much support and its natural too
    Latitude: 54 57' 34" N Longitude: 1 25' 16" W


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  6. #6
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    Default Re: Opinions, please!

    That makes sense. Someone suggested pilates but it was a bit too much for me. Hmmmm - might give swimming another go at some point but not been since year 8 as I never really into it. Might be able to persuade someone to come with me. Hehe.
    Izzie, twenty-two, vegetarian, six spinal surgeries, people, hugs, singing, writing and purple.

    'All these moments will be lost in time, like tears in rain.
    '

  7. #7
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    Default Re: Opinions, please!

    If you find the pilates idea to still be interesting, there is a book by Andra Stanton called Pilates for Fragile Backs. I've also seen another similar one recently, but can't for the life of me remember where, or what it was actually called. Andra Stanton wrote her book after her difficulties with Pilates as someone with severe spinal problems, many of them relating to prior surgery for scoliosis (she had flatback which resulted from old fashioned Harrington rods which didn't preserve lordosis the way that modern rods do) - I've not looked at the book myself, but just thought it might be worth mentioning
    Diagnosed at 15 with 50 curve, but probably juvenile IS. Fused in kyphosis (by non-specialised ortho) with a/p surgery T10-L2 @ 21, posterior only revision surgery to correct kyphosis @ 29. Now 38 with further revision surgery and extension of fusion to sacrum required to correct residual kyphosis, restore lordosis and address spinal stenosis.

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