hi all! my name is andi and my daughter was diagnosed with congenital scoliosis in october. we had xrays and went to the orthopaedic surgeon in our network and it was terrible!!!! he basically said to bring her back in a year. he didn't even go over her xrays with us, just basically read the radiology report to us, scheduled a renal ultrasound and sent us on our way. the xrays showed a hemi at t5, a hemi at t9, fused ribs at t4/t5, missing rib at t9, 30degree curve between t4 and t11 and a compensatory curve below all of that. renal ultrasound came back okay.
naturally, i was not okay with this so i rode out the holidays, did some research and bummed around support threads (thank you for being here!!!). in february i made an appointment for Odella to have a second opinion. that was yesterday and it was so much better than the first appointment!
we did new xrays with her standing--her curve is now 38.3degrees. her new doctor wants an mri and ekg and believes that surgery is the only way to correct the problem. he wants t9 out first as it is causing the most trouble and then he thinks the fused ribs need to be unfused because they will act like a tether inhibiting growth. t5 he is undecided on, it is small but will likely need to come out too. this is still a bit of a waiting game too because she is too small to receive the implants still.
anyways, that is where we are now. it is scary and overwhelming and i would love comments, suggestions, support or whatever!
thanks again for being here!